Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dermatologist Appointment Today!
0

10 posts in this topic

I'm off to the dermatologist with my 6 year old DS today! Wish us luck!

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Good luck! I think a gluten-free candy treat will be well earned!

Keep us posted.

0

Share this post


Link to post
Share on other sites

Good luck! Hoping for good things to come.

0

Share this post


Link to post
Share on other sites

Well...we're back. Thanks for the good luck messages!

 

I'm disappointed in the whole visit, but not surprised based on experiences I've read here. 

 

First off, I guess that I should be grateful that the derm didn't dismiss DH. He said it looked like a "mild" case (mild, like mildly pregnant? I felt like saying). But then said maybe not because it's only on his buttocks, lower back and hips, not elbows, knees and neck like it "should" be (grrrr). 

 

He said he couldn't find an active lesion to biopsy and that if he did a biopsy I would be disappointed with a negative result then we wouldn't be any further ahead. And that he didn't want to traumatize my son with the biopsy (??) though he understood how much I must want an actual diagnosis (uh...yes!). I did mention that I understood that the biopsy should be taken from healthy skin adjacent to an active lesion and he seemed to understand/agree...not that he actually did one.

 

Then he gave me a prescription for hydrocortisone (stronger than the one we tried months ago from my GP). He said come back in 6 weeks and we'll go from there.  When I asked about eating gluten or not he said he may as well stay off it because "it's not doing him any good". I tried to get him to tell me the point of the hydrocortisone, he just said it was to "treat it" ... and we can try other things to treat it after 6 weeks. Then he started taking about doing a biospy next time.  ARGGHghhhh...I was feeling rushed and really got flumbled up and didn't think of the right things to say until I was back in the car. 

 

I know he shouldn't do the steriod because it will negate the biopsy if he does one next time (but I forgot that in the moment). And he shouldn't be gluten-free before a biopsy either. I really feel like I screwed up despite being so prepared going in, or so I thought. 

 

So, what would you do now? 

 

This is what I'm thinking of doing:

-don't use the hydrocortisone (and say I did, that it got a bit better, but flared up when I stopped using it)

-keep him on a gluten diet  to flare up the rash and hopefully get a biopsy at our next visit (though I hate to do this obviously)

 

Our next appt is in six weeks, but he did say to call if it gets worse in that time.

 

What would you do??

0

Share this post


Link to post
Share on other sites

DO NOT beat yourself up over this!!!!! You can go in prepared as all heck & they can screw you up so bad that you forget half of what you wanted to talk about EVEN with notes! And they do rush you. You did really good considering. Yeh, I would have wanted to make a crack about "like mildly pregnant" also.  <_<

 

I am so glad you understand about the hydrocortisone cream! 

 

I don't think I would tell him you used it. I just wouldn't mention it unless he brings it up & then I would tell him that it will negate a biopsy so it wasn't a good idea to use it. Course, that's me & I tend to toss the vinegar right in their faces rather than using honey but he's already proven he doesn't know that it will fudge the biopsy soooo...... But like I say ~~~ I'm not very diplomatic AND I am not a mom bringing in her child.  I think I would be inclined to keep him on a gluten diet & if & when it flares then give him a call & tell him you want him to do a biopsy NOW.

0

Share this post


Link to post
Share on other sites




squirmingitch, I would love to give you a huge hug right now. You made me feel SO much better! You're right, I will only mention the hydrocortisone if he asks.

 

 

 

I'm still kind of unsure of what he expects an active lesion to look like. Yesterday my DS had some open lesions and then lots that were halfway healed. He wasn't actively itchy at the appointment so it looked rather calm. I don't know if the derm will be able to see an actual blister since they get scratched off right away. I'll post a picture when I have a few seconds later.

0

Share this post


Link to post
Share on other sites

Awwww hon, it's hard to be a parent. I have to hand you credit. Even harder being a parent when your child has an illness. 

 

I've been thinking.......

What I think I would REALLY do? Keep him on gluten & start looking for a new derm right away. See if you can't get him in before you have to go back to the one you saw yesterday. Hedge your bets. I have to say the derm yesterday doesn't really seem to know his stuff. My gosh! I can't believe that statement about it just being a mild case. And if you take him off gluten then a biopsy can't be done. Where is this doc coming from?????? 

1

Share this post


Link to post
Share on other sites

Awwww hon, it's hard to be a parent. I have to hand you credit. Even harder being a parent when your child has an illness. 

 

I've been thinking.......

What I think I would REALLY do? Keep him on gluten & start looking for a new derm right away. See if you can't get him in before you have to go back to the one you saw yesterday. Hedge your bets. I have to say the derm yesterday doesn't really seem to know his stuff. My gosh! I can't believe that statement about it just being a mild case. And if you tak e him off gluten then a biopsy can't be done. Where is this doc coming from?????? 

Ahh..if it were only so easy to get a new dermatologist. I'm in Canada.We need a referral from our family doctor. I really had to talk mine into giving me this one because I'd already had the emailed photo consult with the pediatric derm. And usually waiting times for a derm referral are 6-9 months! I got in to this one in only two weeks (his amazing admin did a favour for the mom of an itchy boy, I'm thinking). So..I think I'm stuck with him. But I am going to call him as soon the rash starts getting worse.

Thanks for thinking of us though squirmingitch! 

0

Share this post


Link to post
Share on other sites

Ahh..if it were only so easy to get a new dermatologist. I'm in Canada.We need a referral from our family doctor. I really had to talk mine into giving me this one because I'd already had the emailed photo consult with the pediatric derm. And usually waiting times for a derm referral are 6-9 months! I got in to this one in only two weeks (his amazing admin did a favour for the mom of an itchy boy, I'm thinking). So..I think I'm stuck with him. But I am going to call him as soon the rash starts getting worse.

Thanks for thinking of us though squirmingitch! 

There's always a catch isn't there? Loud scream of frustration!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

Okay, life gave you lemons. Let's go make some lemonade.

 

One foot in front of the other & then the next & then the next annnnnnnd breathe.

0

Share this post


Link to post
Share on other sites

:)

Yep, one foot forward...breathe and focus on the positive: we are going on a trip this weekend and I don't have to pack 5 million things to eat, DS can enjoy restaurants and a few gluteny treats. His itch hasn't been manageable the past few days and he's thrilled to be eating gluten!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,112
    • Total Posts
      919,440
  • Topics

  • Posts

    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,150
    • Most Online
      1,763

    Newest Member
    Ayryil
    Joined