Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could You Just Try It? Grrr...
0

13 posts in this topic

I am recovering from a foot wound and was told by a Dr. And nurse to eat more protein to help it heal faster. DR. Was displeased with my eating beef and bacon because of the fat. Urged me to eat beans. I love beans and normally eat them daily but the strong antibiotics I am in are caused big D so... Trying not to eat so many seeds, nuts and beans.

I try not to eat soy as it causes me to have thyroid problems. Am intolerant to all dairy, eggs, lamb, chicken, fish, shellfish, some nuts and many other things. Due to gastoparesis, I don't digest meat well and might puke it up. Since I am not supposed to walk, I am trying not to deliberately eat that which would cause distress involving the toilet from either end!

But today I got into it with two different people. One pushing me to eat tuna and the other, dairy. Dairy is forbidden with this antibiotic I am taking. But I know how ill it makes me. Runs right through me and also causes ear and sinus trouble. Not sure what tuna does as I never ate much if it, but when the test showed positive, I gave it up.

So... What can I say to people who urge me to try that which will sicken me? They are angry that I won't try their suggestions. The one person even pointed out that their are many kinds of dairy. Yeah. And the all make me sick!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sorry folks are putting you into such an uncomfortable position with everything with which you are having to deal with right now. Unless these folks are ones you live with the easiest thing (IMHO) might be just to say "thanks for trying to help. I will take that into consideration" and then change the subject. They may just be trying to be helpful but unfortunately some folks just won't understand and some think they know everything and it just isn't worth wasteing your time and energy trying to make them understand.

0

Share this post


Link to post
Share on other sites

Sorry folks are putting you into such an uncomfortable position with everything with which you are having to deal with right now. Unless these folks are ones you live with the easiest thing (IMHO) might be just to say "thanks for trying to help. I will take that into consideration" and then change the subject. They may just be trying to be helpful but unfortunately some folks just won't understand and some think they know everything and it just isn't worth wasteing your time and energy trying to make them understand.

Thanks! I don't live with them. However my fear was that they would bring me a case of this stuff from Costco because they know that I can't get out. Worse still they might come over and not leave until they saw me try it. I do think the one person is senile. She called me throughout the night to scream at me and tell me that I was being abusive and rude to her over the tuna. She once literally tried to force my daughter to eat wheat crackers for her upset stomach, so I know how she can get. This after my having to leave her there while I got a flat tire fixed.

0

Share this post


Link to post
Share on other sites

Sorry  for  all the  crazies who  are  trying  to  interfere with  your  recovery!  All though  I'm sure  they  think  they are  helping  in some  way....people  do  odd  things  in the name  of  helping others but  it is  probably  what  they  feel  they  can help  with!!!!!  Sure  doesn't  help  making  you  stressed  when  you are  healing  &  feel  bad  enough....

But  for the one  who  called  you  during the night  time  I  would  stop that  at  any cost...she  just is not  worth  putting up  with.. NO  calls  except  emergency calls  should  be  made a t  bedtime....our  house  rule...

 

Hope  ypou heal  fast  & feel better  soon....hugs

0

Share this post


Link to post
Share on other sites

Sorry  for  all the  crazies who  are  trying  to  interfere with  your  recovery!  All though  I'm sure  they  think  they are  helping  in some  way....people  do  odd  things  in the name  of  helping others but  it is  probably  what  they  feel  they  can help  with!!!!!  Sure  doesn't  help  making  you  stressed  when  you are  healing  &  feel  bad  enough....

But  for the one  who  called  you  during the night  time  I  would  stop that  at  any cost...she  just is not  worth  putting up  with.. NO  calls  except  emergency calls  should  be  made a t  bedtime....our  house  rule...

 

Hope  ypou heal  fast  & feel better  soon....hugs

Agree. I really think she is not right in the head, perhaps due to senility. She'll be 80 soon. And because I am stuck here on the couch, I can not go see her like I usually do. I did contact the relative who will see her today and alerted her of what she did. For a time, I was getting frantic late night phone calls from her. She would say that something terrible had happened. So terrible that she could not bring herself to speak of it. Then she'd hang up. When I spoke to her later, she accused me of lying! The bad thing is that she is very controlling. Because of this, I do not invite her here. But since my operation, she has come in here and turned the house topsy turvy claiming that she was helping and I was being ungrateful. Thankfully another relative was here to witness, the same who is going to see her today. She got her out of here before she did more damage or lost her purse again. Lost it 3 times in a 15 minute period.

0

Share this post


Link to post
Share on other sites




"I can't eat that. It will make me sick" is more than enough of a response.

Tuna should only be eaten on rare occasions anyway (mercury, over-fishing, etc etc). If you can handle any fish, salmon or trout or something is a better alternative. But that's beside the point. You know what you can/cannot eat, and being stuck in bed doesn't change any of that. If anything, it makes it even more important that you stay away from anything that bothers you. If friends/family want to help out, then ask them to bring what you know you can eat.

 

Hope you're doing better soon!

0

Share this post


Link to post
Share on other sites

Juliebove

 

I  have  one of these  people  who  lives  in  my  back yard!!!!! Drives  me  &  everyone  else  around  crazy..... yells/fights  &  screams  for no  reason....The  age  of  my  pain  is  75!!!!!  Please   get  better  soon   & I hope  the others  can keep  her  away until you feel better....  it is  hard  to cope  when  you don't  feel well then to have  a  person  stressing  you out.... sorry.

 

hugs

0

Share this post


Link to post
Share on other sites

"I can't eat that. It will make me sick" is more than enough of a response.

Tuna should only be eaten on rare occasions anyway (mercury, over-fishing, etc etc). If you can handle any fish, salmon or trout or something is a better alternative. But that's beside the point. You know what you can/cannot eat, and being stuck in bed doesn't change any of that. If anything, it makes it even more important that you stay away from anything that bothers you. If friends/family want to help out, then ask them to bring what you know you can eat.

 

Hope you're doing better soon!

Indeed! I am not taking the chance of big D now. Can't get to the bathroom very fast!

0

Share this post


Link to post
Share on other sites

Juliebove

 

I  have  one of these  people  who  lives  in  my  back yard!!!!! Drives  me  &  everyone  else  around  crazy..... yells/fights  &  screams  for no  reason....The  age  of  my  pain  is  75!!!!!  Please   get  better  soon   & I hope  the others  can keep  her  away until you feel better....  it is  hard  to cope  when  you don't  feel well then to have  a  person  stressing  you out.... sorry.

 

hugs

Yep! My saving grace now is that we're not out in public. Normally I take her out. She behaves badly in public and that's embarrassing.

0

Share this post


Link to post
Share on other sites

let's  get  these  two  together  to live  with  each other......they  can  fight  &  argue  with  each other & leave us alone.... funny  in  our  local  newspaper  tonight   the  horoscope  for me  read:  that  I may  have  to move  away to get  away  from  a  brutal crazy  person  who  will not  leave  me  alone!!!!!  that  has  crossed  my  mind.....

0

Share this post


Link to post
Share on other sites

let's  get  these  two  together  to live  with  each other......they  can  fight  &  argue  with  each other & leave us alone.... funny  in  our  local  newspaper  tonight   the  horoscope  for me  read:  that  I may  have  to move  away to get  away  from  a  brutal crazy  person  who  will not  leave  me  alone!!!!!  that  has  crossed  my  mind.....

Heh! My horoscope the other day said I wouldn't get along with my spouse! But my cranky person will not live with others. We need to get her into assisted living. That's not going so well.

0

Share this post


Link to post
Share on other sites

They say coconut oil can help people with Alzheimer's sometimes.  It might be something to try anyway.

0

Share this post


Link to post
Share on other sites

They say coconut oil can help people with Alzheimer's sometimes.  It might be something to try anyway.

She does eat it. So do I. But I already feel brain dead at 54.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined