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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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22 posts in this topic

Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!

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Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!

 

Not sure you really want to know what I think about this newest "sub-specialty of chiropractors"...

and I would hardly leave any diagnosis about my brain or neurological system to a chiropractor who is "guessing what may be going on". Please, go see a neurologist. Chiropractors are not medical doctors and should not be diagnosing people. (and my own chiropractor agrees with this statement)

 

http://www.sciencebasedmedicine.org/chiropractic-neurology/

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 I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances?!

Most of my reactions to ingesting soy  are neurological

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IrishHeart - Thank you, I will look into seeing a neurologist. I did fail to mention that I had a CT scan done last summer, when I started feeling "off" (dizziness, fogginess), and it came up clear. Something would've shown up at that point since I was symptomatic, right?

achill - I've been soy-free for about 2 months now

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IrishHeart - Thank you, I will look into seeing a neurologist. I did fail to mention that I had a CT scan done last summer, when I started feeling "off" (dizziness, fogginess), and it came up clear. Something would've shown up at that point since I was symptomatic, right?

achill - I've been soy-free for about 2 months now

 

Hon. I'd get a second opinion, if your symptoms are worse and you are sure you are entirely G F

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Hon. I'd get a second opinion, if your symptoms are worse and you are sure you are entirely G F

Yup, my antibodies were completely within normal range. I will definitely look into a second opinion. It just seems that everything is linked to my gastro symptoms - direct correlation between those and other neuro symptoms. I've also had bouts of itchy skin and some flushing going on, which makes me think it has to be something dietary causing all of this.

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Yup, my antibodies were completely within normal range. I will definitely look into a second opinion. It just seems that everything is linked to my gastro symptoms - direct correlation between those and other neuro symptoms. I've also had bouts of itchy skin and some flushing going on, which makes me think it has to be something dietary causing all of this.

 

 

well, it is interesting that I have responded to this thread, because Itchy skin and flushing and neuro symptoms....may mean this (read the link)

(But I am not a doctor, remember...) and if going grain free and dairy free did not help, it could very well be another  intolerance (like  histamine intolerance )or something called MCAS..read this, please

 

http://www.celiac.com/gluten-free/topic/105835-mast-cell-activation-syndrome-mcas/

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Hello  

this  could  be  almost  anything  so  don't  put the  cart  before the horse......breathe !!!!  Have  you  had  some  very  recent  blood work  done? I have  a friend  who had  similar  things  going on  &  it  was  pre-diabetes  &  other  foods  causing  the issues.... plus  for  some it  takes  years  before  they  finally  see  their  intestines  calming  down... For instance  some  foods    don't  bother me  eating them  alone  but if  I add  another food  with it  I'm ill.......

I do  agree that  a  chiropractor  isn't  a  doctor --------- who  should  be  dx'ing a  brain tumor!  That is  insane.....

I  do know  corn, soy, msg, sulphites   can play havoc  ... also  are  you staying  away from  the  gluten-free processed  foods?  GMO"S?????  These  all  seem  to  do more  harm  than good  for us....

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Hi! I actually am experiencing something similar. For the last 3 weeks, I have been having alot of nausea (it wouldn't come out either end). However, the nausea would attach itself to the second week adding light headed/dizziness. Then the 3rd week my joints have been feeling really week. My doctor has tested me for the HRO virus (I believe its called) she said its from meat. Its a stomach virus that also weakens your immune system sometimes. She also tested me with aNa which is for joints I believe. These symptoms she told me can be due to inflammation or an autoimmune disease like lupus or it can be arthritis. End of last week my legs have been hurting so when I Go to the dr Thursday to get my test results if they come back negative then I will ask her about Fibromaylagia. When I looked online I had alot of those symptoms. Maybe you can ask your doctor about it too. I know that having to go gluten free can cause or trigger revelations of autoimmune diseases to appear in our system. When this all started to happen to me I assumed it was from dairy since I had increased my dairy now I can say it isn't. However, I think being gluten-free we automatically assume it must have to be food related but it may not be. 

Hi all,

 

I was diagnosed with Celiac back in the summer of 2011 (my symptoms were mostly neuro), and I had been doing pretty decently on the gluten-free diet. Over the past 9 months or so, however, I have had more issues. I've done a couple of posts about them if you want to read further (didn't want to make this one that long). Basically, I have been having large, urgent bowel movements every morning, where it feels like i'm crapping everything out I ate the day before. My stomach has been almost always upset, and I have also been having neuro issues. For example, I was having a lot of dizziness late summer last year, but that seemed to subside. More recently, I have had tremors / weakness that seem to get worse right after my morning BM(s), and only really occur when using the muscles involved. They seem to be worse on my right side. I went to see a chiropractor recently that specializes in functional neurology that told me "Well, I don't think you have a brain tumor", and didn't seem super concerned.

I have played with my diet a lot over the past several months, removing all grains and dairy, and then getting frustrated thinking they weren't working, so adding them back in. (I'm now again going grain-free dairy-free day 5). Anyways, I guess my main question is, has anyone had any neurological issues that have come along with other food intolerances? I'm really hoping this is what it is, but I'm also starting to freak out thinking it may be a tumor or something. Also, has any one had a positive experience with "functional neurology"? I want to believe it's going to help me, but I'm skeptical because nothing has yet.

Thanks in advance for any help that can be provided!

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IrishHeart - Very interesting, indeed. thank you, I will check this out. I've actually had several people mention this to me, and I have about 8 of the 12 symptoms listed there. I will say that grain-free seems to alleviate the itching a good deal, and makes me a bit less foggy in general. Thing is, I was grain-free for about a month or so before (still eating quinoa), and it seemed to help at first but then things didn't keep improving. I've heard that ppl. are supposed to cut things out for 3 months. could it really take that long to get back to normal bms and feeling healthy?

Mamaw - thank you for the support. the chiro actually said he didn't think it was a tumor after doing a bunch of neuro tests on me. I'm just upset because nothing seems to be working, and I'm tired of jumping from doctor to doctor wondering if they can actually help me. I've cut out pretty much all of what you mention at this point (although, had some mango with sulfites last few days).

 

itsmebiancap - thanks for response, I don't think it's a virus b/c i've been dealing with this for about 8 or 9 months now. I will certainly look into the possibility of other autoimmune disease. It just seems like when I'm pooping more (sorry no other way to put it haha) the other symptoms (itching, dizziness, neuro) are worse, which leads me to think it's something i'm eating, especially because some days are better than others, and some symptoms go away and then come back... although I'm sick pretty much all of the time now, ugh.

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Oy, this sounds familiarish. I had a terrible time trying to figure out what was causing my dizziness/nausea a couple years ago, convinced it was something up with my inner ear, did a slew of tests with the ENT which all came back normal. His conclusion: "There's nothing wrong with your ear.... Maybe you should see a neurologist." Great.

So I looked at diet. I cut back on salt, cut dairy completely, and eventually had to cut soy as well. I get bad neuro symptoms with soy. Dizzy, achy, tingly, not to mention the anxiety. No fun at all. I also have trouble with too much of some things (brown rice, beans, quinoa, lentils, etc etc etc)

I'd reccomend getting bloodtests done to make sure you're not low on anything like iron, Vitamin B12 (which I've been taking more regularly and is helping a lot!), etc. I also take a lot of ginger for the nausea, and there does seem to be a point where it stops working and just gives you heartburn instead (I still swear by it). Digestive enzymes and probiotics might also help

Can't offer any advice about the itching.

 

In any case, hope you can figure it out and feel better. Nausea SUCKS! Though I always say, that for someone who feels nauseous most of the time, I've got a pretty strong stomach.

 

Good luck!

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Just  another  thought... Read the book Grain Brain......very interesting......feel better  soon... I understand  how  annoying  this all is....it  can drive one crazy.. Eleven years  ago I was  D'xd  with  ALS (A death  sentence)  a Few  weeks  later  I went  gluten free...... I'm still here! So  I'm  not  sure  if  I would be  the oldest  living  survivor  of ALS  or  I  don't  have  it!!!  I'm okay being  gluten-free   so I never look  back.....yes, light  at the  end  of the tunnel....

I know  this  may  sound  strange  but get  checked  for H-Pylori

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I have neurological problems but from diabetes. But... Some of my food intolerances are weird ones. Mint for example. Makes my teeth sensitive and gives me stomach pains. Cloves and oats make me itchy. Dairy causes big D and if I continue to eat it, sinus and ear infections. But eggs? They rip me up so much inside, coupled with big D that I wish I were dead! If I were you I would get tested for food allergies and intolerances. Can be tough to find someone to do the testing though. You might also run your food intake through something like the Cron-O-Meter. And look at you supplements. I was lacking in some things but taking far too much of some B vitamins, making the neuropathy worse.

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Thanks all for support. I will look into grain brain, although I am very skeptical of those books, there are a million of them and they all claim to support the "right" diet. As of now, I am grain-free (including quinoa) and dairy-free. I have had a food intolerance test done, called the Mediator Release Test. I am very skeptical of this too. Anyone heard of it? Nothing seems to be working! I had a huge BM again this morning and my right side feels weak and weird, which is where my tremor seems to be dominant. I've thought about it a lot ever since it was noticed at the chiro appointment, and it's really starting to freak me out.

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Thanks all for support. I will look into grain brain, although I am very skeptical of those books, there are a million of them and they all claim to support the "right" diet. As of now, I am grain-free (including quinoa) and dairy-free. I have had a food intolerance test done, called the Mediator Release Test. I am very skeptical of this too. Anyone heard of it? Nothing seems to be working! I had a huge BM again this morning and my right side feels weak and weird, which is where my tremor seems to be dominant. I've thought about it a lot ever since it was noticed at the chiro appointment, and it's really starting to freak me out.

 

 

a "mediator release test" is not going to diagnose anything, hon, Sorry.

 

There are NO valid tests for food intolerances.

 

http://www.quackwatch.com/01QuackeryRelatedTopics/Tests/allergytests.html

 

And from the the American Academy of Allergy, Asthma and Immunology (AAAAI) Practice Paper, Current approach to the diagnosis and management of adverse reactions to foods [PDF]:

http://www.sciencebasedmedicine.org/igg-food-intolerance-tests-what-does-the-science-say/

 

From the European Academy of Allergy and Clinical Immunology [4.2.2.9. Nonstandardized and Unproven Procedures; Guideline 12:

 

The (Expert Panel) recommends not using any of the following nonstandardized tests for the routine evaluation of IgE-mediated (food allergy):

  • Basophil histamine release/activation
  • Lymphocyte stimulation
  • Facial thermography
  • Gastric juice analysis
  • Endoscopic allergen provocation
  • Hair analysis
  • Applied kinesiology
  • Provocation neutralization
  • Allergen-specific IgG4
  • Cytotoxicity assays
  • Electrodermal test (Vega)
  • Mediator release assay (LEAP diet)

 

Read the science, hon and stop wasting your money on unproven tests. IMHO

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a "mediator release test" is not going to diagnose anything, hon, Sorry.

 

There are NO valid tests for food intolerances.

 

http://www.quackwatch.com/01QuackeryRelatedTopics/Tests/allergytests.html

 

And from the the American Academy of Allergy, Asthma and Immunology (AAAAI) Practice Paper, Current approach to the diagnosis and management of adverse reactions to foods [PDF]:

http://www.sciencebasedmedicine.org/igg-food-intolerance-tests-what-does-the-science-say/

 

From the European Academy of Allergy and Clinical Immunology [4.2.2.9. Nonstandardized and Unproven Procedures; Guideline 12:

 

The (Expert Panel) recommends not using any of the following nonstandardized tests for the routine evaluation of IgE-mediated (food allergy):

  • Basophil histamine release/activation
  • Lymphocyte stimulation
  • Facial thermography
  • Gastric juice analysis
  • Endoscopic allergen provocation
  • Hair analysis
  • Applied kinesiology
  • Provocation neutralization
  • Allergen-specific IgG4
  • Cytotoxicity assays
  • Electrodermal test (Vega)
  • Mediator release assay (LEAP diet)

 

Read the science, hon and stop wasting your money on unproven tests. IMHO

Thank you for this. I did the electrodermal test a few weeks ago, and I remember feeling pretty ripped-off / duped. I regret paying for the damn mediator release test now too. All of it seems to be a scam, with false science, sadly. I felt desperate at the time and just wanted an answer, but it's clear that it wasn't the answer. I guess I just don't know who to see or where to go at this point. I have a physician's appt. in three weeks, and I'm going to see this chiropractor again next week. I guess I should see a neurologist, but I really think the problem lies in my gut. (at the same time, my current neuro symptoms are so very distressful). I feel like I have to come up with all of the answers myself, and I can't afford to keep setting aside months to try different diets hoping they will work, as I am not even healthy enough to work right now. Damnit why is this so hard??

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I actually think the opposite of most of the post. Sometimes in order to diagnose yourself you must do an elimination diet. But to eliminate everything from your body consistently is not always helpful. The way the body works is that it needs a certain percentage of everything. However, some bodies think those "things" are attacking it even though it isn't and fights back. Thats where intolerances and allergies come from. However, by eliminating all of these ingredients without knowing for sure can possibly weaken your immune system and hurt your body more so.  Then when your body gets some of that stuff it may automatically fight it because its not used to it and cannot overcome.

 

Instead of removing all of the foods you eat, why don't you take an allergy test. There is a problem however, if you haven't eaten it for about 6-8 weeks it may come back as negative on the results. But if you haven't been 100% faithful than it may show up. Those testings are usually very expensive but alot of hospitals/clinics offer a sliding fee scale where they base it off of income or other measurements to where you pay a lower percentage of the testing/visit then normal.

 

The other thing is that being one with Celiac disease means your guts lining is messed up. So even though you eat normal or large portions it comes out until it is repaired (this may take a while depending on your body). But it doesn't necessarily mean you have another food intolerance. Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too.

 

MY body wanted gluten however I removed it so I was just eating massive portions of food and it was just coming out every day. I was losing weight excessively no matter how good/bad I ate.  Maybe after a month or so it stabilized. The way your body and mind works is a little tricky. See your body thinks as soon as something is removed that it is "in danger" and goes into survival mode. Your mind thinks "I don't need this but I want it" and then it combats each other. Thats why diets are hard to do because emotions are battling truth and anxiety kicks in to where you just give up. However, after 3-4 weeks your mind and body unite and realize I can do this. I don't need it. See I am okay and then its "normal" or a habit to do whatever you were trying to do before then. However during the beginning stages you feel anxious like "I have to fix this" or "maybe something else is wrong" and we start eliminating or resolving but really we should just be waiting. 

 

I would say to try to slowly add things back into your diet maybe one spoon at first, then a few spoons, then a half portion, full portion and see if it really is something you are allergic. If it is eliminate, if not include it here and there. As the years pass, all these eliminations will be hard to reintroduce and to live by because it is so limiting that it may cause stress and anxiety unnecessarily.

 

Switching doctors may never end because in my experience doctors don't know to much about gluten intolerance/celiac unless they have first hand witnessed it they treat it very lightly and don't understand the side effects it can cause or autoimmune diseases it can trigger. If they did none of us would be using celiac.com because we would have all the answers. But the truth is this is a whole new industry that is now gaining popularity and hitting mainstream so until then we are kind of all just in suspense to see if the latest news will help us individually. 

 

I hope this helps and wasn't rude or repetitive. I am just thinking about past experience, studies and research I done to see if it is beneficial for you. Best of luck! I go to the dr today to see if they can help me. If I am diagnosed with something I will let you know since some of your symptoms I been experiencing lately.

 

 

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I actually think the opposite of most of the post. Sometimes in order to diagnose yourself you must do an elimination diet. But to eliminate everything from your body consistently is not always helpful. The way the body works is that it needs a certain percentage of everything. However, some bodies think those "things" are attacking it even though it isn't and fights back. Thats where intolerances and allergies come from. However, by eliminating all of these ingredients without knowing for sure can possibly weaken your immune system and hurt your body more so.  Then when your body gets some of that stuff it may automatically fight it because its not used to it and cannot overcome.

 

Instead of removing all of the foods you eat, why don't you take an allergy test. There is a problem however, if you haven't eaten it for about 6-8 weeks it may come back as negative on the results. But if you haven't been 100% faithful than it may show up. Those testings are usually very expensive but alot of hospitals/clinics offer a sliding fee scale where they base it off of income or other measurements to where you pay a lower percentage of the testing/visit then normal.

 

The other thing is that being one with Celiac disease means your guts lining is messed up. So even though you eat normal or large portions it comes out until it is repaired (this may take a while depending on your body). But it doesn't necessarily mean you have another food intolerance. Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too.

 

MY body wanted gluten however I removed it so I was just eating massive portions of food and it was just coming out every day. I was losing weight excessively no matter how good/bad I ate.  Maybe after a month or so it stabilized. The way your body and mind works is a little tricky. See your body thinks as soon as something is removed that it is "in danger" and goes into survival mode. Your mind thinks "I don't need this but I want it" and then it combats each other. Thats why diets are hard to do because emotions are battling truth and anxiety kicks in to where you just give up. However, after 3-4 weeks your mind and body unite and realize I can do this. I don't need it. See I am okay and then its "normal" or a habit to do whatever you were trying to do before then. However during the beginning stages you feel anxious like "I have to fix this" or "maybe something else is wrong" and we start eliminating or resolving but really we should just be waiting. 

 

I would say to try to slowly add things back into your diet maybe one spoon at first, then a few spoons, then a half portion, full portion and see if it really is something you are allergic. If it is eliminate, if not include it here and there. As the years pass, all these eliminations will be hard to reintroduce and to live by because it is so limiting that it may cause stress and anxiety unnecessarily.

 

Switching doctors may never end because in my experience doctors don't know to much about gluten intolerance/celiac unless they have first hand witnessed it they treat it very lightly and don't understand the side effects it can cause or autoimmune diseases it can trigger. If they did none of us would be using celiac.com because we would have all the answers. But the truth is this is a whole new industry that is now gaining popularity and hitting mainstream so until then we are kind of all just in suspense to see if the latest news will help us individually. 

 

I hope this helps and wasn't rude or repetitive. I am just thinking about past experience, studies and research I done to see if it is beneficial for you. Best of luck! I go to the dr today to see if they can help me. If I am diagnosed with something I will let you know since some of your symptoms I been experiencing lately.

 

Thx man, I'm going to see what this doc says just b/c he was recommended to me by a couple of people who have celiac disease. But overall, you're right, they don't know jack, and it's pretty damn frustrating to be told again and again that you are a headcase. Makes one feel like an idiot, so in some ways you become worse off than you were going in to the doc. It's great that we have this online community, but I guess I get confused sometimes because everyone seems to say do this, or that, and I can't decide what I should be doing with my diet. Even if I do decide, you have to be on that diet for quite some time for it to really work right? Which sucks for me right now, because I'm not even well enough to work or anything ahhhh. I just want to move on with my life! I think i'm going to continue grain-free for a while... I was grain free for about a month or so before, although with dairy. I improved a little bit, but then stopped doing so, so I gave up. I can definitely tell that I'm less foggy and itchy without the grains, so that's something right? I'm not going to add grains or dairy back in for quite some time. Definitely let me know what ends up happening with your doc! Appreciate the input.

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I actually think the opposite of most of the post. Sometimes in order to diagnose yourself you must do an elimination diet. But to eliminate everything from your body consistently is not always helpful. The way the body works is that it needs a certain percentage of everything. However, some bodies think those "things" are attacking it even though it isn't and fights back. Thats where intolerances and allergies come from. However, by eliminating all of these ingredients without knowing for sure can possibly weaken your immune system and hurt your body more so.  Then when your body gets some of that stuff it may automatically fight it because its not used to it and cannot overcome.

 

Instead of removing all of the foods you eat, why don't you take an allergy test. There is a problem however, if you haven't eaten it for about 6-8 weeks it may come back as negative on the results. But if you haven't been 100% faithful than it may show up. Those testings are usually very expensive but alot of hospitals/clinics offer a sliding fee scale where they base it off of income or other measurements to where you pay a lower percentage of the testing/visit then normal.

 

The other thing is that being one with Celiac disease means your guts lining is messed up. So even though you eat normal or large portions it comes out until it is repaired (this may take a while depending on your body). But it doesn't necessarily mean you have another food intolerance. Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too.

 

MY body wanted gluten however I removed it so I was just eating massive portions of food and it was just coming out every day. I was losing weight excessively no matter how good/bad I ate.  Maybe after a month or so it stabilized. The way your body and mind works is a little tricky. See your body thinks as soon as something is removed that it is "in danger" and goes into survival mode. Your mind thinks "I don't need this but I want it" and then it combats each other. Thats why diets are hard to do because emotions are battling truth and anxiety kicks in to where you just give up. However, after 3-4 weeks your mind and body unite and realize I can do this. I don't need it. See I am okay and then its "normal" or a habit to do whatever you were trying to do before then. However during the beginning stages you feel anxious like "I have to fix this" or "maybe something else is wrong" and we start eliminating or resolving but really we should just be waiting. 

 

I would say to try to slowly add things back into your diet maybe one spoon at first, then a few spoons, then a half portion, full portion and see if it really is something you are allergic. If it is eliminate, if not include it here and there. As the years pass, all these eliminations will be hard to reintroduce and to live by because it is so limiting that it may cause stress and anxiety unnecessarily.

 

Switching doctors may never end because in my experience doctors don't know to much about gluten intolerance/celiac unless they have first hand witnessed it they treat it very lightly and don't understand the side effects it can cause or autoimmune diseases it can trigger. If they did none of us would be using celiac.com because we would have all the answers. But the truth is this is a whole new industry that is now gaining popularity and hitting mainstream so until then we are kind of all just in suspense to see if the latest news will help us individually. 

 

I hope this helps and wasn't rude or repetitive. I am just thinking about past experience, studies and research I done to see if it is beneficial for you. Best of luck! I go to the dr today to see if they can help me. If I am diagnosed with something I will let you know since some of your symptoms I been experiencing lately.

 

 

Honestly...I have read your post repeatedly and I am not really sure what your point is. Sorry.

 

Just one example that is very confusing:

 

Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too.

Edited by IrishHeart
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I actually think the opposite of most of the post. Sometimes in order to diagnose yourself you must do an elimination diet. But to eliminate everything from your body consistently is not always helpful. The way the body works is that it needs a certain percentage of everything. However, some bodies think those "things" are attacking it even though it isn't and fights back. Thats where intolerances and allergies come from. However, by eliminating all of these ingredients without knowing for sure can possibly weaken your immune system and hurt your body more so.  Then when your body gets some of that stuff it may automatically fight it because its not used to it and cannot overcome.

 

Instead of removing all of the foods you eat, why don't you take an allergy test. There is a problem however, if you haven't eaten it for about 6-8 weeks it may come back as negative on the results. But if you haven't been 100% faithful than it may show up. Those testings are usually very expensive but alot of hospitals/clinics offer a sliding fee scale where they base it off of income or other measurements to where you pay a lower percentage of the testing/visit then normal.

 

The other thing is that being one with Celiac disease means your guts lining is messed up. So even though you eat normal or large portions it comes out until it is repaired (this may take a while depending on your body). But it doesn't necessarily mean you have another food intolerance. Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too.

 

MY body wanted gluten however I removed it so I was just eating massive portions of food and it was just coming out every day. I was losing weight excessively no matter how good/bad I ate.  Maybe after a month or so it stabilized. The way your body and mind works is a little tricky. See your body thinks as soon as something is removed that it is "in danger" and goes into survival mode. Your mind thinks "I don't need this but I want it" and then it combats each other. Thats why diets are hard to do because emotions are battling truth and anxiety kicks in to where you just give up. However, after 3-4 weeks your mind and body unite and realize I can do this. I don't need it. See I am okay and then its "normal" or a habit to do whatever you were trying to do before then. However during the beginning stages you feel anxious like "I have to fix this" or "maybe something else is wrong" and we start eliminating or resolving but really we should just be waiting. 

 

I would say to try to slowly add things back into your diet maybe one spoon at first, then a few spoons, then a half portion, full portion and see if it really is something you are allergic. If it is eliminate, if not include it here and there. As the years pass, all these eliminations will be hard to reintroduce and to live by because it is so limiting that it may cause stress and anxiety unnecessarily.

 

Switching doctors may never end because in my experience doctors don't know to much about gluten intolerance/celiac unless they have first hand witnessed it they treat it very lightly and don't understand the side effects it can cause or autoimmune diseases it can trigger. If they did none of us would be using celiac.com because we would have all the answers. But the truth is this is a whole new industry that is now gaining popularity and hitting mainstream so until then we are kind of all just in suspense to see if the latest news will help us individually. 

 

I hope this helps and wasn't rude or repetitive. I am just thinking about past experience, studies and research I done to see if it is beneficial for you. Best of luck! I go to the dr today to see if they can help me. If I am diagnosed with something I will let you know since some of your symptoms I been experiencing lately.

I think this is a bit confusing, too. I am going to address this part that I think I understand what you are claiming:

"Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too."

I only eat watermelon in the summer when it it good. You seem to be saying that when I stop eating watermelon, my body tries to replace watermelon with something else? And it doesn't like the new fruit so it " disposes" of it? How does that make sense? That is the normal way for humans to eat.

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I think this is a bit confusing, too. I am going to address this part that I think I understand what you are claiming:

"Whenever you remove something from your diet, your body panics and it tries to replace it with something else. However that something else is something different then what your body wants so it just disposes of it. This happened to me too."

I only eat watermelon in the summer when it it good. You seem to be saying that when I stop eating watermelon, my body tries to replace watermelon with something else? And it doesn't like the new fruit so it " disposes" of it? How does that make sense? That is the normal way for humans to eat.

Yeah, I didn't quite understand what he was going for there either. I only agree with it in that my body seems to want to dispose of everything!

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my body seems to want to dispose of everything also! LOL ... Yea i'm on the same page as most everyone eles. It makes no sense ... Believe me I have been doing the elimination diet :)  helps with the disposing of everything  :) If ya know what I mean! :) 

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      Does celiac disease still prevent the absorption of iron if you are on a gluten-free diet?  Since my MCHC blood levels are low, I was wondering if it is because I will always have a problem absrobing iron due to celiace disease. I had to take iron supplements in the past or that is when I found out I had celiac disease. But I have been off the iron supplements for a cuple years now and my hemoglobin in blood is normal at 12.
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      I agree with everything cyclinglady said. You need to be tested BEFORE you go gluten free!!!!!! I was just reading an interview with Joseph A. Murray, MD who is head of the celiac dept. at Mayo Clinic & one of the top celiac experts & researchers in the world. He talks about this subject of going gluten free before testing many times during this interview. It's interesting reading. Please take a little time to read it all the way through. http://www.medscape.com/viewarticle/820397_3
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    • Starting out
      Your GI is sadly mis-informed!  You should be tested for Celiac Disease before embarking on a gluten free diet.  Celiac Disease should be ruled out first!  So many doctors think that you have to be malnourished and wasting away to have celiac disease -- not true!  You can develop celiac disease at ANY age.  Do you have any other autoimmune disorders?   Celiac disease is also genetic.  So, if you have it, your kids and sibliings should be tested even if they are symptom free!  Celiac Disease has so many other issues that come with having it.  That's why having a proper diagnosis is important.  You will get the care you need.  Also, sticking to a life-long especially when you are older and it is hard to make changes in general (hey, I'm there!).    Your GP can actually order the celiac blood panel.  In addition, I would search around for another GI (one who is celiac savvy).   Here's a link regarding the exact tests: http://www.cureceliacdisease.org/screening/ I encourage you to read up on celiac disease.  Only you can be your best health advocate!  I wish you well!  Feel free to ask any questions!  
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