Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Symptoms...possible Gluten Issue?
0

8 posts in this topic

Hello....I'm new here and wondering if anyone could give me some input. Over the last 6 months I've had some really strange symptoms develop. All previous doctors have dismissed me because all tests come back normal, but I finally saw a new functional MD who is looking into a gluten sensitivity. I know I don't have full blown Celiac because my endoscopy biopsies and Celiac basic blood test were negative.

 

Do any of these symptoms sound like possibly a gluten issue?

 

-Frequent, excessive burping/belching (but no heartburn or reflux, just burping)

This is my worst symtpom. 6 months ago out of nowhere I became nauseas and started burping. It got to be 100 tims a day. Decrease a little. I burp on an empty stomach also, and with ANYTHING I eat or drink (even water). Other doctors say I am swallowing air (I'M NOT). I wouldn't wake up one day and start doing that after 31 years of not! What I don't understand, even if it is a gluten issue, is why WATER would make me burp.

 

-Weight loss, can't gain

-Very bad muscle twitching

-Blurry vision

-Lack of energy

-Feel foggy

-Slight hand tremor

-One and off mild nausea (but no vomiting).

 

I have had TONS of medical testing done (endoscopy, ultrasound, ct scan, h.pylori testing, blood work, barium swallow....) all normal.

 

Does this sound like anything gluten related??

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi and Welcome to the Forum!

 

Your symptoms do sound like potential gluten issues... however every symptom of Celiac or non-Celiac gluten intolerance have other possible causes.  The good thing is that it sounds like you had thorough testing for Celiac which is an important first step.  Were you consuming gluten when you had the tests done?  I ask because if you were not consuming gluten then the tests are completely invalid.

 

Aside from additional testing for other ailments that your doctor may suspect, you can go gluten free and see if your symptoms go away.  If they do, reintroduce gluten back into your diet and see if your symptoms return.  If they do then you can be pretty confident that you have non-Celiac gluten intolerance - in which case you need to go 100% gluten free for life.  There's no other reliable way to know if you have NCGI.

 

The diagnosis process can be frustrating but the good news is that if it is NCGI then the fix is relatively simple... go gluten free and you'll heal and feel better.

 

Good luck!

0

Share this post


Link to post
Share on other sites

Hi! Thanks for replying. My dr ran some gluten blood tests last week and it was more than the standard Celiac panel. I can't remember exactly what it was though, I wonder why he ran it...can you detect possible issues through blood work even if it's not full blown Celiac?

Can symptoms of a gluten sensitivity just seem to appear overnight?

And does the belching make sense to you? I told my dr what didn't make sense to me is that if the belching is from a gluten problem, why do I have to burp no matter what I eat or drink (including plain water)? And it's literally every time I ingest anything within a minute. It's really disturbing. Could gluten problems really do that?

Sorry...very new to all of this and would really appreciate your expertise!

0

Share this post


Link to post
Share on other sites

Hi! Thanks for replying. My dr ran some gluten blood tests last week and it was more than the standard Celiac panel. I can't remember exactly what it was though, I wonder why he ran it...can you detect possible issues through blood work even if it's not full blown Celiac?

 

A: There are multiple types of antibodies made by the body.  The full celiac panel includes tests for them.  It would be wise to get a written copy of the tests results for your records.

Can symptoms of a gluten sensitivity just seem to appear overnight?

 

A: Yes, symptoms can appear suddenly.

And does the belching make sense to you? I told my dr what didn't make sense to me is that if the belching is from a gluten problem, why do I have to burp no matter what I eat or drink (including plain water)? And it's literally every time I ingest anything within a minute. It's really disturbing. Could gluten problems really do that?

 

A: Yes, gluten symptoms can cause random seeming belching and gas in the stomach and intestines also. You may have an irritated digestive system and that can cause bacteria to get out of control.

Sorry...very new to all of this and would really appreciate your expertise!

 

Hi, dmarie, welcome to the forum! :)  Some answers to your questions in red.

0

Share this post


Link to post
Share on other sites

What GFinDC said.  :)   Keep in mind that many of the issues caused by Celiac are actually caused by the malabsorption that results from Celiac.  So you're basically a starvation victim because you haven't been absorbing nutrients out of your food.  So pretty much anything that can be caused by a nutrient deficiency can be caused by Celiac.

0

Share this post


Link to post
Share on other sites




What GFinDC said.  :)   Keep in mind that many of the issues caused by Celiac are actually caused by the malabsorption that results from Celiac.  So you're basically a starvation victim because you haven't been absorbing nutrients out of your food.  So pretty much anything that can be caused by a nutrient deficiency can be caused by Celiac.

Hi NoGlutenCooties....thanks for your replies! I appreciate it. I'm really new to even the idea of having a gluten issue, so I know nothing.

 

To answer your questions from earlier, yes, in the fall when I had my Celiac biopsy and blood test, yes I was consuming gluten, and it was negative for actual Celiac. Anyways, with my new doctor, I just got some new blood work back. I'm still negative for Celiac, but apparently I have a gene (DQ8?) that my doctor said makes me at risk for "celiac permissive gluten intolerance". He is suggesting that I try a 3-month trial of being gluten-free. Do you know much about these genes?

 

I think I said before that one of my most annoying and intense symptoms is crazy belching. It's been difficult for me to understand some things about this and I wonder if you can shed some light on this for me. I keep thinking that if it were a gluten issue, I would have lots of burping while eating things with gluten. But...I have the burping ALL the time (even on empty stomach when I wake up in the morning), and it's also worse when I eat or drink anything...things even without gluten (like water). I feel like everything I put inside me is so quickly turned into gas that comes right back up.

 

Does that really sound like it can all be caused by a sensitivity to gluten even though it doesn't seem related at all to WHAT I eat? My doctor sort of explained it but I had a hard time explaining. I guess I don't understand how drinking water can create gas that has to come up in burps. It seems so weird.

 

I'm just really desperate to try and understand this. I wouldn't even mind if I have to give up gluten forever...I just want some answers!

 

Anyways, again I'd love your insight! Thank you so much.

0

Share this post


Link to post
Share on other sites

Well... not having the gene can rule out Celiac.  Almost.  There are a couple of people who don't have either of the known "Celiac genes" but have still tested positive for Celiac.  Having one or more of the genes does make you more predisposed to getting Celiac.... but about 30% of the population has at least one of the genes.  And only about 1% actually have Celiac.

 

The 3-month trial is not a bad idea.  If it is gluten-related, you could have non-Celiac gluten intolerance and there is no test for that.  With NCGI you get to experience all of the wonderful symptoms of Celiac but without the actual villi damage.  If your symptoms go away on a gluten free diet and then you reintroduce gluten and have a reaction then you'll know you have either Celiac and they missed it or you have NCGI.

 

As for the constant burping thing... that's a new one on me.  I just wouldn't be at all surprised if it were gluten related.  Seems like Celiac can cause just about anything.

0

Share this post


Link to post
Share on other sites

Thanks :)

 

It's driving me crazy to not have a real diagnosis or answers. I'm going to submit a post about this odd symptom and see if I can hear if anyone else had a similar experience....so just ignore my repeat questions :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,489
  • Topics

  • Posts

    • I am sorry that you are sick!   Unfortunately, all celiac testing requires you to be on gluten.  😔.   Testing is usually not over until you get an actual diagnosis, but it appears that you may very well have celiac disease.    Here is more information: http://www.cureceliacdisease.org/screening/ http://theceliacmd.com/2015/06/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet-3/ in the meantime, you can eliminate dairy products temporarily.  It may provide some relief.  
    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined