Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newbie Who Feels Lost
0

12 posts in this topic

Hi

I recently went thru Invitro Fertilization Treatment (husbands count is low and nothing showing to be wrong with me). I have one frozen embryo left. I live in Canada and Invitro is not covered by health care. So this one embryo is my last chance. So this being said I am writing in here because I'm trying to increase my chances before the transfer of the embryo.

When I was about 17 I was diagnosed with IBS. I remember being around the age of 12 or so and having problems with bowel movements. The stools would be so large that my mom would freak out at me. She made me eat whole wheat bread, reduced cheese, and gave me Metamucil. Those days were the worst I remember having extreme cramps and gas but I can't remember if it resolved the large stool issue.

Since the IBS diagnosis I've just learn to avoid foods that were a huge trigger for me these foods are: dairy, popcorn, egg yolks, oatmeal , whole wheat bread, taco seasoning, and jam.

So most of the time I go days between bowel movements and usual have large and hard stools. Then I get these moments of bad cramps accompanied with loose stools. I just never get a happy in between.

So I am not really sure if I have celiac's, I asked my doctor for the requisition for blood work only later to find out that Ontario Health Insurance Plan doesn't cover this cost and neither will my private insurance. After reading here and there that this blood work isn't overly accurate I'm just not interested and dumping more money in the drain.

So I decided just to go Gluten free a week ago. I have mostly been eating non processed foods and my protein shake that is gluten and lactose free. I really feel like I'm not getting relief with bowel movements, I know I need to give my body a chance. Today there was blood on the toilet paper after a bowel movement. I guess I just need some reassurance.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome!!

 

Thank you for being so honest about your concerns -- i don't have enough time to respond properly, but will be back.

 

I think others will be along to welcome you and advise before I return.

 

Hang in there :)

0

Share this post


Link to post
Share on other sites

Ontario is hard on celiacs. :( You might have to pay out of pocket to be tested, and I personally think testing is a good idea for most people who suspect celiac disease or non-celiac gluten intolerance (NCGI). Knowing can help with will power as staying gluten-free for life is quite a commitment, plus your offspring will be at risk of developing celiac disease and knowing celiac disease is in the mainly could help save them from some health problems.

If you do look into testing, these are the best tests:

TTG IgA and tTG IgG - most common tests

DGP IgA and DGP IgG - good new test that is great for detecting early celiac disease

EMA IgA - tends to be positive in more advanced cases

Total serum iga - a control test

You need to be eating gluten in the 8-12 weeks before testing so if you think you will go that route, resume eating gluten immediately.

You can order the Biocard home test in Canada for about $100. It is a very basic tTG IgA and serum IgA tester.

There is also the endoscopic biopsy.

If testing is not an option, give the gluten-free diet a good six months before you judge it's effectiveness. Some celiac symptoms improve within days but others take weeks, months, or even years. I can honestly say that I had some symptoms obviously improve at the one year gluten-free mark, and I am still waiting to see if others will improve at the two year mark. Before looking into that last embryo, I would give the gluten-free diet at least six months... More if possible.

Hypothyroidism might be something to check as well. It can mess with fertility and causes constipation too (I am guessing the blood on the toilet paper was from a hemorrhoid - pretty common with C). The tests to look into for that are TSH (should be near a 1), free T3 and free T4 (should be in the 50-75% range of your lab's normal reference range), and TPO Ab.

Best wishes in whatever you decide to do.

0

Share this post


Link to post
Share on other sites

I agree with Nicole.

 

Hang in there :)

0

Share this post


Link to post
Share on other sites

I never thought about the hypothyroidism, would they have caught that when sending me for all the blood work when initially investigating the infertility?

My doctor did give me a requisition for the blood work but at this point can't afford it after the Invitro. She did include a test to check my thyroid on that same requisition. Would going gluten-free affect the results of the thyroid results?

My stool seems to keep getting bigger to the point that I'm clogging the toilet. It's so embarrassing I'm dreading work tomorrow in fear that I will have to go (we only have one plunger and it's usually in the men's washroom. This causes me great anxiety. My cousin suggested I take psyllium husk capsules. I'm afraid to take something like that because as a child I have had bad experiences with Metamucil.

As I type this I have a dull aching pain in what I think is my intestines. Ugh... I thought this would be easy and solve problems not create more...

0

Share this post


Link to post
Share on other sites




. Ugh... I thought this would be easy and solve problems not create more...

 

Hi and Welcome!

 

I agree with the others that getting testing is best but I also understand that sometimes that just isn't a realistic option.  I just wanted to let you know that it is not uncommon for symptoms to get worse before they get better - so if you're determined to try gluten free you need to give it a month or two - sometimes longer for some symptoms to improve.  And you need to be 100% gluten free.  Which means avoiding cross-contamination.

 

FWIW... in my opinion... if your symptoms are actually a bit worse on a gluten free diet (at first) then this is actually an indication that you likely have either Celiac or non-Celiac gluten intolerance.  Why?  Because if gluten was not an issue for you then whether you eat it or not wouldn't make any difference at all.  Try to stick it out for awhile longer and see what happens.

 

Good luck!

0

Share this post


Link to post
Share on other sites

Welcome FlyersGirl,

I am afraid that I will not be much help here,, I am also new and still learning.  But I wanted to say Hi and wish you well with all that you are dealing with!

 

 

 

FWIW... in my opinion... if your symptoms are actually a bit worse on a gluten free diet (at first) then this is actually an indication that you likely have either Celiac or non-Celiac gluten intolerance.  Why?  Because if gluten was not an issue for you then whether you eat it or not wouldn't make any difference at all.  Try to stick it out for awhile longer and see what happens.

 

This^^^ I found interesting, I would  not have thought this way.... Thanks!

0

Share this post


Link to post
Share on other sites

FWIW... in my opinion... if your symptoms are actually a bit worse on a gluten free diet (at first) then this is actually an indication that you likely have either Celiac or non-Celiac gluten intolerance.  Why?  Because if gluten was not an issue for you then whether you eat it or not wouldn't make any difference at all.  Try to stick it out for awhile longer and see what happens.

 

First of all thank you everyone for the input!

NoGlutenCooties that makes so much sense!

Today I couldn't facing going to work so I went to the walk in clinic to see what they could do for me. So they referred me to see a Gastroenterologist, sent me for blood work (not blood work for celiac because I don't have the money for it at the moment), and gave me a prescription for Metamucil. I also stopped at another clinic and made myself an appointment to see a dietician.

I'm praying the Metamucil is okay gluten wise to take, that it does give me relief and doesn't cause havoc on my system like it did when I was a kid.

0

Share this post


Link to post
Share on other sites

I'm praying the Metamucil is okay gluten wise to take, that it does give me relief and doesn't cause havoc on my system like it did when I was a kid.

 

I've been taking Metamucil every day for over 20 years - it works wonders for me.  It is also gluten free.  You may want to ease into it and take a teaspoon per day for a few days and then gradually increase the amount.  It can cause gas and discomfort at first for some people until your system gets used to the fiber.

0

Share this post


Link to post
Share on other sites

ncbi.nih.gov/pubmed/19674017

ever been checked for this?

0

Share this post


Link to post
Share on other sites

Hi Flyer'sgurl,

 

Be sure to drink plenty of water if you take the metamucil. It works better with lots of water.  I'm pretty sure metamucial is just psyilium husks with flavorings added.  So you could just get plain psyilium husks instead.  Another way to take it is to mix it into food you are eating.  It makes a good thickener for soups and gravy etc.  You could also try some magnesium to relieve C.

 

It does take some time for the immune system to stop attacking the gut.  And then the gut can heal.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Avoid alcohol.
Watch out for cross contamination.

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

0

Share this post


Link to post
Share on other sites

Hi

I recently went thru Invitro Fertilization Treatment (husbands count is low and nothing showing to be wrong with me). I have one frozen embryo left. I live in Canada and Invitro is not covered by health care. So this one embryo is my last chance. So this being said I am writing in here because I'm trying to increase my chances before the transfer of the embryo.

When I was about 17 I was diagnosed with IBS. I remember being around the age of 12 or so and having problems with bowel movements. The stools would be so large that my mom would freak out at me. She made me eat whole wheat bread, reduced cheese, and gave me Metamucil. Those days were the worst I remember having extreme cramps and gas but I can't remember if it resolved the large stool issue.

Since the IBS diagnosis I've just learn to avoid foods that were a huge trigger for me these foods are: dairy, popcorn, egg yolks, oatmeal , whole wheat bread, taco seasoning, and jam.

So most of the time I go days between bowel movements and usual have large and hard stools. Then I get these moments of bad cramps accompanied with loose stools. I just never get a happy in between.

So I am not really sure if I have celiac's, I asked my doctor for the requisition for blood work only later to find out that Ontario Health Insurance Plan doesn't cover this cost and neither will my private insurance. After reading here and there that this blood work isn't overly accurate I'm just not interested and dumping more money in the drain.

So I decided just to go Gluten free a week ago. I have mostly been eating non processed foods and my protein shake that is gluten and lactose free. I really feel like I'm not getting relief with bowel movements, I know I need to give my body a chance. Today there was blood on the toilet paper after a bowel movement. I guess I just need some reassurance.

 

It's a great idea to try and work this out before trying the in vitro again.

 

In the USA, Quest Diagnostics has been running a TV campaign urging people to be tested for celiac before going on a gluten free diet. It's $124 to get it done and the test is 96% accurate.

 

There are Quest labs in Niagara Falls, if you don't have any options closer to home.

 

Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,518
  • Topics

  • Posts

    • Need help with "positive" blood test results
      You'll want to keep an eye on all your vitamin levels, as absorption problems are quite common with gastritis. You've probably already looked it up, but this is the WebMD page on gastritis. http://www.webmd.com/digestive-disorders/digestive-diseases-gastritis  It's not the best article as they mention 'treating' it with antacids which is pretty much the opposite of helpful. (https://www.sciencedaily.com/releases/2002/01/020115074441.htm) If the medication they were going to prescribe is an antibiotic, you might want to reconsider. If you have H. pylori, an antibiotic is the only sure way to get rid of it. If you don't get rid of the bacteria, the B12 deficiency will worsen.  
    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined