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Healing Leaky Gut
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I got my tests back that show I'm gluten intolerent and I haven't had gluten since my DX on the 4th. My head is feeling clearer and I'm feeling better overall but I still have a lot of questions. I know is should do further testing for Celiac but for now, I think I'll stick with my gluten free diet because I don't want to go back on it for an endoscopy. I also had a food intolerence test that picked up a lot of things I eat all the time. The only +2 I had were gluten, soy and beef. I had many +1 and very low. I had cut everything out since the 4th and recently started eating some on my +1 and VL like eggs, almonds, peanut butter and shrimp. I am kind of at a loss on what to do to help my healing. I am having regular bowel movements but they are still floating and a lot of the time are still bulky. Is the floating BM a sign of celiac rather than an intolerence? I know that it does point to a malabsorption of nutrients. I went to a chiropractor to DX my intolerence but my insurance benefits are very good for chiropractic care so I went to see my normal doctor yesterday with my test results and I think I knew more about celiac and gluten intolerence than he did! He said my test was the first positive he's seen and that I probably don't have celiac because I don't have diarrhea and weight loss and that for an ednoscopy, I need to go back on gluten for three months. So he won't be much help. I was hoping I could get some advice on how to heal further. I have been taking aloe juice and slippery elm. Any other helpful supplements? Not eating gluten but I've had a few of my foods I react to and maybe that's really bad.

Any advice or insight would be greatly appreciated!

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I've heard from different sources that L-Glutamine powder is good for healing leaky gut. It's a loose powder you mix into liquid and it's supposed to get into those loose cell connections in the gut and help them tighten back up again. It's tasteless and suspends easily rather than clumping as some powders can. I drink it in plain water. I just started on it so I don't know what the results will be. I haven't noticd any ill effects and I'm very sensitive.

 

I started on the gluten free diet before getting tested for celiac so I will never know for sure if I have celiac or gluten intolerance. My opinion is that since the treatment is the same I don't need to know. I do know that what I have has been serious so I will be super vigilent about taking excellent care of myself in every way regardless. I have read that going back on gluten to get tested again has made people very sick. I think the symptoms increase going back on gluten after being off it. Others who have been through that can give more info. I do know there are other types of tests available, someone with knowledge about those can fill you in on that.

 

It's very common to become sensitive to many foods while healing from the gluten, so that's normal. It takes time for the body to adjust. Being patient and keeping stress minimal is important. Lots of sleep helps me tremendously. It does take time, how much is different for everyone. Just know that you will get better as you identify what works and doesn't work for you. It's hard sometimes but so worth it. I'm still healing but have improved in many ways. Keep going and be patient with yourself and try to stay positive - it will pay off!

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Thank you for your reply! I do have some glutamine at home and I will start taking it.

I have another question if anyone can help me with it. I had a bunch of foods come up on my intolerance test. I am assuming this is because of a leaky guy caused by the gluten intolerence. They were foods I eat commonly, chicken, eggs, almonds, peanuts, beef, tuna, celery, all dairy and many more. So it left me with few protein sources and I have been eating a lot of pork, turkey, a little salmon, bison and lamb. I was told I should avoid all of the foods for three months. Of course when I was at the doctor, it was all too much to take in to think of any questions. But I'm wondering if I would be better to have a more rotation diet, eating the foods I reacted to but sparingly. I just feel like I might be eating too much of the other foods and might start reacting to them. Most of the foods were VL or +1. I had +2 for beef, soy and gluten, no +3. Would I be able to rotate the VL and +1? Or should I go back to avoiding them all together for three months?

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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