Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

6 Month Follow-Up Blood Test Results Question - Ttg Iga Still Elevated
0

13 posts in this topic

Hi Everyone,

I just picked up my blood work results, so I could look them over before my 6 month post diagnosis follow up appointment I have tomorrow. I was surprised to see that my TTG IGA level has lowered, but is still high and above the normal range. It was also high when I had blood work done at 3 1/2 months post diagnosis. I had posted a question here about it at that time, and it was mentioned that it should be in normal range around 6 months, and if not, it could be due to another auto immune disease.

Here are my results from diagnosis, 3 1/2 month and 6 months for reference. The numbers for all of these test should be less than 20 to be considered in the normal reference range.

At Diagnosis:

TTG IGA 157

TTG IGG 8

Gliadin AB IGA 170

Gliadin AB IGG 65

At 3 1/2 Months Gluten Free:

TTG IGA 34

TTG IGG 4

Gliadin AB IGA 18

Gliadin AB IGG 19

At 6 Months Gluten Free:

TTG IGA 26

TTG IGG 4

Gliadin AB IGA 12

Gliadin AB IGG 11

My other celiac related numbers have continued to fall to numbers I am very happy with and are all under 20 like they should be, but not TTG IGA. I am wondering what other auto immune issues could cause that number to remain elevated? I would like to bring this possibility up with my doctor tomorrow. I am sure he will say I am probably still getting trace amounts of gluten in my diet somewhere, but I don't think so. Also, wouldn't the other numbers still be elevated above normal range if that we're true?

Thanks in advance!

0

Share this post


Link to post
Share on other sites


Ads by Google:

They have continually come down over six months.  I think you simply need to wait for the one year mark.  Six months ago you had two celiac antibodies over 150...that is very high, now they are nearly all in the normal ranges.

 

Have your Iron or D levels risen since removing gluten?  As long as nutrient levels are correcting, celiac antibody levels are falling and symptoms improve -- it seems that you are indeed living gluten-free.  If you are worried there are any areas that gluten is getting in, tighten those, but I'd try not to worry until at least the one year mark - based on celiac antibody levels you have reported here.

 

Hang in there!

 

Great work getting those numbers down quickly :)

0

Share this post


Link to post
Share on other sites

Thanks GottaSki!

I am very happy to see that the numbers are consistently dropping. Just that one little nagging high number is still out there.

I guess I am a little on the defense about the elevated TTG IGA, since the physicians assistant insisted that the level was high at 3 1/2 months because I had to be ingesting gluten. I remember asking you all about that at that time and everyone here said that is not always true, but I am sure it will come up tomorrow. I get to see the actual doctor tomorrow though, so maybe he won't give me a hard time about it, since hopefully he is more knowledgeable about the healing and recovery time frame.

My Vitamin D and Iron are slowly improving, but need a little more time too.

I will take your advice and won't worry about these things as long as everything is continuing to improve.

0

Share this post


Link to post
Share on other sites

How did your appointment go?

0

Share this post


Link to post
Share on other sites

How did your appointment go?

Thanks for asking!

I actually had to cancel the appointment at the last minute because I somehow threw my lower back out and can barely walk (second time in three weeks!).

I can't get in to see him again until mid May, so I will have to wait until then to go over all of my results with him.

0

Share this post


Link to post
Share on other sites




Oh no! I hope you feel better soon!

0

Share this post


Link to post
Share on other sites

Thanks for asking!

I actually had to cancel the appointment at the last minute because I somehow threw my lower back out and can barely walk (second time in three weeks!).

I can't get in to see him again until mid May, so I will have to wait until then to go over all of my results with him.

 

Feel Better!!!!

 

Maybe request one more tTG-IgA right before the May appt, since it was the only positive...perhaps it will be even lower by then???

0

Share this post


Link to post
Share on other sites

Oh no! I hope you feel better soon!

Thanks!

I'm hoping it will be better by the weekend. I really need to get on a regular exercise routine to strengthen my back. I have been enjoying babying and pampering myself since my diagnosis 6 months ago, and haven't been exercising and have gained some weight. I guess it's time to start watching my calories and exercising now that my digestive system is so much better :-).

0

Share this post


Link to post
Share on other sites

Feel Better!!!!

 

Maybe request one more tTG-IgA right before the May appt, since it was the only positive...perhaps it will be even lower by then???

Thanks!

That is a great idea. I will make sure to ask for that test before my appointment. I never would have thought of that, so thanks again.

I looked over my blood work more carefully after you asked before if my deficiencies were improving. I was very excited to see how much things have improved in 6 months. At the time of my diagnosis I had 13 test that came back very much out of normal range. After 6 months, I now only have 5 test that are just slightly out of normal range. I'm amazed at what a impact 6 months of gluten free living has had on my body!

0

Share this post


Link to post
Share on other sites

Thanks!

That is a great idea. I will make sure to ask for that test before my appointment. I never would have thought of that, so thanks again.

I looked over my blood work more carefully after you asked before if my deficiencies were improving. I was very excited to see how much things have improved in 6 months. At the time of my diagnosis I had 13 test that came back very much out of normal range. After 6 months, I now only have 5 test that are just slightly out of normal range. I'm amazed at what a impact 6 months of gluten free living has had on my body!

 

You are welcome...always glad to help...took me forever to learn out to manage my own medical tests.

 

Great news that six months has improved those nutrient numbers...they will continue to improve.

 

As for the weight...you and your body have been through a major change these past months -- go easy on yourself -- do try to take a short walk each day...even if it is down the block, before you know it you'll be raring for more :)

0

Share this post


Link to post
Share on other sites

Ouch. I have back issues too. It can make things difficult.  :(

 

Your numbers have improved nicely. I agree with Lisa that I bet they will keep coming down as time goes by. Some of us just take longer - I was almost down to normal at just over one year gluten-free... Almost. LOL  I do have one of the other possible causes of a slightly elevated tTG IgA though, so that could affect my score.

 

The other most common causes of a weak positive tTG IgA are diabetes, crohn's, colitis, chronic liver disease, thyroiditis, and infection... I think I'm missing one... Chances are you are just one of the slow ones though.  :)

 

Best wishes.  Hope you feel better soon.

0

Share this post


Link to post
Share on other sites

Hi Everyone,

I just wanted to follow up on my original post with the great news I received today that my TTG IGA is now 17. It took almost 8 months, but all of my Celiac numbers are now below the normal reference range of less than 20! I thought I would share my excitement with the only other people in the world that could relate to being happy about this :).

I did mention to the doctor that his Physicians Assistant had called me after my previous two test results came back to tell me that I must be consuming gluten because my TTG IGA was not under the normal reference range of 20. He was surprised by this and said he would talk to her about it. He then said that it's not something they usually focus on at all, and it takes time for the numbers to drop and I did a great job sticking to the gluten free diet - just like you all said.

Thanks to everyone here for the invaluable advice you have given. I couldn't have gotten this far without it. :wub:

0

Share this post


Link to post
Share on other sites

Hi Everyone,

I just wanted to follow up on my original post with the great news I received today that my TTG IGA is now 17. It took almost 8 months, but all of my Celiac numbers are now below the normal reference range of less than 20! I thought I would share my excitement with the only other people in the world that could relate to being happy about this :).

I did mention to the doctor that his Physicians Assistant had called me after my previous two test results came back to tell me that I must be consuming gluten because my TTG IGA was not under the normal reference range of 20. He was surprised by this and said he would talk to her about it. He then said that it's not something they usually focus on at all, and it takes time for the numbers to drop and I did a great job sticking to the gluten free diet - just like you all said.

Thanks to everyone here for the invaluable advice you have given. I couldn't have gotten this far without it. :wub:

I'm super excited for you! I get my follow up blood work done next week...come on low numbers!
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined