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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gastritis Flare Up? Time To Find A Gi?
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Hi all,

 

I was going to revive an old thread from the dead, but those often get overlooked, so if you want the background story, take a look here

http://www.celiac.com/gluten-free/topic/99003-gastritis/?hl=gastritis

 

I had an endoscopy fall 2012 and they did see some mild gastritis. I saw a GI once last January, but it was kind of useless as he didn't address the gastritis at all.

 

One year later, Doing relatively better. No (discernable) glutenings recently. I was even a good girl and did almost all my own cooking on vacation a couple weeks ago (packed pans and cutting board in my luggage and the whole bit!). But no matter how safe/careful I've been, I've been having more and more issues with random nausea after eating, aches, tired, slight heartburn, anxiety is up, etc etc. It is possible that I did suffer a mild glutening (no real, um, bathroom issues) that's just worn me down, and/or my gastritis might be flaring up again.

 

I have no clue if the gastritis ever healed, or got worse, or what. The pain/nausea I've been having does fit the description. It's all up along my left side, and the lower part of my chest. I haven't been physically sick because of it, but often feel like I could. Afternoons at work have been rough cause I've been nauseous after eating. I haven't been cooking anything unusual or that anything that should bother me. (It could be a new intolerance, but even then it seems to be pretty random)

 

In any case, I'm thinking it might be time to see another gastroenterologist and get things checked out properly, see if that gastritis is still kicking around and find out what I should do about it. Any advice/opinions on that? (If anyone knows a good GI in Toronto, that would be a big help). I'm not looking forward to another round of appointments and waiting and tests and possible dead ends, but I think I might have to. I'm going to do some research and take a few names to my doctor this time.

 

I'm so sick of being sick! Blaargh!

 

Thanks guys

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Ads by Google:

gastritis is inflammation of the GI tract.

so, what causes it?

 

 

"Gastritis can be caused by irritation due to excessive alcohol use, chronic vomiting, stress, or the use of certain medications such as aspirin or other anti-inflammatory drugs. It may also be caused by any of the following:

  • Helicobacter pylori (H. pylori): A bacteria that lives in the mucous lining of the stomach. Without treatment the infection can lead to ulcers, and in some people,stomach cancer.
  • Pernicious anemia: A form of anemia that occurs when the stomach lacks a naturally occurring substance needed to properly absorb and digest vitamin B12.
  • Bile reflux: A backflow of bile into the stomach from the bile tract (that connects to the liver and gallbladder).
  • Infections caused by bacteria and viruses.
  • http://www.webmd.com/digestive-disorders/digestive-diseases-gastritis
  •  
  • So....could any of these be an issue ? And probiotics are a great help with gastritis.... FWIW
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My endoscopy showed chronic gastritis when I was first diagnosed. I was tested for all the things IrishHeart mentioned - everything was negative. Severe symptoms went away when I stopped eating gluten. Gastritis just means inflammation of the stomach lining, so no reason this can't just be celiac damage that affects some of us in this area. Probiotics have made no discernible difference for me.

 

I have almost identical intolerances to yours (except the brown rice). When I react, I get gastritis symptoms, especially if it's a dairy reaction. Cross-contamination is a real possibility, although I agree that if you can't quickly pinpoint a pattern with your diet you should see a GI and get some tests run, just in case it's something else. 

 

I'm curious - have you verified that your egg intolerance is actually from eggs? As my soy intolerance grew more sensitive, I started having trouble with eggs. I tried soy-free eggs (from chickens that were not fed any soy) and was totally fine with them. I now cannot even tolerate any baked goods that have egg as an ingredient (just egg whites seem ok), but am totally fine as long as the egg is soy-free. Worth investigating, at least.

 

And I agree - soy is the root of all evil (well, along with gluten). Do not underestimate its ability to hide and make you miserable.

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Hey guys,

 

The endoscopy that showed the gastritis inflammation was looong after going gluten-free (5 years today!). I just have no idea what caused it in the first place, or if the pain I keep getting is it coming back, for whatever reason.

I've been feeling better the past few days, so fingers crossed I've gotten past whatever it was. I am going to talk to my doctor about it when I see her next, but it all comes down to diet anyway so maybe an elimination is in order. I do find I have more trouble with grains in general these days. Blergh.

 

Re: other intolerances: I can eat eggs in baked goods ok, just not on their own or as the main ingredient. Things like brown rice is "a little bit is ok, but not a whole bowl of it" type of thing. That is interesting about soy-free eggs though. I'll look into it. Soy is evil. EVIL!

 

in any case, I've stopped panicking. We'll see what happens. I keep up with my digestive enzymes, and I should try a probiotic I guess (just found some yogurt I can eat and it tastes like good! so that'll help too)

 

Anyway, thanks guys.

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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