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Baby Symptoms Of Celiac Anyone?


langone7

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langone7 Apprentice

I have Celiac disease but was never FULLY sure until now due to the fact I never had a complete panel (but since eating something with gluten after 1.5 years I've been sick). I had been trying to figure out my 3 month old son's allergies since birth. I've come to the conclusion that he is allergic to dairy, gluten, and soy. Previously when I had dairy he would be congested, mucousy stools, trouble sleeping,etc. But I still was not positive that was the offending food.

Last Saturday for dinner I ate a milk shake and breaded chicken. Immediately the next day he had mucousy stools, projectile vomiting (which he never did).He has quit taking naps, screams in pain randomly, etc. He no longer vomits now, but now has diarrhea, bloating, a pimple like rash similar to my gluten one, and a low grade 99.9 fever. I am very concerned. His pediatrician didn't seem too worried sense his fever isn't high enough. She said it could either be a bug or allergies.

It seems like such a coincidence for it to be a virus. Does any one else's child have similar symptoms including the fever with gluten?

And does anyone know how effective genetic testing for Celiac would be for him?

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cosmicmouse Rookie

Surely if you're Celiac, he's not getting any gluten? and if he's allergic or intolerant to dairy, it's likely to have been the milkshake??

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  • 2 weeks later...
Austins-Mom Newbie

My son has the same reactions to gluten and dairy. For years we went back and forth to the doctor  and ER, with him in screaming pain of his stomach. The doctors told us it was his enlarged Vegus nerve. It wasnt until I put all of his probloms on paper that and had a list of things it could be and showed it to my doctor that she actually decided to check him out. If he has problems with bread and dairy stop giving it to him, demand to see a GI doctor. Follow your intincts, Goodluck.

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mommida Enthusiast

If you are going to a pediatric gastroenterologist, you might have a 3 month wait for the specialty.  You must continue giving the patient gluten for the testing to be accurate.  (Celiac is diagnosed from the damage caused from eating gluten ~ if you don't have the damage the will not be a diagnoses.)

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ArPlasma Rookie

My son had a lot of GI issues as a baby( projectile vomit, diarrhea), plus skin rashes and was a very colicky baby. I wish I had pushed the issue a bit more. He was finally diagnosed this past month after almost missing it again( I had a hint in June last year and after being told it was highly unliely he ad Celiac, then given the wrong tests, then finally the Celiac panel, then biopsy, we were finally able to put a ame on it). Now we're struggling with DS2 chronic urticaria with unknown cause, tested negative on Celiac blood panel( right below cutoff), erratic growth( doctor does not seem concerned...I am). We cut him off gluten since our house is gluten-free anyway. Still looking and trying to figure out the pieces of this puzzle. All of that to say that keep asking questions, look around and follow your intuition.

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africanqueen99 Contributor

The baby is 3 months, correct?  Still nursing?  I don't understand how he would have gluten in his diet if you're celiac and gluten-free.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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