Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reaction To Starch?!
0

24 posts in this topic

I know it sounds nutty but I've been feeling off and bloated, puffy, poorly tummy and generally just not me over the last couple of months.  The only change i have made is eating starch in the form of potato crisps, some corn/rice pasta, plain white rice even though my acupuncturist says I can tolerate all of those.  The only thing I can think of is something to do with the starch.

 

Does anyone else have this... or a similar reaction?  I have been starch free for the last 24 hours and even though I am starving hungry I feel much less puffy and toxic.

0

Share this post


Link to post
Share on other sites


Ads by Google:

There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

0

Share this post


Link to post
Share on other sites

There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

I get what your saying ,but she does pulse tests on me which tell her whether or not I can tolerate foods... she has been spot on with everything else. It might be SIBO or a virus perhaps that's feeding off the starch?

0

Share this post


Link to post
Share on other sites

I noticed trouble (for me) with corn starch before I realized my celiac trouble.  I think it may be hard to digest.  I also have discovered that I don't tolerate potatoes and several other starchy foods.  These intolerances are not celiac, but for me it goes along with leaky gut.  Have you considered if you might have a yeast infection?  Yeast feed on such foods, so it might be worth considering.  I am hoping I may get these starchy foods back as my digestion improves.

 

Starch bloats me.

 

Dee

0

Share this post


Link to post
Share on other sites

Yes, the yeast thing we check for regularly.  It's not showing at the moment but has done in the past. I think it may just be that too much starch my body cannot cope with digesting.  Am looking in to the SIBO possibility.

0

Share this post


Link to post
Share on other sites




There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

 

I agree. The best way most of us here have determined what foods work for us or do not work is to eliminate the food to see if we feel better. You might want to try each food you suspect to be the culprit on different days and see how you feel. It can be challenging to figure it out, but it's really worth it when you start to feel better.

 

I have found the information I learn from others on this site, many times, to be the most helpful to my recovery process. There is so much experience and knowledge here because so many have been through the same things and come out the other side. After the doctors or other health care professionals have have done what they can do with testing, the people on this site have been an invaluable resource for me to fine tune my individual food issues unique to my own body.

0

Share this post


Link to post
Share on other sites

Are you referring to starch in general or Codex Wheat Starch?  Codex is considered safe but many, many of us react to it. I wouldn't touch it with someone else's hand.

0

Share this post


Link to post
Share on other sites

No, starch in foods.  I've been off most starch except 1 Banana now for nearly three days and feel very hungry but much much better, much less achey and toxic feeling.  I've been eating potatoes, rice, rice and corn pasta... all gluten free.  I'm not intolerant to any of these (the IgG test even didn't show them up), so the only thing I can think of is something to do with the starch.  Could it be Mast Cell activation?  How would that happen?

0

Share this post


Link to post
Share on other sites

perhaps you need a digestive enzyme aimed at starch?

0

Share this post


Link to post
Share on other sites

My wife has Celiac and it looks like also has a corn allergy. Reading up on it, it seems that celiac and corn allergy is pretty common.  You might try some time cutting out corn (Warning: It's really really hard to do... glucose, dextrose, corn starch, corn syrup...) 

 

If you can manage to eliminate Corn for a few weeks, and you're still having this problem... at least you know it's not corn!  :wacko:

0

Share this post


Link to post
Share on other sites

Glucose and dextrose are highly refined sugars and will not contain any protein. They will not trigger an allergic reaction.

0

Share this post


Link to post
Share on other sites

I get what your saying ,but she does pulse tests on me which tell her whether or not I can tolerate foods... 

 

 

 

There does not seem to be any evidence this is a valid allergy test,  hon. I cannot find any Pub Med articles that say it's legit.

 

http://www.foodallergy.org/document.doc?id=238

0

Share this post


Link to post
Share on other sites

No I agree Irish Heart but at the same time I have had formal IgG tests which came back negative with things I know make me really sick like chocolate, GLUTEN, Eggs, soya, fish, dairy etc etc.  The pulse tests did diagnose these, though the IgG test didn't, so I kind of trust the pulse better.  Interestingly the dairy did not show up on the pulse test first time because I hadn't eaten any for months, then showed up when I had eaten it for a few months.  And the IgG test came up positive for that because I was eating it at the time.  So even if there are no papers (which I'm sure there are if you look at different terms rather than pulse) it 100% does work for me.

0

Share this post


Link to post
Share on other sites

http://www.pharmacology2000.com/Histamine/histamine.htm

If you scroll down to Organ system effects you'll see that with histamine release the entire cardiovascular system is affected, including blood pressure.  Here and article stipulates that IgG can also have an anaphylaxis type response.  http://www.usbiotek.com/Downloads/information/criticalReview.pdf  I'm sure that many of us have eaten some foods then found it difficult to breathe, had asthma type symptoms, then poorly tummy, I know I have!  I don't think it is as simple as saying that a pulse test is ineffective and unproven, when you look at the whole body changes for both IgE and IgG reactions - particularly bad ones such as the reactions a lot of us may be experiencing.

 

BTW, the pulse test is not as simple as detecting a raise in pulse (which is common when we eat food), it is more complex.  Often when I'm tested for a food my pulse will slow down or even completely disappear - such as happened when my daughter just held a food that she extremely allergic to (she was in A&E with the last oral ingestion reaction) up against her cheek in a plastic bag!  The tests had to be stopped for 10 minutes because her pulse just disappeared.

0

Share this post


Link to post
Share on other sites

No I agree Irish Heart but at the same time I have had formal IgG tests which came back negative with things I know make me really sick like chocolate, GLUTEN, Eggs, soya, fish, dairy etc etc. 

 

That's because IgG test for food intolerances are also invalid,. hon.

 

"There is no credible evidence that measuring IgG antibodies is useful for diagnosing food allergy or intolerance, nor that IgG antibodies cause symptoms. In fact, IgG antibodies reflect exposure to allergen but not the presence of disease. The exception is that gliadin IgG antibodies are sometimes useful in monitoring adherence to a gluten-free diet patients with histologically confirmed coeliac disease. Otherwise, inappropriate use of food allergy testing  (or misinterpretation of results) in patients with inhalant allergy, for example, may lead to inappropriate and unnecessary dietary restrictions, with particular nutritional implications in children. Despite studies showing the uselessness of this technique, it continues to be promoted in the community, even for diagnosing disorders for which no evidence of immune system involvement exists."

 

 

 

Maybe you should read through the science of testing:

 

http://www.sciencebasedmedicine.org/igg-food-intolerance-tests-what-does-the-science-say/

0

Share this post


Link to post
Share on other sites

Honestly.. (please don't take umbrage at this), the 'science' community has so many holes in it, it is reminiscent of a sieve.  You should have a listen to all the interviews with the top Gluten scientists/researchers and professors from the Gluten Summit last year.  Where does the quote from above come from?  From the Science of testing link you put below.  

 

You cannot take as given what anyone in the formal healthcare chain says.  A good example is my son reacting to egg 7 hours after eating it when he was 7 months old.  The NHS consultant said it could not have been an allergic reaction to egg as it was too long in manifesting (second exposure btw), then when my daughter had her near anaphylaxis to something she ate the A&E doctor said explicitly that it was likely something she ate whilst she was away from home with her Dad, which was over 36 hours previously.  I questioned her on this and she said that it is very common in children to have this delayed kind of reaction... so who am I meant to believe, the consultant, who technically should know everything, or the A&E doctor who was younger and very aware of the constant discoveries in the field of IgE and IgG allergies.  I actually said that I was IgG sensitive to a number of foods, to which she said... well that is allergy.  And yet another doctor, on asking for my daughter to be properly tested for this compound, said IgG was also allergy.  I have had two conformations in different forms of my IgG allergy to milk and since eliminating it have felt 100% better... one was pulse and the other was IgG protein sensitivity assay.  My ex. boyfriend had a really rough day at Christmas a year ago, felt like he was going to have a heart attack.  Two months later he did the IgG test and guess what he reacts to?  TURKEY!  Traditional medical science is very keen to lambast theories on IgG testing... and in a way I agree it is not 100% effective because if you eliminate a food you won't get a reaction - as my GP told me numerous times so it missed a raft of my sensitivities... which were picked up by the acupuncturist.  

 

And as for limiting children's food.... I don't do that, I just go with my instinct with my two.  If they avidly don't want to eat something, I think that often that is a sign they can't handle that particular food, if they have an allergic reaction that food is out, if they can't poop while they drink milk, I experiment by taking that out and challenging it.  My kids are not great eaters, as I suspect and have yet to confirm that they both suffer from eating gluten, but I haven't cut it completely out of their diets yet because I don't want them getting the severe exposure symptoms that I get.  Mother's gut instinct is very often right.

0

Share this post


Link to post
Share on other sites

You did not even read the article I linked to or you would have read all the credible various sources included in it, so I guess I will just say "ok, I tried".

 

As for the gluten summit--the doctors I find most credible out of that group of people are  Fasano and Hadjivassilou. Dr. F -and every credible celiac center there is--- says the same thing: There are no valid IgG food sensitivity tests. 

 

Other testing (hair analysis, live blood cell testing, kinesiology, pulse testing, muscle testing) has absolutely zero evidence backing it, except the word of practitioners who utilize it.

 

But if you say it works for you, then, I can't argue against that at all. Nor would I. 

 

I am just trying to tell you what evidence there IS out there so you have a balanced view..

 

But, you have your opinion about what works, so I will just leave it at that. Best wishes to you!

0

Share this post


Link to post
Share on other sites

The gluten summit had some "real" researchers and some internet celebrities selling unproven tests and products.  I think it is up to everyone to look at the credentials & even use some common sense.  My favorite are these tests where you are blindfolded and hold a sealed container of a food & they claim you have a reaction to the food - how does that even make sense?  You aren't eating it, touching it or smelling it. Sounds like one of those games you play at a sleepover.   :D

 

Anyway, I would never recommend these fringe treatments/test/practitioners until there is some real proof that they work.  The part that bothers me are the people who really don't understand the body or the science behind how some of these things work or don't work.  They see a shiny website or office and people who act like they care about their health.  I feel they are getting taken advantage of.  I wish the US would regulate some of this nonsense.  they regulate a lot of other things....

 

Rant over - if removing a food makes you feel better - that is a good indicator that it might not be right for you however you came to that conclusion.

0

Share this post


Link to post
Share on other sites

 

I Often when I'm tested for a food my pulse will slow down or even completely disappear - such as happened when my daughter just held a food that she extremely allergic to (she was in A&E with the last oral ingestion reaction) up against her cheek in a plastic bag!  The tests had to be stopped for 10 minutes because her pulse just disappeared.

 

 

I just re-read this.  Not sure how I didn't catch this the first time - Are you saying your child had no pulse?  Dead?  No one called an ambulance?  Did someone do CPR?  I am sorry but this whole thing isn't really adding up anymore. At first I thought you were someone with real health issues, but now I am getting the feeling you might be playing with us.  No one lets a kid's pulse stop and calmly waits 10 minutes and it miraculously starts again (which can actually happen but usually requires CPR or some intervention) and then continues food allergy tests.  Please tell me I miss-understood or you made a typo....

0

Share this post


Link to post
Share on other sites

I'm too tired to respond to your comments above.  It works for me. I don't come on here to be questioned on my tests and how i go about getting an idea of what I can and can't eat, I came on here to ask if anyone has problems with starch and inflammation/itchiness possible IgG type reactions.  I guess now you'll be telling me that because I haven't had a biopsy I should eat gluten.

0

Share this post


Link to post
Share on other sites

BTW, in chinese medicine a pulse disappearing, means it is faint... my daughter was not DEAD.  Please stop being so melodramatic.

0

Share this post


Link to post
Share on other sites

I've decided to leave this forum because nobody ever really listens to what the problem is and provides useful answers.  Everyone seems to want to prove what they know is over and above everyone else.  It is not conducive to healing, or healthy conversation, or progress in the physical problems that a lot of us are left with.  Good luck to you all and perhaps just answer the question next time.

0

Share this post


Link to post
Share on other sites

BTW, in chinese medicine a pulse disappearing, means it is faint... my daughter was not DEAD.  Please stop being so melodramatic.

IF someone told me a person has no pulse or even a very faint pulse - I would be scared and seek immediate medical attention.

0

Share this post


Link to post
Share on other sites

Glucose and dextrose are highly refined sugars and will not contain any protein. They will not trigger an allergic reaction.

Peter,

 

Great to know!  We've been trying to sort out which corn byproducts to be careful of. 

Do you have a sense of which corn based products to steer clear of?  Corn Meal, Corn Flour, and Corn Starch most obviously.

 

Thanks!  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,620
  • Topics

  • Posts

    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined