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My Sister
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Ok this is what I have been trying to tell my family! I have all these problems !! It is genetic you need to get tested! But to no avail! Then for some reason my sister in Ca. has contacted me! I said ohh you don't even want to know all my problems. Well yes she did! So I told her and low and behold, she is having problems her kids are having problems. I so worry about my family! Celiac !! I have the gene! So everyone in my family could have it! I tell them , but you know how dr's are! But I told my sister please get the full genetic Blood panel .. I was on instant messenger , thats what i thought of! I also told her "Do not change your diet" she said ok. But omg I wish I lived closer to my family! They are having so many problems. Im in Michigan they are in California :( .. I need to to text her the test she needs .. I don't know if there is a text version ?? of the panel you need?

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I don't know of a text version but I just use my phone for basic testing. I don't have any apps or anything. Just send her the full panel. I hope she can get in to the doctor fairly quickly and have some answers soon. Is she going to have her children tested also?

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She has adult children, She is going to talk with them.

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    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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