Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Question For The Ladies!
0

7 posts in this topic

Currently just over 5 months gluten free with some symptoms getting worse during healing process. Also new symptoms which might be related to rheumatology.

 

 

Out of curiosity, did anyone else notice symptoms being much worse just before your monthly cycle arrived or also perhaps around the time your body was trying to ovulate? If so, did that get better with time? Did this happen to you after going gluten free? Which kind of symptoms were worse for you during that time?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I actually always had really bad GI symptoms around the time my period would start. I just chalked this up to 'hormone changes' but now I know the gas & constipation (ugh) were due to celiac and somehow just got worse around that time. 

0

Share this post


Link to post
Share on other sites

I have celiac and lupus and mentioned to my rheumatologist that when I an PMSing everything just gets a little worse.  He said inflammation increases at that time and especially with lupus patients (lupus is an inflammatory disease) that is not uncommon.

1

Share this post


Link to post
Share on other sites

Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy.  LOL ;)

 

I did not notice any monthly effect on my arthralgias.

0

Share this post


Link to post
Share on other sites

Let me say that the first year is the roughest. The first year after going GlutenFree I glutened myself a lot & reactions were tenfold compared to before diagnosis. I also started to get cold sores on a regular basis near my period that I always had to stave off, which didn't happen previous. Have you been tested for vitamin & mineral deficiencies? That's a huge problem during the healing process cause body may not be absorbing from food or of you are taking supplements. I started getting vitamin B shots and taking rest of what I needed with dropper vitamins underneath my tongue. Also make sure you're getting enough zinc n vitamin D as well. Plus there are a wealth of fruits, veggies and herbs that help w/inflammation & the arthritis. Walnuts, lemon, asparagus, garlic & cauliflower are just a few. Have you tried an elimination diet? Sugar, dairy, soy, corn, etc...

0

Share this post


Link to post
Share on other sites




Kirsten - I'm pretty much down to plain meat, fruits and vegetables. I was told tonight that recent blood work confirms that I also have lupus. So this could be why. I've been beyond diligent with my diet. I have been tested for deficiencies and was tested for more earlier this week. We'll see how they look. My Vit D was real low in the fall as well as my iron. Both have improved.

0

Share this post


Link to post
Share on other sites

My entire digestive system has always cleaned itself out during the first two days of my period.  I always figured it had to do with all the muscle contractions going on in the area and being that everything is sort of connected... the bowels just kinda got in on the action too.  (Almost like a monthly spring cleaning.)  My sister is the same way and she doesn't have Celiac (that she knows of anyhow).  My OBGYN (a few different ones actually) have always said that this is normal and very common.  But then again... doctors say that about a lot of things that may be common but aren't in fact "normal".

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined