Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Lose The Celiac Belly?
0

13 posts in this topic

Hi everyone--just joined the community  :D

 

I've been on a strict gluten-free diet since October (my diagnosis), but I still have a huge bloated belly. It looks very strange on me because I have a small frame, and it makes me look like I'm about 7 months pregnant. I have also cut out oats, dairy (been vegan for 2 years), and most recently nuts. I already had probiotics in the Vega1 shake I drink each morning, but last week I also added a probiotic supplement as well. Does anyone have any advice on how to shrink down the gluten baby belly? Is it possible--(aka does it just take time)? It's just been 6 months since I've cut out gluten entirely, so I had hoped it would be gone by now.

 

Thank you all in advance  :lol:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Punky and Welcome to the Forum!

 

I have also been gluten free since Oct.  My bloat went away within the first week and only came back for a day or two when I got glutened.  I know everyone is different, but have you spoken to your doctor just to make sure there isn't anything else going on?  Are you also absolutely sure that you aren't being cross-contaminated by something?  (i.e. a shared kitchen, eating out, vitamins/supplements/medicine that isn't gluten free)  Do you ever notice it temporarily go away?  You may have a sensitivity to another food.  Additional sensitivities are common with people with Celiac.

 

After 6 months it sounds like there is either still some gluten getting in or something more is going on than just gluten.  (IMO)

0

Share this post


Link to post
Share on other sites

Hi Punky and Welcome to the Forum!

 

I have also been gluten free since Oct.  My bloat went away within the first week and only came back for a day or two when I got glutened.  I know everyone is different, but have you spoken to your doctor just to make sure there isn't anything else going on?  Are you also absolutely sure that you aren't being cross-contaminated by something?  (i.e. a shared kitchen, eating out, vitamins/supplements/medicine that isn't gluten free)  Do you ever notice it temporarily go away?  You may have a sensitivity to another food.  Additional sensitivities are common with people with Celiac.

 

After 6 months it sounds like there is either still some gluten getting in or something more is going on than just gluten.  (IMO)

Thanks for your quick reply NoGlutenCooties!

 

I do share my kitchen with my husband who eats gluten, but we keep our food pretty well segregated. I eat out weekly at a restaurant that I've been going to for several years now. It is not officially a gluten-free kitchen, but I eat gluten-free there (salad). Also, I did discover that the shake my husband makes for us each morning included the green Naked Juice (http://nakedjuice.com/our-products/juice/green-machine;%C2'> has wheat and barley grass in it). Once I discovered this 2 weeks ago, he switched to a different juice. Could I have leftover bloating from that still?

 

I notice that some mornings it will be somewhat flat but that after I eat anything it will blow right back up again (especially by the end of the day). I spoke with my doctor, and she said all of her patients had various reactions. That some took months or even a year for the bloating to go down. I am just frustrated by it and would prefer not to cut out restaurants because of cross-contamination if I don't have to (as it is so socially isolating). Additionally, since I've cut out the green Naked Juice, the only symptom I have is the bloating (no abdominal pain/nausea/etc.).

 

Thanks!

0

Share this post


Link to post
Share on other sites

You definitely could have been being contaminated by the wheat and barley grass.  In their pure form, grasses do not contain gluten.  But during the processing it is easy for it to become contaminated.  So while some products can contain wheat and/or barley grass and still be labeled gluten free because they test to less than 20ppm, if the product is not labeled gluten free then you have no idea how badly the grasses have been contaminated.

http://celiacdisease.about.com/od/everydaymedicalissues/f/Are-Wheat-Grass-And-Barley-Grass-Gluten-Free.htm

 

If you've been drinking this every day, then you've really only been truly gluten free for 2 weeks.  IMO... you could definitely still have some leftover bloat.  Another possibility is that your good/bad bacteria balance could be off.  The probiotics can help this but it can take quite awhile - especially if you had Celiac for a long time prior to diagnosis or if you've ever taken antibiotics.  Colosan can help with this (if you search for Colosan I posted some information about it in a couple of other threads).

 

One other thing that can help is digestive enzymes.  Folks with Celiac have a difficult time breaking down their food to where it is easily digestible and a digestive enzyme can really help with this process and reduce gas and bloat.

 

Finally, if you're eating gassy foods (i.e. raw veggies) I have found Bean Zyme to be really helpful.  Bean Zyme is the gluten free version of Bean-O (and it's cheaper too).  You can Google it and order it online.

0

Share this post


Link to post
Share on other sites

You definitely could have been being contaminated by the wheat and barley grass.  In their pure form, grasses do not contain gluten.  But during the processing it is easy for it to become contaminated.  So while some products can contain wheat and/or barley grass and still be labeled gluten free because they test to less than 20ppm, if the product is not labeled gluten free then you have no idea how badly the grasses have been contaminated.

http://celiacdisease.about.com/od/everydaymedicalissues/f/Are-Wheat-Grass-And-Barley-Grass-Gluten-Free.htm

 

If you've been drinking this every day, then you've really only been truly gluten free for 2 weeks.  IMO... you could definitely still have some leftover bloat.  Another possibility is that your good/bad bacteria balance could be off.  The probiotics can help this but it can take quite awhile - especially if you had Celiac for a long time prior to diagnosis or if you've ever taken antibiotics.  Colosan can help with this (if you search for Colosan I posted some information about it in a couple of other threads).

 

One other thing that can help is digestive enzymes.  Folks with Celiac have a difficult time breaking down their food to where it is easily digestible and a digestive enzyme can really help with this process and reduce gas and bloat.

 

Finally, if you're eating gassy foods (i.e. raw veggies) I have found Bean Zyme to be really helpful.  Bean Zyme is the gluten free version of Bean-O (and it's cheaper too).  You can Google it and order it online.

Thank you so much! I will definitely check out Colosan, Bean Zyme, and digestive enzymes. I truly appreciate your help :)

0

Share this post


Link to post
Share on other sites




:)   Good luck - please come back and let us know how you make out and what you find works for you.  Hopefully others will chime in with other suggestions too.

0

Share this post


Link to post
Share on other sites

I think you are still getting glutened. It can take weeks to heal from just one exposure. And if you keep getting exposed....... Did you get a chance to read the newbie thread? One suggestion is to eat whole foods prepared by your hands. Even though you think your salad is fine at your fav restaurant, the chances of cross contamination are very high. Really! The lowest paid kitchen staff prepares the salads......

Your shake? Ditch it. I checked the website. The claim is gluten free but I could not find a gluten-free certification. Has the company been certified or have they done testing? You might want to call them to confirm. So, the ingredients may be gluten free, but there might have been cross contamination at the supplier level. Some large manufacturers are good about testing, but this little company might not.

Prepare all your food until you start to see results. It is worth a try.

Cooties has some excellent suggestions to aid in healing. Good luck!

0

Share this post


Link to post
Share on other sites

I think you are still getting glutened. It can take weeks to heal from just one exposure. And if you keep getting exposed....... Did you get a chance to read the newbie thread? One suggestion is to eat whole foods prepared by your hands. Even though you think your salad is fine at your fav restaurant, the chances of cross contamination are very high. Really! The lowest paid kitchen staff prepares the salads......

Your shake? Ditch it. I checked the website. The claim is gluten free but I could not find a gluten-free certification. Has the company been certified or have they done testing? You might want to call them to confirm. So, the ingredients may be gluten free, but there might have been cross contamination at the supplier level. Some large manufacturers are good about testing, but this little company might not.

Prepare all your food until you start to see results. It is worth a try.

Cooties has some excellent suggestions to aid in healing. Good luck!

Thank you cyclingladay,

 

I appreciate your reply.  I definitely need to check out the newbie thread. I think I will resist eating out for a month to see if I notice any difference (I had just hoped I wasn't that sensitive to gluten :/  I started off only being sensitive to food with high concentrations of gluten (bread, cereal, bagels, etc), so I used to be able to get away with a bite of gluten here and there. Now I seem to have a reaction to simple cross-contamination--is it possible to become more sensitive as the disease progresses?

 

As for Naked Juice, I just sent them an email to see if they were certified gluten-free and will post a reply when/if I hear back.

 

Thank you!

0

Share this post


Link to post
Share on other sites

Thank you cyclingladay,

 

I appreciate your reply.  I definitely need to check out the newbie thread. I think I will resist eating out for a month to see if I notice any difference (I had just hoped I wasn't that sensitive to gluten :/  I started off only being sensitive to food with high concentrations of gluten (bread, cereal, bagels, etc), so I used to be able to get away with a bite of gluten here and there. Now I seem to have a reaction to simple cross-contamination--is it possible to become more sensitive as the disease progresses?

 

As for Naked Juice, I just sent them an email to see if they were certified gluten-free and will post a reply when/if I hear back.

 

Thank you!

 

People with Celiac disease should not eat any gluten - whether they think they are "sensitive" or not.  Even if you don't feel it, it is still doing damage.

 

http://www.cureceliacdisease.org/medical-professionals/guide/treatment

 

"Eating any gluten, no matter how small an amount, can damage the intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms."

0

Share this post


Link to post
Share on other sites

Karen is right -- you are either gluten free or not. My only celiac disease symptom was anemia and I was shocked that my biopsy revealed moderate to severe intestinal damage.

0

Share this post


Link to post
Share on other sites

Ditto to what they said.  I had no symptoms when I was diagnosed but my biopsy showed moderate to severe villi damage.

Also, once I got the gluten out of my system and I accidentally got a tiny bit of it I had a bad reaction to it.  Felt like having food poisoning.  So yes, your reaction to it can definitely vary and get worse over time.  But even without outward symptoms you're doing damage to your body.

0

Share this post


Link to post
Share on other sites

Ditto to what they said.  I had no symptoms when I was diagnosed but my biopsy showed moderate to severe villi damage.

Also, once I got the gluten out of my system and I accidentally got a tiny bit of it I had a bad reaction to it.  Felt like having food poisoning.  So yes, your reaction to it can definitely vary and get worse over time.  But even without outward symptoms you're doing damage to your body.

Thanks to all. I did not realize the large difference between "gluten free" and "certified gluten free." I may have been glutening myself for months now  :wacko:

0

Share this post


Link to post
Share on other sites

Like I said, some prepared foods may be naturally gluten free, but there could be a risk of contamination. You just never know. When in doubt, I google the product seeking responses from those who have celiac disease. I call the manufacturer. If the response is intelligent, I will give the product a try. If not, I experiment on my husband. He has been gluten-free for 13 years and can take the hit. I am still healing and need to build bone. I can not afford any mess ups. Often, he will eat out, but it is still too risky for me.

Now that I have excluded gluten, if I accidentally consume any (usually outside the home), I can have a bad reaction within an hour and then am sick for over a week. Not killer sick, but enough to ruin a week.

Here's to a flat tummy!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,503
  • Topics

  • Posts

    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined