Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Dedicated Facilities Or Not


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

Do you only eat products made in dedicated gluten-free facilities? If so, why? If not, why not?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

If  a  person is a super  sensitive  celiac  then   they  eat  only from a dedicated  /gluten-free   business... But  with that  being  said  it  does  limit  gluten-free  choices  &  varieties.... but  again  some  have  no  choice  they  just  get  very ill  so  it is  a must  for them....and  they  usually  figure  that  out  as  they  go along   with  the gluten-free  lifestyle.....good  thing  is more  & more  companies  are  putting  out millions  to make  their  business  dedicated....

Most  can get  away with  eating  from  places  that  have  established  guidelines  that produce  both  wheat  & gluten  foods....ie:  General Mills....they produce  both  wheat  cereal & gluten-free  cereal but  they  maybe  wash  down  the  equipment  & such  before  making  the  gluten-free  or  it is  made in the  same  building using  different  equipment.. several scenarios...

 

either  way it  is a personal choice  for  each  person....

Link to comment
Share on other sites
kareng Grand Master

Yes.  My kitchen is a shared facility.  That is way different than shared equipment.  Most companies don't disclose this.  There is no rule that they have to.  

Link to comment
Share on other sites
1desperateladysaved Proficient

I have had reactions that lead me to believe that I must be extremely careful.  I am working towards growing much of my own food, searching for companies that produce one crop, and also washing carefully everything that can be washed.

 

Dee

Link to comment
Share on other sites
BlessedMommy Rising Star

Washing is always a good idea--if possible. When eating at a continental breakfast in a hotel, I rinse off the hardboiled eggs before eating.

Link to comment
Share on other sites
psawyer Proficient

I eat foods made in facilities that also process ingredients I avoid. The alternative is just too restrictive. If you refuse shared facilities, you will never, ever eat at a restaurant, or at a family member's house. Just because there are noodles in the next room does not mean that there are noodles in your soup. Good Manufacturing Practices, as observed by all major food manufacturers, call for isolation of ingredients and cleaning between runs. As another member noted, disclosure of share facilities is voluntary.

Link to comment
Share on other sites
livinthelife Apprentice

As a rule, I try not to, but, as others have said, it's not required to be labeled so I probably eat a lot more of these "shared facilities" foods than I think when I opt for a package of something.

 

I know Lay's jalapeño kettle chips (total cheat guilty pleasure!!) bother me since I keep a food journal and they seem to be a common "trigger" food, so I don't eat them anymore. Having said that, I'm still learning and it very well may be a reaction to something else. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DougE Rookie

Like many of the other replies, I will eat products that declare that they are made in a shared facitlity.  One exception is bakeries (I can just imagine flour hanging in the air everywhere). 

Link to comment
Share on other sites
  • 3 weeks later...
NatureChick Rookie

For me it depends on the item and the brand.

For premade foods, I definitely notice a difference between dedicated facilities and not. When I think I've gotten a minor contamination, I normally give the suspect food a second or third try before scratching it off my grocery list permanently. Aimee's brand comes to mind when it comes to having some problems, though some products seem to be worse than others. The opposite would be Glutinos, a brand I don't  remember ever having glutened me.

Things like nuts are always hit or miss but I have had better luck buying bulk than packaged items. I only do organic, but find that unsalted poses the least risk, while salted can be a problem. I presume that means that flour is used as an anti-flaking agent for a powdered ingredient somewhere in their processing line. I never buy nut mixes. 

I actively avoid gluten-free items made by my grocery-store's bakery. I've only tried it once and it was definitely more gluten than a minor contamination so I have to presume that it is because the kitchens are contaminated with regular flour dust. 

The grocer's butcher counter is also hit or miss. The less that needs to be done to a cut of meat, the lower the chances of problems. So a simple chunk of meat would be the safest, a ground or sliced product somewhere in the middle, having had to go through another machine, and a product like a sausage that might contain more ingredients (and more chances of cross contamination) won't ever be on my grocery list again. But I do buy packaged sausages that say gluten-free on the label, so it is the facility that is the problem.

But I'm super lucky that the grocery stores at which I shop have excellent gluten-free labeling or sections, only carry minimally-processed products which cuts down on issues, and carries lots of gluten-free options so I'm not tempted to take many risks. 

I also did a ton of research when I first went gluten-free which helped me avoid mistakes. That said, it took me more than a month to finally admit that I had to give up my favorite spaghetti sauce, even calling the manufacturer to double check because it was so much better than the competition and its ingredients really "shouldn't" contain any gluten. But most companies are buying their tomato paste premade and it often contains ingredients other than tomatoes. 

Oh, and distilled products that "should" be gluten-free are another risky area. I do make sure to read labels to make sure things like vinegar are made from corn rather than wheat.

And I also won't trust a human being to tell me that something is gluten-free. There are plenty of people on this forum who eat things that I know from experience contain gluten. Though it is great for them that their reactions are so minor they can be overlooked, I'm glad I have a "tell" symptom that responds to minute amounts because I'd much rather know.

Link to comment
Share on other sites
  • 1 month later...
SoLacey Newbie

"Oh, and distilled products that "should" be gluten-free are another risky area. I do make sure to read labels to make sure things like vinegar are made from corn rather than wheat."

 

I wonder, how can you tell if vinegar is made from corn rather than wheat?  I have definitely been reacting to some vinegars.  I've been just avoiding them all together unless it's something I have already eaten and was fine with. 

 

I'm super  sensitive so I won't eat anything in a box that was made in shared facilities.  I have gotten very sick from gluten free products that I later found out were made on shared equipment.  I had some frozen potatoes the other night that said gluten free.  I wasn't too worried about cross contamination because they were potatoes after all.  After getting sick I did some searching and found that the Ore-ida tater tots were processed on shared equipment.  I got super sick from Sweet Baby Rays BBQ sauce, also says gluten free, also made on shared lines. 

 

I feel somewhat lucky that I am so sensitive, I worry for those that aren't that because they may not get as sick they might be doing damage internally and not know.  My sister and my son both have it and aren't quite as sensitive as I am, I see them doing things that freak me out. :)
 

Link to comment
Share on other sites
StephanieL Enthusiast

Yes.  My kitchen is a shared facility.  That is way different than shared equipment.  Most companies don't disclose this.  There is no rule that they have to.  

Yes to this.  

 

Just as a facility doesn't need to disclose if allergens are used in the plant or even run on the same lines, they don't have to disclose if gluten is in the facility.  There are some brands that are better at labeling than others and have a better reputation. It's all about comfort levels for sure!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...