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Dr Office Called For Appointment To Discuss Results. Bad News ?


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17 replies to this topic

#1 Leomag

 
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Posted 28 February 2014 - 06:45 AM

Hi everyone.

 

My son had blood tests last week for celiac and the doctor's office called to ask to make an appointment cause doctor wants to discuss results. Do you wreckon that means that they came back positive ? (they also tested iron and other little things though)

 

My son is 10, growth deficency, ADHD, enemal hypoplasia, anemia + when eating gluten : red rash on buttocks, extreme sudden fatigue, nausea, gas, constipation. 

 

Your opinion please ? it's the week end and I can't wait until it's monday.  :(

 

Thank you for your help


Edited by Leomag, 28 February 2014 - 06:48 AM.

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#2 dilettantesteph

 
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Posted 28 February 2014 - 06:51 AM

I can't predict what the doctor will say.  Don't think of it as bad news though.  Think of it as knowledge that will allow your son to get better.  Try to do some fun things this weekend to get you mind off it. 


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#3 kareng

 
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Posted 28 February 2014 - 06:51 AM

If the results are positive, they probably want to discuss your next steps.  If the results are negative, they probably want to discuss your next steps.  

 

I hate when they won't say "The tests were negative.  We want to discuss where we go from here."  Or the reverse.  Would give you time to think of questions.  Any chance you could call back to day and insist on hearing the results.  Tell them you will still come to the appt but want time to get your thoughts and questions together?  That you don't want to react negatively infront of your child in the office?


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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
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#4 Leomag

 
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Posted 28 February 2014 - 07:02 AM

I asked the secretary but she wouldn't say. I am going without my son on monday, so no problem with talking in front of him...


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#5 kareng

 
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Posted 28 February 2014 - 07:03 AM

I insisted to the secretary but she said she couldn't say. 

I am gong without my son though so, no problem with taking in front of him

 

 

If possible, I would call back and talk to a nurse.  The person who makes appts can't tell you.

 

Make 2 lists of questions - one for negative & one for positive.  I know I forget what I wanted to say when I'm there.


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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#6 Leomag

 
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Posted 28 February 2014 - 07:09 AM

I am jsut very impatient to know and I wonder if the fact that they are asking to come in and that they wont say on the phone means it is positive ?

 

My son has so many symptoms that I wonder how that could be negative...


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#7 kareng

 
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Posted 28 February 2014 - 07:36 AM

I am jsut very impatient to know and I wonder if the fact that they are asking to come in and that they wont say on the phone means it is positive ?
 
My son has so many symptoms that I wonder how that could be negative...


Either way, you will know something. My nephew's blood test was negative and they just stopped looking for anything else. I see this as a good sign, that, even if its negative, they want to help figure it out. But, honestly, a positive Celiac diagnosis might be better. You know what it is and can start making him better. Use the weekend to make a list of questions and concerns for either test result. Find some things to keep you busy.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#8 1desperateladysaved

 
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Posted 28 February 2014 - 08:17 AM

I remember waiting for my test results.  Monday will come.  I believe I would call and talk to the doctor or nurse though.  Your child does seem to have many symptoms that are suspicious.  I wish you all well!

 

D


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#9 HavaneseMom

 
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Posted 28 February 2014 - 10:23 AM

Did you have the blood drawn at a lab or at the doctors office? If you had it drawn at a lab, they might be able to get you a copy of the results. I always ask the lab to mail me a copy directly of my test results. They just have me fill out a form with my address and mail the results to my house then. If you had it drawn at a nearby lab, you might be able to call them and see about getting a copy. You would probably have to go and fill out the release form, but I'm guessing they could give you a copy right then, but I would definitely call them first. That's just an idea, but there may be some reason why your doctor wants you to wait for the results until you see him on Monday. I would call the doctors office back and try to probe for more info first though. I hope your son feels better soon.


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Grateful to be correctly diagnosed at 40.
Likely misdiagnosed since childhood.
Blood test and Biopsies positive for Celiac Disease.
Gluten Free Since 10/9/13.

Be kind whenever possible. It is always possible. ~ Dalai Lama

#10 HavaneseMom

 
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Posted 28 February 2014 - 10:51 AM

After I wrote the above post, I decided that wasn't great advice to suggest you call the lab for these results. When I got my positive results for celiac, my doctors phone nurse called and told me I tested positive for Celiac Disease, asked if I had any questions, and the call was at the most two minutes long. I would have much preferred if my doctor would have called me in for an appointment and taken the time to explain everything to me. Monday isn't too far away and it will give you a chance to think of lots of questions to ask your doctor. Hang in there :)


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Grateful to be correctly diagnosed at 40.
Likely misdiagnosed since childhood.
Blood test and Biopsies positive for Celiac Disease.
Gluten Free Since 10/9/13.

Be kind whenever possible. It is always possible. ~ Dalai Lama

#11 WinterSong

 
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Posted 28 February 2014 - 11:04 AM

Sometimes doctors have a policy of making you come in to discuss any results, good or bad. It's really annoying. I had to pay a $30 copay and get out of work to have my doctor tell me that all of the test results in my yearly physical were normal.  :angry:


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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#12 124chicksinger

 
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Posted 01 March 2014 - 07:36 AM

Try to calm both your and your son's anxiety over the weekend - you are very close to knowing the answer. I know how frustrating that is, but soon enough you'll see the doctor.  From there you'll have decisions to make, either positive and make dietary changes, or negative --- and make dietary changes.

 

I am in the same boat awaiting results, but already scheduled for biopsy - which I thought was backwards.  I intend to eliminate gluten directly after the biopsy on 3/5. 

 

I'm sorry to hear your son is suffering, and from my limited knowledge it seems it could be celiac or gluten intolerance.  The answer is near.  


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#13 Leomag

 
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Posted 02 March 2014 - 06:37 PM

So I've had the results today. 

 

Alleles :

DQA1*05:01 = not detected

DQB1*02:01 = not detected

 

DQ8 alleles

DQA1*03 = not detected

DQB1*03:02 = detected

 

Gliadin IgG < 5.0 U/ml

TTG IGA not detected

 

The doc says that means he doesn't have celiac. Then what does the detected DBQ1*03:02 means ??? I must say I got concerned about all this when the doc was talking about wether or not he thought there was gluten in Corn !!

 

What do you think ?

 

 


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#14 kareng

 
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Posted 02 March 2014 - 06:40 PM

Just having a gene doesn't mean you have celiac. About 30% of people have at least 1 gene for Celiac. They have to " turn on".
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#15 Leomag

 
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Posted 02 March 2014 - 07:00 PM

thank you for your answer.. Is this regardless of the symptoms ?


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