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When You First Start To Eliminate Gluten Containing Foods
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As you can imagine, I have many questions. I have not yet received the blood work results, and am having this Wed. the endoscopy biopsy, along with colonoscopy.  I have had digestive issues about 2 years now, and only recently the light bulb went on with both me and the doctor.  Regardless of the results, I am going to eliminate gluten.

 

The obvious food culprits are easy to remove.  Then I read gluten hides in many foods and vigilance is needed.  Here is the crux of this question - so you stop eating the obvious offenders, those which you have likely been eating in volumes - breads, pastas, cereals and the like.  Just by removing those, doesn't a person begin to feel better?   Knowing you have to be careful of the hidden gluten is an accompany step....but to read that a leftover crumb from a toaster can make you sick, or continue to keep you sick - that boggles my mind.

 

I fully anticipated I would begin to feel better and have symptoms leave me, eventually, when I am able to start eliminating the gluten, but if I do get a celiac diagnosis, it seems the odds are stacked against~!

 

Did "you" feel better after the initial elimination of the obvious culprits?  Thanks. 

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I did not have any symptoms at all except for anemia.  I just went for a routine colonoscopy (over 50) and the GI suggested Celiac.  I was shocked.  Took the blood test and it was mildly positive.  I knew that I had it, so I ate gluten like a fiend for the next seven weeks.  I literally and quite stupidly consumed a loaf of sourdough bread, pastries, cakes and cookies (I loved to bake) a day!  By the time I had the endo and the colonscopy, I had intestinal symptoms which did not go away noticeably for seven weeks (Marsh Stage IIIB).  Then I had to deal with the anemia, thyroid storms and menopause.  Three months later, my first fracture (vertebrae) resulting from osteoporosis.  

 

Now, I am better a year later, but just a crumb will set me back a week!  The good news is that I'm feeling great, strong and am back on my bike!  So, it's worth it to remove gluten -- every single trace!!!!!  Cold turkey is the ONLY way to go…..

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Yes, one crumb from the toaster WILL make you sick. In the coping section you will find a thread called "Newbie 101". It'll teach you how to avoid cross-contamination. It takes a bit of learning and can seem overwhelming at first but after a while it becomes second nature.

 

First of all, fresh meats, fruits and vegetables are all naturally gluten-free. You would be better of sticking to these things at first. There are a lot of gluten-free substitutes such as breads (I like Canyon Bakehouse or Udi's), frozen pizzas (Against the Grain is my favorite), plenty of gluten-free flours and baking mixes, cookies, cakes, muffins, just about anything you can imagine. The trouble is, most of these are high calorie/low nutrition, so it's best to limit them to occasional treats. (Although I was pleasantly surprised to find that King Arthur gluten-free flour, although expensive, has quite a bit of nutrition so my pancakes are GOOD for me. :) )

 

Then there are regular foods at the grocery store. Some companies are really good about labeling. By law, wheat has to be labeled, but barley doesn't. However Kraft Foods, Con Agra, and several others WILL label for barley. (Rye you don't have to worry about much. I think rye bread is about the only place you will find it.)

 

Nuts? Yeah, some are processed in the same facilities or on the same equipment as wheat products, but if you stick to Planter's (a Kraft company), just read the label and you'll know if they are safe or not.

 

You have to check all of your medications and supplements too. Sometimes we have to write to the companies that make them.

 

But all in all, it really isn't that hard. You can do it! And you will feel SO much better. :)

 

If you have any questions about anything you can come here and we'll be glad to help.

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It is a difficult concept at first...hence the large learning curve when diagnosed.  For me and many others...the reactions became more severe rather quickly....it's like your body is so used to fighting this invader and then it is gone so when small amounts are consumed there is a massive attack on smaller and smaller invaders.

 

Try not to spend too much time questioning it...simply prepare to remove all sources of gluten and learn to read every label, every time.  Starting with a diet of whole foods is better for your healing system and much easier to navigate than reading a ton of lengthy ingredient lists on processed foods.

 

Good luck tomorrow :)

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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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