Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Dr Asking What Tests To Order To Screen For celiac disease! Need Info!
0

7 posts in this topic

HI.  My infertility specialist that we used a while back...is asking for the proper tests to order for screening his patients for celiac disease!  He listened!  I am not knowledgeable on what specific tests he needs to order.  Does anyone knowledgeable know what I can tell him?  After hearing my story since my 2 IVF procedures with him...and now my body is closer to normal...he wants to learn more.  NEED INFORMATION AND ADVICE TO GIVE HIM!!!  Especially if it's related to infertility, hormones and PCOS.  I need an arsenal of articles from reputable sources for him to learn all that he can.  My email is s.rivotto@comcast.net if anyone needs to email me articles.  I am not sure that screening will take care of everyone, but it's bound to hit on a few people here and there.  I wish that there was more that I could tell him about all of us that are symptomatic with NO positive results!  Thanks a million.  Is anyone else shocked that a doctor listened and wants to add it to his practice...WOW! 

2

Share this post


Link to post
Share on other sites


Ads by Google:

I'm still too new at this to have a ton of input but just wanted to congratulate you on getting through to him and benefiting his future patients. That's awesome!

0

Share this post


Link to post
Share on other sites

Total Serum IgA

Tissue Transglutaminase IgA -- (commonly called tTG-IgA)

Tissue Transglutaminase IgG (tTG-IgG)

Endomysial IgA (EMA-IgA)

Demiadated Gliadin Peptide - IgA (DGP-IgA)

Demiadated Gliadin Peptide - IgG (DGP-IgG)

 

older Gliadin Tests:

Anti-Gliadin Antibody IgA (AGA-IgA)

Anti-Gliadin Antibody IgG (AGA-IgG)

 

Nutrient testing is also important as Celiac Disease prevents proper absorption of many nutrients.  My Celiac Doctor runs the following during the diagnostic process and at annual checks:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper Zinc

Complete Metabolic Panel - shows various other nutrients

 

Complete Blood Count - can reveal other associated issues like elevated liver enzymes and more.

 

Most doctors do not run all of the above -- but should.

 

If I had my way...everyone with fertility, gastro, autoimmune issues along with anything labeled mental/behavioral would get a full screening....we can dream...one doctor at a time ;)

 

Good work getting one to listen and learn - it is not easy - but the best doctors are open to expanding their knowledge...even when the information comes from their patients!  Each of my doctors is used to receiving updated research in their inbox and at my appointments.  

 

Spread the word -- unfortunately it is up to us to advocate when opportunities are presented.

2

Share this post


Link to post
Share on other sites

That's awesome, thank you!  I have started to collect data for many of my doctors, but the infertility specialist is the first that I have approached.  He is a very good doctor:)  My new neurologist is more informed about gluten, because he has the same issues.  He says that we are beyond medical borders at the moment.  I am going to forward info to my old neurologist and family physician.  I could still use ANY and ALL articles that any of you can find!!!  You know that doctors like to see studies and hard facts from credible sources!  Keeping them informed of research is a great idea!  I just need to know how I stay informed of the latest research?

0

Share this post


Link to post
Share on other sites

You can look in the publication section of this forum for some good links or search pubmed for particular items of interest to you.

0

Share this post


Link to post
Share on other sites




Lisa...do you know anything about which labs are best to run tests?  I read an article about the MD who owns Enterolab, and he has celiac disease.  Other than that...I think that which labs do a better job...makes a difference.  Right?

0

Share this post


Link to post
Share on other sites

I have never researched particular labs.  Please let me know if your research finds documented issues.  Thanks :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,611
  • Topics

  • Posts

    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
    • Thank-you, thank-you! I am so relieved to have input from others who have experience with celiac disease. I'm not sure what I'm going to do about the school cafeteria. I'll ask our very nice and experienced Cafe Mgr for realistic info and details. My primary concern is the safety of my daughter and packing a lunch will not be that big a deal, even though she prefers the fresh prep instead of lunchbox offerings. Sigh. It sounds as if the 504 is unquestionably the preference over the IHCP, since the 504 is binding and follows the student through his/her academic career. I have a meeting with the admin team on Tuesday. Until then, I'm reading lots so i can be informed. And, dkader, I sent you a private message via the blog's feature. I'd certainly love to read the 504 info you have squirreled away. Thank-you so much!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined