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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

More Of A Rant About Uninformed People
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8 posts in this topic

This is a comment on my bodybuilding profile:

 

'Wild rice, barley (including beer), beets, MSG, teriaki sauce, soy sauce, and oats all contain gluten.... Also, casein is very close to gluten in molecular structure.... Many who cannot tolerate gluten also cannot tolerate milk protein. Whey is almost always contaminated with some casein. It is true that almost all soy is gmo, About 25% of corn is gmo. Soy is poisonous anyway and no animal or human should eat it.'

 

This was my comment in reply:

Wild rice as far as I am aware is naturally gluten free. Perhaps it is contaminated with gluten in processing such as the oats are. But rice is gluten free. I have never heard beets having gluten in them. Soy sauce has wheat in it, true. Beer - yes due to barley has gluten in it. MSG may cause a problem, but it's not from gluten. Monosodium glutamate is a flavoring made through the fermentation of corn, sugar beets, or sugar cane. It is gluten-free. I will agree that corn is mostly GMO - the corn that says it is not GMO has ~0.09% GMO corn - you cannot find true non-GMO corn these days. Soy can be an issue for some- I wouldn't agree that it is poisonous. But everyone can make their own choices based on their own comfort levels.

 

 

' "wild rice"....the dark almost black long rice isn't even really rice. Wild rice does contain gluten....most people are unaware of this. Regular white and brown rice are gluten free. MSG is made from beets. MSG is has drug like affect on the brain....it doesn't enhance the flavor of food, it tricks your brain into thinking the food tastes good. Now for soy ...it must be processed to a point of having all it's nutrients destroyed and re-inserted to be non-poisonous. You cannot eat unprocessed raw soy, neither can cattle, horses, or pigs. It will bloat them and kill them. In women it creates weight gain and other hormonal imbalance issues, in men it causes man boobs...another hormonal imbalance. I grow many hundreds of acres of the stuff. A campaign in the 70's to increase soy sales, touted it as a 'health food' and ever since, people have been confused about soy. Soy is good for it's oil for livestock and the industrial business. The gmo corn that is grown is at about 10 to 25% of sales....Yes they do mix all the corn at the elevator...they don't use separate silos or bins. Asside from farming, 3 out of 6 in my house must remain gluten free and have been gluten free for 15 yrs.'

 

I didn't open this up for debate or advice on the bodybuilding page, but a few of my friends there have celiac disease, UC, IBS, Chrohn's and we share our stories and learn from each other. This lady though... just put a bunch of bad information on my page and now I have to reply otherwise people may think I agree with her.

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Tell her if she is posting, she has to show links to REPUTABLE  sites to back her claims. Just like this site, if you make a claim, you have to back it up.

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It's annoying when you try and rebutt to postings made by the food ignorant.  You did a good job with your replies but Barty gave you added ammunition to shut this person up....although I am sure they may provide kooky links to unreputable sources, that many people believe.  The "soy is poison" topic is really getting old.  If what she posted were true, I would be a mess.  As you know, a lot of good protein sources for body building come from soy and I use them myself, with no issue.  Some people tolerate soy well, others don't.  Just like gluten......some can eat the stuff until they pop and others, like us, get deathly ill.

 

Unfortunately, you can try and educate people until you are blue in the face but it won't help unless they actually listen and educate themselves.....with the right material.

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Its your site, right?  Can you just delete it?  Maybe post that you will not tolerate rudeness and blatantly incorrect information.

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I try not to get super scientific and try to be respectful of the alternative medicine types but some information is just plain wrong. What really gets me is that in the same breathe so to speak, she says soy is poisonous yet grows hundreds of acres of crops to sell it. Say what? If you grew 'poison' to sell... what kind of morals do you have? I don't agree that soy is poison.. but I found that rather ironic that she uses that as her testimonial to her claims.

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Sounds like she has herself convinced about things and there will be no changing her mind. Some people just put something in their head and you cannot change it! 

 

And cows pigs and horses cannot eat it but yet it is fed to live stalk .... Ummm OK lol 

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Sounds like she has herself convinced about things and there will be no changing her mind. Some people just put something in their head and you cannot change it! 

 

And cows pigs and horses cannot eat it but yet it is fed to live stalk .... Ummm OK lol 

 

Right?! she was too much for me.

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Funny when I first started reading a part of this I read wild Rice had Gluten in it I was like WHAT??? Good thing I read the rest of the story lol 

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      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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