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"best Practices" For The Newly Diagnosed

JosieToo

By JosieToo
in Coping with Celiac Disease

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JosieToo Explorer
JosieToo
Posted

Hi all,

 

I’m on a few other forums for people with Celiac Disease and I am frequently concerned by the misinformation about the disease, its treatment and the intricacies of going gluten free. I would like to put together a “first steps” guide to Celiac Disease for those who have been newly diagnosed.

 

I would love to hear your “best practices” with respect to Celiac Disease. What do you wish you’d have known when you were first diagnosed? What tips would you give to someone who has just been diagnosed and is scared and confused? What myths and misinformation do you hear about Celiac Disease? Can you share any links to other pages that offer tips for the newly diagnosed?

 

Would love your feedback! Thanks in advance.

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GF Lover Rising Star
GF Lover
Posted

Since this is not a medical Web Site, I don't feel any information gleaned from this site should be copied for use on other sites which may be out of context.  There are also copyright issues involved.  However if a member wants to give you THEIR OPINION, separate from c.com then that is their right.

 

Thanks

 

Colleen

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JosieToo Explorer
JosieToo
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Posted

Of course. I'm just looking for opinions from other members based on their experiences.

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notme Experienced
notme
Posted

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

^read that^  :)  you can search this site for other info and ask your own questions on the forum..  we are not medical professionals, just people living with celiac disease.  lots of this stuff is trial and error.  good luck!  :)

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