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Scared To Death

anxiety food intolerance

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#1 pghkid33

 
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Posted 10 March 2014 - 03:11 PM

Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!


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#2 IrishHeart

 
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Posted 10 March 2014 - 03:53 PM

Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!

 

Not sure you really want to know what I think about this newest "sub-specialty of chiropractors"...

and I would hardly leave any diagnosis about my brain or neurological system to a chiropractor who is "guessing what may be going on". Please, go see a neurologist. Chiropractors are not medical doctors and should not be diagnosing people. (and my own chiropractor agrees with this statement)

 

http://www.scienceba...ctic-neurology/


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 a1956chill

 
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Posted 10 March 2014 - 03:58 PM

 I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances?!

Most of my reactions to ingesting soy  are neurological


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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#4 pghkid33

 
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Posted 10 March 2014 - 04:10 PM

IrishHeart - Thank you, I will look into seeing a neurologist. I did fail to mention that I had a CT scan done last summer, when I started feeling "off" (dizziness, fogginess), and it came up clear. Something would've shown up at that point since I was symptomatic, right?

achill - I've been soy-free for about 2 months now


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#5 IrishHeart

 
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Posted 10 March 2014 - 04:14 PM

IrishHeart - Thank you, I will look into seeing a neurologist. I did fail to mention that I had a CT scan done last summer, when I started feeling "off" (dizziness, fogginess), and it came up clear. Something would've shown up at that point since I was symptomatic, right?

achill - I've been soy-free for about 2 months now

 

Hon. I'd get a second opinion, if your symptoms are worse and you are sure you are entirely G F


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#6 pghkid33

 
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Posted 10 March 2014 - 04:29 PM

Hon. I'd get a second opinion, if your symptoms are worse and you are sure you are entirely G F

Yup, my antibodies were completely within normal range. I will definitely look into a second opinion. It just seems that everything is linked to my gastro symptoms - direct correlation between those and other neuro symptoms. I've also had bouts of itchy skin and some flushing going on, which makes me think it has to be something dietary causing all of this.


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#7 IrishHeart

 
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Posted 10 March 2014 - 04:33 PM

Yup, my antibodies were completely within normal range. I will definitely look into a second opinion. It just seems that everything is linked to my gastro symptoms - direct correlation between those and other neuro symptoms. I've also had bouts of itchy skin and some flushing going on, which makes me think it has to be something dietary causing all of this.

 

 

well, it is interesting that I have responded to this thread, because Itchy skin and flushing and neuro symptoms....may mean this (read the link)

(But I am not a doctor, remember...) and if going grain free and dairy free did not help, it could very well be another  intolerance (like  histamine intolerance )or something called MCAS..read this, please

 

http://www.celiac.co...-syndrome-mcas/


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 mamaw

 
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Posted 10 March 2014 - 06:52 PM

Hello  

this  could  be  almost  anything  so  don't  put the  cart  before the horse......breathe !!!!  Have  you  had  some  very  recent  blood work  done? I have  a friend  who had  similar  things  going on  &  it  was  pre-diabetes  &  other  foods  causing  the issues.... plus  for  some it  takes  years  before  they  finally  see  their  intestines  calming  down... For instance  some  foods    don't  bother me  eating them  alone  but if  I add  another food  with it  I'm ill.......

I do  agree that  a  chiropractor  isn't  a  doctor --------- who  should  be  dx'ing a  brain tumor!  That is  insane.....

I  do know  corn, soy, msg, sulphites   can play havoc  ... also  are  you staying  away from  the  gluten-free processed  foods?  GMO"S?????  These  all  seem  to  do more  harm  than good  for us....


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#9 itsmebiancap

 
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Posted 11 March 2014 - 06:44 AM

Hi! I actually am experiencing something similar. For the last 3 weeks, I have been having alot of nausea (it wouldn't come out either end). However, the nausea would attach itself to the second week adding light headed/dizziness. Then the 3rd week my joints have been feeling really week. My doctor has tested me for the HRO virus (I believe its called) she said its from meat. Its a stomach virus that also weakens your immune system sometimes. She also tested me with aNa which is for joints I believe. These symptoms she told me can be due to inflammation or an autoimmune disease like lupus or it can be arthritis. End of last week my legs have been hurting so when I Go to the dr Thursday to get my test results if they come back negative then I will ask her about Fibromaylagia. When I looked online I had alot of those symptoms. Maybe you can ask your doctor about it too. I know that having to go gluten free can cause or trigger revelations of autoimmune diseases to appear in our system. When this all started to happen to me I assumed it was from dairy since I had increased my dairy now I can say it isn't. However, I think being gluten-free we automatically assume it must have to be food related but it may not be. 

Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!


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#10 pghkid33

 
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Posted 11 March 2014 - 09:09 AM

IrishHeart - Very interesting, indeed. thank you, I will check this out. I've actually had several people mention this to me, and I have about 8 of the 12 symptoms listed there. I will say that grain-free seems to alleviate the itching a good deal, and makes me a bit less foggy in general. Thing is, I was grain-free for about a month or so before (still eating quinoa), and it seemed to help at first but then things didn't keep improving. I've heard that ppl. are supposed to cut things out for 3 months. could it really take that long to get back to normal bms and feeling healthy?

Mamaw - thank you for the support. the chiro actually said he didn't think it was a tumor after doing a bunch of neuro tests on me. I'm just upset because nothing seems to be working, and I'm tired of jumping from doctor to doctor wondering if they can actually help me. I've cut out pretty much all of what you mention at this point (although, had some mango with sulfites last few days).

 

itsmebiancap - thanks for response, I don't think it's a virus b/c i've been dealing with this for about 8 or 9 months now. I will certainly look into the possibility of other autoimmune disease. It just seems like when I'm pooping more (sorry no other way to put it haha) the other symptoms (itching, dizziness, neuro) are worse, which leads me to think it's something i'm eating, especially because some days are better than others, and some symptoms go away and then come back... although I'm sick pretty much all of the time now, ugh.


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#11 Pegleg84

 
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Posted 11 March 2014 - 09:20 AM

Oy, this sounds familiarish. I had a terrible time trying to figure out what was causing my dizziness/nausea a couple years ago, convinced it was something up with my inner ear, did a slew of tests with the ENT which all came back normal. His conclusion: "There's nothing wrong with your ear.... Maybe you should see a neurologist." Great.

So I looked at diet. I cut back on salt, cut dairy completely, and eventually had to cut soy as well. I get bad neuro symptoms with soy. Dizzy, achy, tingly, not to mention the anxiety. No fun at all. I also have trouble with too much of some things (brown rice, beans, quinoa, lentils, etc etc etc)

I'd reccomend getting bloodtests done to make sure you're not low on anything like iron, Vitamin B12 (which I've been taking more regularly and is helping a lot!), etc. I also take a lot of ginger for the nausea, and there does seem to be a point where it stops working and just gives you heartburn instead (I still swear by it). Digestive enzymes and probiotics might also help

Can't offer any advice about the itching.

 

In any case, hope you can figure it out and feel better. Nausea SUCKS! Though I always say, that for someone who feels nauseous most of the time, I've got a pretty strong stomach.

 

Good luck!


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#12 mamaw

 
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Posted 11 March 2014 - 09:47 AM

Just  another  thought... Read the book Grain Brain......very interesting......feel better  soon... I understand  how  annoying  this all is....it  can drive one crazy.. Eleven years  ago I was  D'xd  with  ALS (A death  sentence)  a Few  weeks  later  I went  gluten free...... I'm still here! So  I'm  not  sure  if  I would be  the oldest  living  survivor  of ALS  or  I  don't  have  it!!!  I'm okay being  gluten-free   so I never look  back.....yes, light  at the  end  of the tunnel....

I know  this  may  sound  strange  but get  checked  for H-Pylori


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#13 Juliebove

 
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Posted 12 March 2014 - 06:55 AM

I have neurological problems but from diabetes. But... Some of my food intolerances are weird ones. Mint for example. Makes my teeth sensitive and gives me stomach pains. Cloves and oats make me itchy. Dairy causes big D and if I continue to eat it, sinus and ear infections. But eggs? They rip me up so much inside, coupled with big D that I wish I were dead! If I were you I would get tested for food allergies and intolerances. Can be tough to find someone to do the testing though. You might also run your food intake through something like the Cron-O-Meter. And look at you supplements. I was lacking in some things but taking far too much of some B vitamins, making the neuropathy worse.
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#14 pghkid33

 
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Posted 12 March 2014 - 10:08 AM

Thanks all for support. I will look into grain brain, although I am very skeptical of those books, there are a million of them and they all claim to support the "right" diet. As of now, I am grain-free (including quinoa) and dairy-free. I have had a food intolerance test done, called the Mediator Release Test. I am very skeptical of this too. Anyone heard of it? Nothing seems to be working! I had a huge BM again this morning and my right side feels weak and weird, which is where my tremor seems to be dominant. I've thought about it a lot ever since it was noticed at the chiro appointment, and it's really starting to freak me out.


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#15 IrishHeart

 
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Posted 12 March 2014 - 11:28 AM

Thanks all for support. I will look into grain brain, although I am very skeptical of those books, there are a million of them and they all claim to support the "right" diet. As of now, I am grain-free (including quinoa) and dairy-free. I have had a food intolerance test done, called the Mediator Release Test. I am very skeptical of this too. Anyone heard of it? Nothing seems to be working! I had a huge BM again this morning and my right side feels weak and weird, which is where my tremor seems to be dominant. I've thought about it a lot ever since it was noticed at the chiro appointment, and it's really starting to freak me out.

 

 

a "mediator release test" is not going to diagnose anything, hon, Sorry.

 

There are NO valid tests for food intolerances.

 

http://www.quackwatc...lergytests.html

 

And from the the American Academy of Allergy, Asthma and Immunology (AAAAI) Practice Paper, Current approach to the diagnosis and management of adverse reactions to foods [PDF]:

http://www.scienceba...he-science-say/

 

From the European Academy of Allergy and Clinical Immunology [4.2.2.9. Nonstandardized and Unproven Procedures; Guideline 12:

 

The (Expert Panel) recommends not using any of the following nonstandardized tests for the routine evaluation of IgE-mediated (food allergy):

  • Basophil histamine release/activation
  • Lymphocyte stimulation
  • Facial thermography
  • Gastric juice analysis
  • Endoscopic allergen provocation
  • Hair analysis
  • Applied kinesiology
  • Provocation neutralization
  • Allergen-specific IgG4
  • Cytotoxicity assays
  • Electrodermal test (Vega)
  • Mediator release assay (LEAP diet)

 

Read the science, hon and stop wasting your money on unproven tests. IMHO


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif






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