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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Reaction To Starch?!
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24 posts in this topic

I know it sounds nutty but I've been feeling off and bloated, puffy, poorly tummy and generally just not me over the last couple of months.  The only change i have made is eating starch in the form of potato crisps, some corn/rice pasta, plain white rice even though my acupuncturist says I can tolerate all of those.  The only thing I can think of is something to do with the starch.

 

Does anyone else have this... or a similar reaction?  I have been starch free for the last 24 hours and even though I am starving hungry I feel much less puffy and toxic.

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There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

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There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

I get what your saying ,but she does pulse tests on me which tell her whether or not I can tolerate foods... she has been spot on with everything else. It might be SIBO or a virus perhaps that's feeding off the starch?

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I noticed trouble (for me) with corn starch before I realized my celiac trouble.  I think it may be hard to digest.  I also have discovered that I don't tolerate potatoes and several other starchy foods.  These intolerances are not celiac, but for me it goes along with leaky gut.  Have you considered if you might have a yeast infection?  Yeast feed on such foods, so it might be worth considering.  I am hoping I may get these starchy foods back as my digestion improves.

 

Starch bloats me.

 

Dee

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Yes, the yeast thing we check for regularly.  It's not showing at the moment but has done in the past. I think it may just be that too much starch my body cannot cope with digesting.  Am looking in to the SIBO possibility.

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There are plenty of intolerances that any of us can have that have nothing to do with gluten. It is entirely possible that you can't tolerate potatoes, or corn, or rice, or nightshades, or grains. It may be a challenge to figure out which it is but it sounds like it's one of those for sure. (Also unrelated, but unless your acupuncturist is also a dietitian or nutritionist they aren't likely the best source of dietary advice regarding celiac and acceptable foods.)

 

I agree. The best way most of us here have determined what foods work for us or do not work is to eliminate the food to see if we feel better. You might want to try each food you suspect to be the culprit on different days and see how you feel. It can be challenging to figure it out, but it's really worth it when you start to feel better.

 

I have found the information I learn from others on this site, many times, to be the most helpful to my recovery process. There is so much experience and knowledge here because so many have been through the same things and come out the other side. After the doctors or other health care professionals have have done what they can do with testing, the people on this site have been an invaluable resource for me to fine tune my individual food issues unique to my own body.

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Are you referring to starch in general or Codex Wheat Starch?  Codex is considered safe but many, many of us react to it. I wouldn't touch it with someone else's hand.

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No, starch in foods.  I've been off most starch except 1 Banana now for nearly three days and feel very hungry but much much better, much less achey and toxic feeling.  I've been eating potatoes, rice, rice and corn pasta... all gluten free.  I'm not intolerant to any of these (the IgG test even didn't show them up), so the only thing I can think of is something to do with the starch.  Could it be Mast Cell activation?  How would that happen?

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perhaps you need a digestive enzyme aimed at starch?

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My wife has Celiac and it looks like also has a corn allergy. Reading up on it, it seems that celiac and corn allergy is pretty common.  You might try some time cutting out corn (Warning: It's really really hard to do... glucose, dextrose, corn starch, corn syrup...) 

 

If you can manage to eliminate Corn for a few weeks, and you're still having this problem... at least you know it's not corn!  :wacko:

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Glucose and dextrose are highly refined sugars and will not contain any protein. They will not trigger an allergic reaction.

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I get what your saying ,but she does pulse tests on me which tell her whether or not I can tolerate foods... 

 

 

 

There does not seem to be any evidence this is a valid allergy test,  hon. I cannot find any Pub Med articles that say it's legit.

 

http://www.foodallergy.org/document.doc?id=238

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No I agree Irish Heart but at the same time I have had formal IgG tests which came back negative with things I know make me really sick like chocolate, GLUTEN, Eggs, soya, fish, dairy etc etc.  The pulse tests did diagnose these, though the IgG test didn't, so I kind of trust the pulse better.  Interestingly the dairy did not show up on the pulse test first time because I hadn't eaten any for months, then showed up when I had eaten it for a few months.  And the IgG test came up positive for that because I was eating it at the time.  So even if there are no papers (which I'm sure there are if you look at different terms rather than pulse) it 100% does work for me.

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http://www.pharmacology2000.com/Histamine/histamine.htm

If you scroll down to Organ system effects you'll see that with histamine release the entire cardiovascular system is affected, including blood pressure.  Here and article stipulates that IgG can also have an anaphylaxis type response.  http://www.usbiotek.com/Downloads/information/criticalReview.pdf  I'm sure that many of us have eaten some foods then found it difficult to breathe, had asthma type symptoms, then poorly tummy, I know I have!  I don't think it is as simple as saying that a pulse test is ineffective and unproven, when you look at the whole body changes for both IgE and IgG reactions - particularly bad ones such as the reactions a lot of us may be experiencing.

 

BTW, the pulse test is not as simple as detecting a raise in pulse (which is common when we eat food), it is more complex.  Often when I'm tested for a food my pulse will slow down or even completely disappear - such as happened when my daughter just held a food that she extremely allergic to (she was in A&E with the last oral ingestion reaction) up against her cheek in a plastic bag!  The tests had to be stopped for 10 minutes because her pulse just disappeared.

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No I agree Irish Heart but at the same time I have had formal IgG tests which came back negative with things I know make me really sick like chocolate, GLUTEN, Eggs, soya, fish, dairy etc etc. 

 

That's because IgG test for food intolerances are also invalid,. hon.

 

"There is no credible evidence that measuring IgG antibodies is useful for diagnosing food allergy or intolerance, nor that IgG antibodies cause symptoms. In fact, IgG antibodies reflect exposure to allergen but not the presence of disease. The exception is that gliadin IgG antibodies are sometimes useful in monitoring adherence to a gluten-free diet patients with histologically confirmed coeliac disease. Otherwise, inappropriate use of food allergy testing  (or misinterpretation of results) in patients with inhalant allergy, for example, may lead to inappropriate and unnecessary dietary restrictions, with particular nutritional implications in children. Despite studies showing the uselessness of this technique, it continues to be promoted in the community, even for diagnosing disorders for which no evidence of immune system involvement exists."

 

 

 

Maybe you should read through the science of testing:

 

http://www.sciencebasedmedicine.org/igg-food-intolerance-tests-what-does-the-science-say/

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Honestly.. (please don't take umbrage at this), the 'science' community has so many holes in it, it is reminiscent of a sieve.  You should have a listen to all the interviews with the top Gluten scientists/researchers and professors from the Gluten Summit last year.  Where does the quote from above come from?  From the Science of testing link you put below.  

 

You cannot take as given what anyone in the formal healthcare chain says.  A good example is my son reacting to egg 7 hours after eating it when he was 7 months old.  The NHS consultant said it could not have been an allergic reaction to egg as it was too long in manifesting (second exposure btw), then when my daughter had her near anaphylaxis to something she ate the A&E doctor said explicitly that it was likely something she ate whilst she was away from home with her Dad, which was over 36 hours previously.  I questioned her on this and she said that it is very common in children to have this delayed kind of reaction... so who am I meant to believe, the consultant, who technically should know everything, or the A&E doctor who was younger and very aware of the constant discoveries in the field of IgE and IgG allergies.  I actually said that I was IgG sensitive to a number of foods, to which she said... well that is allergy.  And yet another doctor, on asking for my daughter to be properly tested for this compound, said IgG was also allergy.  I have had two conformations in different forms of my IgG allergy to milk and since eliminating it have felt 100% better... one was pulse and the other was IgG protein sensitivity assay.  My ex. boyfriend had a really rough day at Christmas a year ago, felt like he was going to have a heart attack.  Two months later he did the IgG test and guess what he reacts to?  TURKEY!  Traditional medical science is very keen to lambast theories on IgG testing... and in a way I agree it is not 100% effective because if you eliminate a food you won't get a reaction - as my GP told me numerous times so it missed a raft of my sensitivities... which were picked up by the acupuncturist.  

 

And as for limiting children's food.... I don't do that, I just go with my instinct with my two.  If they avidly don't want to eat something, I think that often that is a sign they can't handle that particular food, if they have an allergic reaction that food is out, if they can't poop while they drink milk, I experiment by taking that out and challenging it.  My kids are not great eaters, as I suspect and have yet to confirm that they both suffer from eating gluten, but I haven't cut it completely out of their diets yet because I don't want them getting the severe exposure symptoms that I get.  Mother's gut instinct is very often right.

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You did not even read the article I linked to or you would have read all the credible various sources included in it, so I guess I will just say "ok, I tried".

 

As for the gluten summit--the doctors I find most credible out of that group of people are  Fasano and Hadjivassilou. Dr. F -and every credible celiac center there is--- says the same thing: There are no valid IgG food sensitivity tests. 

 

Other testing (hair analysis, live blood cell testing, kinesiology, pulse testing, muscle testing) has absolutely zero evidence backing it, except the word of practitioners who utilize it.

 

But if you say it works for you, then, I can't argue against that at all. Nor would I. 

 

I am just trying to tell you what evidence there IS out there so you have a balanced view..

 

But, you have your opinion about what works, so I will just leave it at that. Best wishes to you!

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The gluten summit had some "real" researchers and some internet celebrities selling unproven tests and products.  I think it is up to everyone to look at the credentials & even use some common sense.  My favorite are these tests where you are blindfolded and hold a sealed container of a food & they claim you have a reaction to the food - how does that even make sense?  You aren't eating it, touching it or smelling it. Sounds like one of those games you play at a sleepover.   :D

 

Anyway, I would never recommend these fringe treatments/test/practitioners until there is some real proof that they work.  The part that bothers me are the people who really don't understand the body or the science behind how some of these things work or don't work.  They see a shiny website or office and people who act like they care about their health.  I feel they are getting taken advantage of.  I wish the US would regulate some of this nonsense.  they regulate a lot of other things....

 

Rant over - if removing a food makes you feel better - that is a good indicator that it might not be right for you however you came to that conclusion.

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I Often when I'm tested for a food my pulse will slow down or even completely disappear - such as happened when my daughter just held a food that she extremely allergic to (she was in A&E with the last oral ingestion reaction) up against her cheek in a plastic bag!  The tests had to be stopped for 10 minutes because her pulse just disappeared.

 

 

I just re-read this.  Not sure how I didn't catch this the first time - Are you saying your child had no pulse?  Dead?  No one called an ambulance?  Did someone do CPR?  I am sorry but this whole thing isn't really adding up anymore. At first I thought you were someone with real health issues, but now I am getting the feeling you might be playing with us.  No one lets a kid's pulse stop and calmly waits 10 minutes and it miraculously starts again (which can actually happen but usually requires CPR or some intervention) and then continues food allergy tests.  Please tell me I miss-understood or you made a typo....

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I'm too tired to respond to your comments above.  It works for me. I don't come on here to be questioned on my tests and how i go about getting an idea of what I can and can't eat, I came on here to ask if anyone has problems with starch and inflammation/itchiness possible IgG type reactions.  I guess now you'll be telling me that because I haven't had a biopsy I should eat gluten.

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BTW, in chinese medicine a pulse disappearing, means it is faint... my daughter was not DEAD.  Please stop being so melodramatic.

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I've decided to leave this forum because nobody ever really listens to what the problem is and provides useful answers.  Everyone seems to want to prove what they know is over and above everyone else.  It is not conducive to healing, or healthy conversation, or progress in the physical problems that a lot of us are left with.  Good luck to you all and perhaps just answer the question next time.

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BTW, in chinese medicine a pulse disappearing, means it is faint... my daughter was not DEAD.  Please stop being so melodramatic.

IF someone told me a person has no pulse or even a very faint pulse - I would be scared and seek immediate medical attention.

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Glucose and dextrose are highly refined sugars and will not contain any protein. They will not trigger an allergic reaction.

Peter,

 

Great to know!  We've been trying to sort out which corn byproducts to be careful of. 

Do you have a sense of which corn based products to steer clear of?  Corn Meal, Corn Flour, and Corn Starch most obviously.

 

Thanks!  

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