Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Anyone Know Anything About Disaccharidase Deficiency
0

2 posts in this topic

Hey guys

I went to my Gastro yesterday and because I'm almost done with college and I might be moving she gave me a copy of all of my records. Since being gluten free (5 years) I have had almost no relief from any symptoms and I'm looking for some answers, and no one has been able to give me any.

While I was reading through my records I stumbled across my original biopsy (the evil one that confirmed Celiacs) There was an addendum with a disaccharidase analysis. According to this test I was significantly deficient in lactase, maltase, sucrase, and palatase and it commented that I had a disaccharidase deficiency. I was never told any of this by any of my last 3 gastroenterologists. I have done a little reading and it fits my symptoms, but I don't want to jump to conclusions. Does anyone have any experience with Disaccharidase deficiency? Is this something to pursue and bring up to a Dr.? 

Thanks, 

AP

0

Share this post


Link to post
Share on other sites


Ads by Google:

Did you go Dairy Free when you went Gluten Free.  Looks like an oversight by the Doctor if she didn't tell you.  You should call this Doctor and ask her for additional testing for these deficiencies or if it just means go dairy free.  Either way you need to know what this means.  It may well be the reason you are still feeling poorly.

 

Good Luck

 

Colleen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,340
    • Total Posts
      920,475
  • Topics

  • Posts

    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
    • Ok guys!   The original post was 3 years ago!  Ingredients, manufacturing methods,  labeling, etc.  may have changed during that time.  A lot of companies have really come a long way on gluten-free in the last 3-4 years.
    • They didn't suggest any probiotic support. Ultimately the side-effects of this drug stabilized approaching the end of the course of treatment, though after it was finished, I was perhaps a bit improved, but no profound symptom resolution for me. Darn! The search goes on.
    • Thankyou I have found that I became intolerant of dairy and having cut it out feeling better but if I come into accidental consumption the symptoms are similar to that of gluten but not as severe .. Patience ay ?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,409
    • Most Online
      1,763

    Newest Member
    Daal7169
    Joined