Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Healing Leaky Gut
0

3 posts in this topic

I got my tests back that show I'm gluten intolerent and I haven't had gluten since my DX on the 4th. My head is feeling clearer and I'm feeling better overall but I still have a lot of questions. I know is should do further testing for Celiac but for now, I think I'll stick with my gluten free diet because I don't want to go back on it for an endoscopy. I also had a food intolerence test that picked up a lot of things I eat all the time. The only +2 I had were gluten, soy and beef. I had many +1 and very low. I had cut everything out since the 4th and recently started eating some on my +1 and VL like eggs, almonds, peanut butter and shrimp. I am kind of at a loss on what to do to help my healing. I am having regular bowel movements but they are still floating and a lot of the time are still bulky. Is the floating BM a sign of celiac rather than an intolerence? I know that it does point to a malabsorption of nutrients. I went to a chiropractor to DX my intolerence but my insurance benefits are very good for chiropractic care so I went to see my normal doctor yesterday with my test results and I think I knew more about celiac and gluten intolerence than he did! He said my test was the first positive he's seen and that I probably don't have celiac because I don't have diarrhea and weight loss and that for an ednoscopy, I need to go back on gluten for three months. So he won't be much help. I was hoping I could get some advice on how to heal further. I have been taking aloe juice and slippery elm. Any other helpful supplements? Not eating gluten but I've had a few of my foods I react to and maybe that's really bad.

Any advice or insight would be greatly appreciated!

0

Share this post


Link to post
Share on other sites


I've heard from different sources that L-Glutamine powder is good for healing leaky gut. It's a loose powder you mix into liquid and it's supposed to get into those loose cell connections in the gut and help them tighten back up again. It's tasteless and suspends easily rather than clumping as some powders can. I drink it in plain water. I just started on it so I don't know what the results will be. I haven't noticd any ill effects and I'm very sensitive.

 

I started on the gluten free diet before getting tested for celiac so I will never know for sure if I have celiac or gluten intolerance. My opinion is that since the treatment is the same I don't need to know. I do know that what I have has been serious so I will be super vigilent about taking excellent care of myself in every way regardless. I have read that going back on gluten to get tested again has made people very sick. I think the symptoms increase going back on gluten after being off it. Others who have been through that can give more info. I do know there are other types of tests available, someone with knowledge about those can fill you in on that.

 

It's very common to become sensitive to many foods while healing from the gluten, so that's normal. It takes time for the body to adjust. Being patient and keeping stress minimal is important. Lots of sleep helps me tremendously. It does take time, how much is different for everyone. Just know that you will get better as you identify what works and doesn't work for you. It's hard sometimes but so worth it. I'm still healing but have improved in many ways. Keep going and be patient with yourself and try to stay positive - it will pay off!

0

Share this post


Link to post
Share on other sites

Thank you for your reply! I do have some glutamine at home and I will start taking it.

I have another question if anyone can help me with it. I had a bunch of foods come up on my intolerance test. I am assuming this is because of a leaky guy caused by the gluten intolerence. They were foods I eat commonly, chicken, eggs, almonds, peanuts, beef, tuna, celery, all dairy and many more. So it left me with few protein sources and I have been eating a lot of pork, turkey, a little salmon, bison and lamb. I was told I should avoid all of the foods for three months. Of course when I was at the doctor, it was all too much to take in to think of any questions. But I'm wondering if I would be better to have a more rotation diet, eating the foods I reacted to but sparingly. I just feel like I might be eating too much of the other foods and might start reacting to them. Most of the foods were VL or +1. I had +2 for beef, soy and gluten, no +3. Would I be able to rotate the VL and +1? Or should I go back to avoiding them all together for three months?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,715
    • Total Posts
      914,528
  • Topics

  • Posts

    • Possible celiac? Frustrated and upset
      Hi everyone, I'm new to this forum but I think I may have coeliac disease, the doctors say it could be anyway or possibly h pylori  Constant pain above my navel, nausea, anaemia, joint pain, bloating, migraines, depression, mood changes, feeling "not all there" and feeling so tired I could sleep all day! I just don't want to get out of bed let alone the house  these are just a few symptoms I have to cope with every single day! It's so frustrating! I just want to feel normal!!! I also have what feels like a lump in my throat at times and excess mucus all the time. Ive been suffering from this for years now, not this bad of course. And I've got the common answers from the doctors "it's IBS, excess stomach acid" you name it..  Recently I went to the doctors and persisted, pretty much begged for further tests as I couldn't deal with it much longer! I'm waiting on blood results and have a scan soon. Possibly an endoscopy depending on my blood test results.  Im just wondering if any of you have the symptoms I do? Thank you in advance  
    • Secret Deodorant
      I never worry about deodorant.  The only things you really need to worry about are things that might get in your mouth.  I get shampoo in my mouth so I read the ingredients.  They will say if they have wheat germ oil in them.    http://www.cureceliacdisease.org/archives/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in-them   "Gluten must be ingested to be cause for concern for someone with celiac disease. We still recommend those with celiac disease avoid contact with gluten, especially with products that have the potential to be ingested. Small amounts of gluten can be found in many cosmetics, lotions and shampoos. Avoid product ingredients that literally say “wheat,” “rye,” “malt” or “barley.”  "
    • Secret Deodorant
      Most toiletry products are fine even if they have wheat/gluten in them.  The main issue is not to ingest them!  Many folks with celiac disease are careful with shampoo, conditioner, soap, lotion, lipstick, lip gloss, hair products,  and sunscreen because they could be accidentally swallowed (if you chew on your nails, etc.).   I have used Crystal Deodorant for 20 years now.  It can last for years!  Seriously!  It is pretty effective but not as effective for a teenager.   My entire family uses it, but my teen uses regular antiperspirant too.  You can find it at Whole Foods, Sprouts, healthfood stores, and even a "roll" on version at CVS.  Of course, Amazon carries it too and the price is comparable to the stores.   I found some mini travel versions at Marshalls (but that is hit or miss).  I like the solid crystal option the best.  I really like Gabriel Lipstick found at Sprouts.  I buy it on sale.  It is certified gluten-free, so I never have to worry!  I hear that Red Apple (sold online) is very good too and is certified.   I hope this helps!  
    • Anyone Else Feel A "lump" In Their Stomach?
      Hi chinup,  I know it's been a while, but I was wondering if what was the diagnosis.. Please let us know.  Thank you! 
    • Tests done, waiting for CT Scan and Biopsy appointments
      Hello, I have been reading a lot of posts while waiting for some of my test results to come back.  So thankful for the information I have found so far! I have completed my blood tests and other lab work.  Complete allergy tests came back positive for all in the bread/cereal profile.   One of the gene tests for Celiac came back positive and one other test came back high, even though I was not eating Gluten at the time of my lab work.  Back eating a small amount of gluten daily and have CT Scan and biopsy appointments scheduled for the near future.   I was wondering if anyone else is where I am as far as the testing.  I have had quite a few symptoms return quickly after going back to eating gluten.  The next day I had a migraine headache for the entire day, went to sleep and woke up with another headache that wasn't quite as bad.  Prior to my appointment,  I was only gluten free for 2 months and was really starting to feel great.  Three days into eating gluten stomach cramps returned.  Also on a Low FODMAP diet.  Unfortunately had to go back to eating it for the biopsy test.   Please reply if you are in the same spot as me as far as testing for Celiac.  Thanks, Sheila 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,759
    • Most Online
      1,763

    Newest Member
    KJDx
    Joined