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Is It Possible To Have Celiac Without Anemia Or B12 Defiency?
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Hey, I am new here.

 

I been having many symptoms celiacs disease, including clasic and non classic symptoms, neurological problems and even Alopecia Totalis (since the age of 19, no eyebrows etc). However, my CBC, Iron and B12 are allways normal. I have had low Iron levels once, when I was a kid, but when I do my routine blood tests each year, theyare fine.. Althoug,  I have had low levels of potasium good few times, but they werent above the norm.

 

 

I recived my CBC, b12, Iron blood results just few days, stil waiting for my antibody results to come back in few weeks.

 

My symptoms I experience are:

 

Frequent infections, colds (every year)

Alopecia universalis (Not even one hair on the body)

Eczemas

Nail problems

Fungal infections

Spots

Frequent nasal bleeds (especially when I was a kid)

Bloating, gas, GERD, fatty stools, diarhea

Enamel problems

Lip sores

Hot flushes

Cold hands and feet

Nasal congestion

Dry skin

Sore eyes

Heat intolerance

Swolen neck lymph nodes

Bleeding gums

Bruising

Blacking out when standing

Dizzines during physical activity

Dandruff

ADD, brain fog, anxiety, severe depression, extreme fatigue, memory problems, panic attacks when I was a kid. etc..

Weight gain and loss

Unable to gain muscle

 

 

So my main concern was, if it is possible to have Celiac without ANEMIA, folate or b12 deffency?

 

 

I really wish it was Celiac, this would mean a possible end of my problems. As I am 23 yo and been feeling like an old man since I was a little kid..

 

P.S. I got my thyroid checked few times and all came clear.Not sure if thyroid tests can show Heshimotos though. My GP thinks that I am a hypocondriac,  so do I sometimes..

Edited by captainjacksparrow
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It's possible to have celiac without anemia, yes.

For a long time, I did not show B-12 or folate of Vit D deficiencies until I was really sick. 

There are dozens of celiac-related symptoms and conditions and you do not have to have all of them to be a celiac.

You may have a folate deficiency or a Vitamin D or K deficiency (but the tests they did on you will not show those).

 

Your other symptoms speak volumes, hon.  

 

The antibody tests don't usually take a few weeks, you may get word soon. Hang in the there and welcome to the forum!

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I know that you said your vitamin levels are normal, but sometimes just because they are within the normal range on the lab paperwork it doesn't really mean it is suffecient.   If you are the low end of normal, then you can be defiecient.  Also not everyone is the same so one person may feel good with a B12 number of say 200 (the lowest end of normal) and some may feel horrible at that number.   Do you happen to have the ranges and the actual counts. 

 

For me, for some reason I have become more deficient since I have been gluten free, maybe becuase I was getting the majority of those  vitamins as an added ingredient to my breads and stuff in the past???  I don't really know the reason but with my supliments I am back to a nice middle of the line normal range now. 

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It's possible to have celiac without anemia, yes.

For a long time, I did not show B-12 or folate of Vit D deficiencies until I was really sick. 

There are dozens of celiac-related symptoms and conditions and you do not have to have all of them to be a celiac.

You may have a folate deficiency or a Vitamin D or K deficiency (but the tests they did on you will not show those).

 

Your other symptoms speak volumes, hon.  

 

The antibody tests don't usually take a few weeks, you may get word soon. Hang in the there and welcome to the forum!

 

 

Thank You! Btw, I am also in Ireland! It is reassuring. I am so fed up with me being sick for so long.But I dont wanna loose hope..

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I know that you said your vitamin levels are normal, but sometimes just because they are within the normal range on the lab paperwork it doesn't really mean it is suffecient.   If you are the low end of normal, then you can be defiecient.  Also not everyone is the same so one person may feel good with a B12 number of say 200 (the lowest end of normal) and some may feel horrible at that number.   Do you happen to have the ranges and the actual counts. 

 

For me, for some reason I have become more deficient since I have been gluten free, maybe becuase I was getting the majority of those  vitamins as an added ingredient to my breads and stuff in the past???  I don't really know the reason but with my supliments I am back to a nice middle of the line normal range now. 

From now on, I will ask a copy of the results. I think I am entitled to it by low..

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Hi Captain Jack and Welcome to the Forum!  Argh!

 

Nutrient deficiencies are common but not required.  I have always been "borderline" anemic, but still in the normal range - the doctors always just said that was typical for a skinny white woman.  I have never had any other nutrient deficiencies or even borderline bloodtest results. Even my Vitamin D levels have always been good - even though I discovered I have osteopenia at 40 years of age (hoping to correct that now that I'm gluten free).

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captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

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My symptoms I experience are:

 

Frequent infections, colds (every year)

Alopecia universalis (Not even one hair on the body)

Eczemas

Nail problems

Fungal infections

Spots

Frequent nasal bleeds (especially when I was a kid)

Bloating, gas, GERD, fatty stools, diarhea

Enamel problems

Lip sores

Hot flushes

Cold hands and feet

Nasal congestion

Dry skin

Sore eyes

Heat intolerance

Swolen neck lymph nodes

Bleeding gums

Bruising

Blacking out when standing

Dizzines during physical activity

Dandruff

ADD, brain fog, anxiety, severe depression, extreme fatigue, memory problems, panic attacks when I was a kid. etc..

Weight gain and loss

Unable to gain muscle

 

The simple answer is that anything is possible with Celiac! My 5 yr old son is currently being tested and he has the symptoms that I made bold in your list. His alopecia is Alopecia Areata, not Universalis, but regardless it's still autoimmune and he was diagnosed at 20 months old when all his hair fell out. We thought he did have universalis initially but after about a year it all grew back and now he just gets the random round patches of hair loss that are classic for the areata presentation. His CBC is mostly normal except for low red blood cell count. His hemoglobin and hematocrit are in the lowest range of normal. All other labs have been normal. He also has asthma, abdominal pain, nausea, chronic constipation and is gaining weight very slowly. His height growth has remained at a steady rate, but he hasn't been gaining weight so his weight/height and BMI numbers have dropped significantly. Doctor thought there was no way he had Celiac, but I tested positive so I am demanding it be looked into further by a pediatric GI. Everyone's presentation is a bit different so it's great that you had the testing done. Your symptoms are definitely suggestive with or without deficiencies.

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The simple answer is that anything is possible with Celiac! My 5 yr old son is currently being tested and he has the symptoms that I dissappearold in your list. His alopecia is Alopecia Areata, not Universalis, but regardless it's still autoimmune and he was diagnosed at 20 months old when all his hair fell out. We thought he did have universalis initially but after about a year it all grew back and now he just gets the random round patches of hair loss that are classic for the areata presentation. His CBC is mostly normal except for low red blood cell count. His hemoglobin and hematocrit are in the lowest range of normal. All other labs have been normal. He also has asthma, abdominal pain, nausea, chronic constipation and is gaining weight very slowly. His height growth has remained at a steady rate, but he hasn't been gaining weight so his weight/height and BMI numbers have dropped significantly. Doctor thought there was no way he had Celiac, but I tested positive so I am demanding it be looked into further by a pediatric GI. Everyone's presentation is a bit different so it's great that you had the testing done. Your symptoms are definitely suggestive with or without deficiencies.

 

 

Hey, thank You for Your reply.For me the hair loss started when I was 8 years old. I used to get oval bald patches, which used to regrow. When I hit 19 my eyebrow started to dissappear.At the age of 22 I lost all my hair. And now, my naills ar affected.. I did gluten challenge few months ago. I had my hair regrowing after 2 weeks on gluten-free diet. It was just ear hair and facial hair, very small etc.. Then I begged my GP for celiac tests snd told all the stories about the other people that didnt have any classic symptoms and so on, told showed her a full list of my symptoms I experience and had experienced and she agreed to test me for the last time. I said to her that I will focus on my mental health if they will be negative. However, on the gluten chalange my anxiety was out of the roof! I wonder if it was the so called gluten withdrawal. As gluten is like opiate haha..

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captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

 

 

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

 

 

captain jack.........if your GP thinks you are a hypochondriac, then you're a shoo-in for Celiac Disease!  ;)

Hahah.I know that I am a hypocondriac my self. But like hair loss, infections, bleedings etc..Not sure if hypochondria can be so powerful to create these symptoms.. ha

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Hahah.I know that I am a hypocondriac my self. But like hair loss, infections, bleedings etc..Not sure if hypochondria can be so powerful to create these symptoms.. ha

 

Sometimes Hypochondria is caused by the failure of many doctors not running the correct tests.

 

Sometimes telling their patients they are perfectly healthy and their symptoms are all in their heads.

 

Sometimes leaving them with actually symptoms for many years.

 

Sometimes it is all in our guts, rather than our heads.

 

and then sometimes folks simply have Hypochondria (but those should have their gut checked too)

 

Welcome to the forum Captain Jack :)

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Thank You! Btw, I am also in Ireland! It is reassuring. I am so fed up with me being sick for so long.But I dont wanna loose hope..

 

 

I do not live in Ireland, capt'n jack. I wish I did. I have been there many times, but I live in the US. 

 

No,no, no...now..come on...do not lose hope! :) Please...we're here for you! We've walked in your shoes!!.

Even if that test is negative, you could try a gluten-free diet and get rid of the symptoms.

 

Many people with NCGS (non-celiac gluten sensitivity) have similar symptoms that resolve on a G F diet.

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I do not live in Ireland, capt'n jack. I wish I did. I have been there many times, but I live in the US. 

 

No,no, no...now..come on...do not lose hope! :) Please...we're here for you! We've walked in your shoes!!.

Even if that test is negative, you could try a gluten-free diet and get rid of the symptoms.

 

Many people with NCGS (non-celiac gluten sensitivity) have similar symptoms that resolve on a G F diet.

I tought You were from Ireland:))) I will! I am just so fed up of being sick and tired all the time. I even broke up with my girlfriend do to my problems... Thank You! I am 8 day on gluten-free diet. As I am not willing to wait 18 months for the biopsy if the tests indeed will be positive. But to be honest I feel worse.. The second day of gluten-free was amazing, but it was probably a placebo... However my stomach was really feeling very weird at that day.

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Hi Captain Jack and Welcome to the Forum!  Argh!

 

Nutrient deficiencies are common but not required.  I have always been "borderline" anemic, but still in the normal range - the doctors always just said that was typical for a skinny white woman.  I have never had any other nutrient deficiencies or even borderline bloodtest results. Even my Vitamin D levels have always been good - even though I discovered I have osteopenia at 40 years of age (hoping to correct that now that I'm gluten free).

Hello I am very new to the forum. I also have normal iron levels as of a year ago. I have not been technically diagnosed with celiac yet. I do have a lot of symptoms that have been going on for years: stomach ache after eating, eye problems, some minor neurological problems, and really feeling very crappy and sometimes just feel very weak and sick. The list goes on and I would love to share information if at all possible. Thank you

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I tought You were from Ireland:))) I will! I am just so fed up of being sick and tired all the time. I even broke up with my girlfriend do to my problems... Thank You! I am 8 day on gluten-free diet. As I am not willing to wait 18 months for the biopsy if the tests indeed will be positive. But to be honest I feel worse.. The second day of gluten-free was amazing, but it was probably a placebo... However my stomach was really feeling very weird at that day.

 

 

You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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Stress creates inflammatory cytokines in our bodies and we don't need that.

I believe that is what is going on with me. I was about to post a topic asking about stress and decided to do a search first. Thanks!
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You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

 

So the blood tests came back all normal! I am lost and depressed. My GP says its one hundred percent not celiac and it is just stress. I am 14th day of gluten free. Feel a little better ,but I dont know if its gluten or not. I will stick to gluten challenge at least for few months.. I am so lost and just want to cry. GP told that all the tests are within the normal limit..... I asked for a copy so should receive them this afternoon. However, when I was on gluten, I used to have diarrhoea, small and fatty stools. And when I am on gluten free diet, they are all gonne. I am also on diary free,as diary makes me sick as well.... I wont give it up...

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So the blood tests came back all normal! I am lost and depressed. My GP says its one hundred percent not celiac and it is just stress. I am 14th day of gluten free. Feel a little better ,but I dont know if its gluten or not. I will stick to gluten challenge at least for few months.. I am so lost and just want to cry. GP told that all the tests are within the normal limit..... I asked for a copy so should receive them this afternoon. However, when I was on gluten, I used to have diarrhoea, small and fatty stools. And when I am on gluten free diet, they are all gonne. I am also on diary free,as diary makes me sick as well.... I wont give it up...

 

There is absolutely no way a doctor can say 100% anything based on the Celiac blood tests.  They simply just aren't that accurate.  False positives are much more rare, but false negatives are not particularly uncommon.  And then there is always non-Celiac gluten intolerance, in which the tests come back negative but you still get all the symptoms and still improve on a gluten-free diet.  In my opinion, you're doing the right thing by trying a strictly gluten-free diet for a few months.  You've already seen symptom improvement - which to me is much more telling than the blood test results.  I know not having an "official" diagnosis can be frustrating, but if it means you can still get healthy it's not the end of the world.

 

Oh... and usually when people say they are on a gluten challenge they mean they are temporarily eating gluten for the purpose of getting tested.  It sounds like you're trying gluten free for a few months, so you're actually done with the challenge.  (or you never did a challenge because you were never gluten free before)...  Anyhow... just wanted to clarify that for others who may read this and get confused.

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There is absolutely no way a doctor can say 100% anything based on the Celiac blood tests.  They simply just aren't that accurate.  False positives are much more rare, but false negatives are not particularly uncommon.  And then there is always non-Celiac gluten intolerance, in which the tests come back negative but you still get all the symptoms and still improve on a gluten-free diet.  In my opinion, you're doing the right thing by trying a strictly gluten-free diet for a few months.  You've already seen symptom improvement - which to me is much more telling than the blood test results.  I know not having an "official" diagnosis can be frustrating, but if it means you can still get healthy it's not the end of the world.

 

Oh... and usually when people say they are on a gluten challenge they mean they are temporarily eating gluten for the purpose of getting tested.  It sounds like you're trying gluten free for a few months, so you're actually done with the challenge.  (or you never did a challenge because you were never gluten free before)...  Anyhow... just wanted to clarify that for others who may read this and get confused.

 

 

This what I meant, sorry for confusing... But can gluten intolerance cause alopecia totalis, nail ridging and so on ??? I will try, although I starting to loose hope, but I wont give up.. I had been bitten by two ticks when I was a kid, will try and will get tested for Lymes disease, also Lupus..  Even though it is less common in men.. If You wont mind I will post my results later on in this thread. Or should I create a new one?

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Hi Captain.  You can post your results here or start a new topic.  

 

I would get tested for Lyme's, Lupus is probably unlikely as you would have a positive ANA and I'm assuming your Doc would have seen that with general blood work.  I haven't read your history so excuse me if you've already covered that.  I'm also assuming you have had nutritional testing?

 

Colleen

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This what I meant, sorry for confusing... But can gluten intolerance cause alopecia totalis, nail ridging and so on ??? I will try, although I starting to loose hope, but I wont give up.. I had been bitten by two ticks when I was a kid, will try and will get tested for Lymes disease, also Lupus..  Even though it is less common in men.. If You wont mind I will post my results later on in this thread. Or should I create a new one?

 

From what I understand of NCGI, you can get all of the same symptoms and issues that folks with Celiac can get.  The only difference is that the blood test and biopsy are negative.  (If there are other differences, hopefully someone more knowledgable about NCGI will chime in here).  And by all means, post your test results.  You should probably start a new thread so more people will see it.  There are quite a few folks on here that are very good at reading the various test results.

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You may feel worse before you feel better. Healing the gut  is an up and down road. Just be patient.

Here is your new motto: Every day is a healing day.

 

Please read this entire thread I have linked below  so you understand everything about cross contamination. Just BELIEVE you can get well! And as corny as this sounds, remaining hopeful and positive (and not fretting anymore) is very beneficial. Stress creates inflammatory cytokines in our bodies and we don't need that. 

 

Drink a lot of water, take a probiotic, stay completely G F (scrutinize everything before you eat it) and try and relax now.  I know how hard it is to

feel lousy for so long, but it gets better, I promise.

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

I have no idea what blood tests I had. I know that IGA and EMA as well as CBC, Iron, folic acid, thyroid all of them a WITHIN THE NORMAL LIMITS. But the sentence it self gives me some wondering. As I talked to her via the phone and she mentioned few times - WITHIN THE NORMAL LIMITS.. Anyhow, in about an hours time I will get the results back and will post there.. She is referring me to psychiatrist and dermatologist for my alopecia totalis.. I have so many symptoms that just relate to celiacs so much as well as to lupus and Lyme. 

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I have no idea what blood tests I had. I know that IGA and EMA as well as CBC, Iron, folic acid, thyroid all of them a WITHIN THE NORMAL LIMITS. But the sentence it self gives me some wondering. As I talked to her via the phone and she mentioned few times - WITHIN THE NORMAL LIMITS.. Anyhow, in about an hours time I will get the results back and will post there.. She is referring me to psychiatrist and dermatologist for my alopecia totalis.. I have so many symptoms that just relate to celiacs so much as well as to lupus and Lyme. 

 

Good Morning CaptainJack!

 

Sorry you had a frustrating doctor's appt.  Many of us have a great deal of experience with dismissive doctors. 

 

First thing -- always get written or electronic copies of all medical tests -- I have had several doctors or their staff tell me incorrect information -- one left cancer untreated for nine months until a computer caught the error -- if that computer hadn't been doing some sort of check/balance -- I might not be here -- ever since I have asked for all results in writing.

 

Once you have them, post them here...this thread is fine -- there are often normal results that high/low within "normal" range that can help lead to requesting more tests -- but most docs read normal and don't think -- what else haven't I tested for?

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OK, here are my results (they seem very good to me):

 

U/E+CREAT

urea - 6.5

sodium - 144

potassium - 4.4

creatinine - 88

 

 

LFT (Liver function test from serum)

bilirubin - 12

ALT (GPT) - 22

alkaline phosphatase - 81

gamma GT - 17 

 

GLUCOSE

4.3

 

VITAMIN B12 SERUM

523

 

ESR 

2

 

FULL BLOOD COUNT

WBC - 7.4

RBC - 5.27

haemoglobin - 15.8

PCV - 0.461

MCV - 87.5

MCH - 29.9

MCHC - 34.2

Red Cell Distribution Width - 13.1

plateletes - 177

PCV - 8.1

lymphocites - 3.20

monocytes - 0.70

neuthrophils - 3.2

eosinophils - 0.20

basophils - 0.00

 

THYROID FUNCTION 

FREE T4 - 14.3

TSH - 2.72

anti-TPO Ab: 2.72 - negative 28

tTG ANTIBODY 0.4 negative

 

It is probably anxiety and stress related. However I been like this since my early early childhood... Anti anxiety meds and antidepressants does not help..

 

What do You think about the results?

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OK, here are my results (they seem very good to me):

 

U/E+CREAT

urea - 6.5

sodium - 144

potassium - 4.4

creatinine - 88

 

 

LFT (Liver function test from serum)

bilirubin - 12

ALT (GPT) - 22

alkaline phosphatase - 81

gamma GT - 17 

 

GLUCOSE

4.3

 

VITAMIN B12 SERUM

523

 

ESR 

2

 

FULL BLOOD COUNT

WBC - 7.4

RBC - 5.27

haemoglobin - 15.8

PCV - 0.461

MCV - 87.5

MCH - 29.9

MCHC - 34.2

Red Cell Distribution Width - 13.1

plateletes - 177

PCV - 8.1

lymphocites - 3.20

monocytes - 0.70

neuthrophils - 3.2

eosinophils - 0.20

basophils - 0.00

 

THYROID FUNCTION 

FREE T4 - 14.3

TSH - 2.72

anti-TPO Ab: 2.72 - negative 28

tTG ANTIBODY 0.4 negative

 

It is probably anxiety and stress related. However I been like this since my early early childhood... Anti anxiety meds and antidepressants does not help..

 

What do You think about the results?

 

You are right...what was run looks pretty good.  It's hard to know what they mean for sure without ranges -- not all labs use the same ranges.

 

To save you some tying -- what was the range for ALT in the liver section and the range of the tTG Antibody?

 

Not to bum you out...but you did not have sufficient celiac blood work to know anything with any degree of certainty.

 

The one tTG test you had means very little without the Total Serum IgA - if it was an IgA based test -- not clear from your list.

 

You've already removed gluten for some time -- so it is up to you when/if you want to proceed with proper celiac testing.

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    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
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