I am a mom to a little girl that I believe is gluten intolerant. She has had the blood tests done - negative for Celiac, but positive for the genes. with *Very High* results for possibly developing Celiac. She is 6 years old. When she does gets Gluten, We can tell because of headaches, and joint pain. She has been on a Gluten Free diet for over a year. Before the diet, she was very ill. Chronic constipation, and failure to thrive. I have had her to 2 specialist in our area. A pediatric GI doctor from St. Christopher's Hospital in Philadelphia, as well as Children's hospital of Philadelphia to see a pediatric Urologist. She is still a bed wetter, and will also have bouts with Encopresis. I am at a loss to help her. I am wondering if there are other parents that have been through what we have. Every time we see a doctor, they give me a script for Miralax, and it is frustrating to say the least. I am wondering if there are any parents that may be able to give me some direction. Thank you for listening.
Jennifer from PA