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Stopped Gluten, Still Issues, Blurry Vision, Overnight Issues...
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Hey, I know I'm a celiac and I have stopped all gluten but something else is going on. Here's the major symptoms that I cannot improve.

 

I have to eat right at bedtime (almost a full meal) or I wake up with the most upset stomach on earth. I'll be heading to the bathroom in minutes. If I don't eat right away upon waking it's the same deal.

 

Recently, I can hardly see. I don't know what's going on but when I wake up I can hardly see (what I mean is text on my computer screen) but during the day at random times. *POOF* I can see fine.

 

I started having night sweats again.

 

I eat certain foods (not sure which, soy I think) and my legs get really sweaty and I get very hot. During the day at the most random times I go from hot to cold. By hot, I'm in a t-shirt by cold I'm in a down jacket. I weight 158 pounds down from 285. I lost the weight exercising like a maniac. Now I'm reading that may not have been such a good thing.

 

Gluten even in the most minute amounts (I cannot share butter with my family) will make me throw up, have numb lips, and a very severe allergic reaction. I don't throw up right away, it takes about 3 or 4 hours to get there. Benadryl, the maximum dose usually rescues me but that's when it's cross-contamination. I'm terrified to think of what happens if I eat real bread some day.

 

I have skin the peels off the inside of my mouth. Intermittent headaches (very mild), pre-gluten they were migraines.

 

My feet always sweat and I mean a lot.

 

All of this started back in  June of 2012 and I'm just now putting the pieces together. I tested negative to Addison's and Thyroid but I still suspect thyroid because my dad has it.

 

I always have brain fog (well it came with the blurry vision).

 

I wonder about being diabetic. I know my sugars can go very high but that was from gluten. Does anyone know can you test diabetes with just a regular blood sugar meter? I don't have insurance right now so I'm doing this all on my own.

 

Oh and uh, I'm a married white male with 3 kids seeking someone who knows everything. :rolleyes: .

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Diabetes? Go to Blood Sugar 101 and there is a section about how to test your blood glucose levels if you do not have insurance or just want to know. Doctors will typically not give you a meter or strips until your are actually diabetic. You can buy a cheap meter at Walmart and the strips are less than 50 cents. Total cost about $30. It is pretty accurate and will give you an idea on where you stand. The site gives you tons of information too and it is well documented. Go to YouTube to learn how to use the meter.

If you look like you are diabetic, than get to a doctor. Do not mess around. You would need to find out what type of diabetes you have for proper treatment. I would not mess around if my eyes were acting up!

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Diabetes? Go to Blood Sugar 101 and there is a section about how to test your blood glucose levels if you do not have insurance or just want to know. Doctors will typically not give you a meter or strips until your are actually diabetic. You can buy a cheap meter at Walmart and the strips are less than 50 cents. Total cost about $30. It is pretty accurate and will give you an idea on where you stand. The site gives you tons of information too and it is well documented. Go to YouTube to learn how to use the meter.

If you look like you are diabetic, than get to a doctor. Do not mess around. You would need to find out what type of diabetes you have for proper treatment. I would not mess around if my eyes were acting up!

I have a tester from my mom as she's diabetic I just don't know how I would use it to test my sugar. Like would I drink 20 ounces of kool-aid on an empty stomach and then test it an hour later? I'll go read the blood sugar 101 section. Thank you!!!

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The website will explain in detail how to test. You can go to YouTube to find out how to use the meter. No, Kool-aid -- just a plan boiled and peeled potato, cup of rice or a bagel (but that is not an option for celiacs).

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How long have you been gluten free?  It can take some time to heal fully.  It can also take some time to stop making mistakes with the gluten free diet.  

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Welcome to the board.

 

I wonder about being diabetic. I know my sugars can go very high but that was from gluten. Does anyone know can you test diabetes with just a regular blood sugar meter? I don't have insurance right now so I'm doing this all on my own.

 

 

Gluten will not affect your blood sugar much. It's technically a protein, and proteins don't spike sugar much. Carbohydrates are the things that affect your blood sugar, and any flour will do it whether it's gluten filled like wheat, and rye, or gluten-free like corn starch, and tapioca starch.

 

I do agree though that if you think diabetes is a possibility, then you should see your doctor. You've listed a lot of symptoms so it might be good to check it out.  If you do have access to a glucose metre, checking your fasting blood glucose can often tell you if you are having problems can be helpful. If your FBG is between 100 to 125 you are headed for trouble, and if it is above 126, then you've already arrived at trouble. Fast for 12 hours before testing. http://diabetes.niddk.nih.gov/dm/pubs/diagnosis/

 

Some of your symptoms could be due to a thyroid problem like Graves. Google the symptoms and see if it fits. TSH, free T4 and free T3, as well as TPO Ab would be good tests to ask for.

 

LOL And you don't need "someone who knows everything", you're already married.  LOL ;)

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Weight loss that happened that quickly can mess with your gall bladder.  A full blown gall bladder attack is a crazy assault on your body.  (I can't even think of words to describe it. My issues may have been triggered by 30 lbs of weight loss, the F's ~ Female, Forty, Fertile, & Fair (risk description of usual patients)  ((Glad to be a man aren't cha?))

 

Untreated Celiacs have reported issues of non functioning gallbladder.  (Some have had the gall bladders removed before finally being diagnosed with Celiac.)  Issues seem to be resolved on a gluten free diet for most and you aren't in the highest risk bracket.

 

If you have time look into ketosis in weight loss vs. ketosis in diabetes.  (I have a vague recollection of hearing something about that, but I don't know if I will have time to look anything up for you)

 

If there was anything funky with my eyes I would get someone to look at me pronto!!!!!!  R retinal rip/ tear + possible detachment is basically a medical timebomb.  Vision is lost by the minute.  You don't have to experience any type of pain, and not even suffer any type of injury, and there really is no known reason for why it happens to some people.  (The only known risk factor is family history.)

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Did you get a full panel for the thyroid?  My doctors just did TSH and when I finally did get the panel we discovered my thyroid wasn't working optimally.  Have you had nutrients checked?  Vitamin A  can cause problems with vision according to my children's anatomy book.  I wouldn't necessarily take vitamin A without testing as too much is not good.  My brain fog seemed to do with further intolerances and vitamin deficiencies.  Vitamin deficiencies for me including ferritin, vitamin A, vitamin B.

 

I would working on making sure your blood sugar is as stable as possible. Are you taking digestive enzymes which would help to break down your food if the pancreas isn't doing well. For my blood sugar, I avoid sweets, limit fruits and especially have no fruit juice.  I take 2-3 oz of protein food at every meal.  With this I have about 27 carbs and about 1 Tspn of fat.  You may need more, but keep the same proportions. 1 med. potato is about 27 carbs.  You can print off a chart of the number of carbs in things and in a week or two you will likely have it down.

 

You might try keeping track of what you eat to see if anything lessens or increases symptoms.  I have a rotational plan in which I don't repeat foods 4 four days after eating them for one.  This helps to identify problem foods.  Some people like to try SCD diet (grainless), paleo, or elimination diet to find other intolerances.

 

Were you with symptoms a very long time undiagnosed?  I was, and though I had avoided doctors for many years, for this it became so complicated that I sought help.  In fact I talk with an MD, chiropractor, and functional medicine nurse backed by and osteopathic doctor.  I still do much studying myself and all of these have helped very much.

 

I hope you will find the help you need.  Brain fog is NOT FUN in my book.  And now I know it isn't normal either.  Keep heading in the right direction. Mine cleared after 30 years of it.  It took a while and much detective work.  Keep on keeping on.

 

D

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    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
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