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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free Girl
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4 posts in this topic

Hello!

 

I am a mom to a little girl that I believe is gluten intolerant. She has had the blood tests done  - negative for Celiac, but positive for the genes. with *Very High* results for possibly developing Celiac. She is 6 years old. When she does gets Gluten,  We can tell because of headaches, and joint pain. She has been on a Gluten Free diet for over a year.  Before the diet, she was very ill. Chronic constipation, and failure to thrive.  I have had her to 2 specialist in our area. A pediatric GI doctor from St. Christopher's Hospital in Philadelphia, as well as Children's hospital of Philadelphia to see a pediatric Urologist. She is still a bed wetter, and will also have bouts with Encopresis.  I am at a loss to help her.  I am wondering if there are other parents that have been through what we have. Every time  we see a doctor, they give me a script for Miralax, and it is frustrating to say the least. I am wondering if there are any parents that may be able to give me some direction. Thank you for listening. :mellow:

 

Jennifer from PA

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currently, there are no tests for gluten intolerance.  if she has been tested (and had been eating gluten the whole time before testing) but she is better off the gluten, (and you said she is genetically predisposed) if it was my kid, i would let them do any other tests necessary to rule out other things.  then, if she is better without it, keep her gluten free.  you don't want to miss something else, but at the same time, if you can tell she is better and growing as she should, that's what i would do.  good luck and i hope you get it figured out  :(

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I would not worry about the bed wetting. Both my parents were bed wetters, one of their kids ( they considered themselves lucky), and two out of their five grandkids. They all out grew it by age 12. Thank goodness for the invention of pull-ups! I am the one with celiac and I was not a bed wetter, so I do not think it is related.

I can not comment about the encopresis but maybe it is like the bed wetting situation and she will out grow it. Some kids will only "go" in perfect conditions, like only in their own bathroom and no where else.

I hope you find your answers.

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Hello!

 

I am a mom to a little girl that I believe is gluten intolerant. She has had the blood tests done  - negative for Celiac, but positive for the genes. with *Very High* results for possibly developing Celiac. She is 6 years old. When she does gets Gluten,  We can tell because of headaches, and joint pain. She has been on a Gluten Free diet for over a year.  Before the diet, she was very ill. Chronic constipation, and failure to thrive.  I have had her to 2 specialist in our area. A pediatric GI doctor from St. Christopher's Hospital in Philadelphia, as well as Children's hospital of Philadelphia to see a pediatric Urologist. She is still a bed wetter, and will also have bouts with Encopresis.  I am at a loss to help her.  I am wondering if there are other parents that have been through what we have. Every time  we see a doctor, they give me a script for Miralax, and it is frustrating to say the least. I am wondering if there are any parents that may be able to give me some direction. Thank you for listening. :mellow:

 

Jennifer from PA

My younger son is being scoped at CHOP tomorrow. Sounds a lot like both my boys. If my little one is positive, we are having my older one tested. My little one tested positive for the gene and has IgA deficiency and they lost the IgG tests.... long story.

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