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Obese, Not Gluten Free Yet, Anyone Lose Weight After Diagnosis?

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I just had blood tests showing positive for Celiac disease and am awaiting an appointment with the gastroenterologist.  Since I had my child (2.5 yo) I have not been able to lose any weight whatsoever no matter what diet plan (though hadn't tried gluten free before).  Before I was told i had to continue eating gluten until my biopsy I gave it up for two days and had lost 4 pounds!  I'm wondering if there are many out there who were obese and lost weight successfully after they went gluten free?  I don't want to gain more weight like I see some people have done as I'm already way to overweight and have been since i was a child.........


Also, if you have lost weight (and needed to!) after going gluten free...any advice???



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4 pounds in two days probably isn't permanent weight loss, just fluctuation.  Usually healthy weight loss is 1-2 pounds per week.  I lost 5 or 10 pounds when I first had to go gluten free after my celiac diagnosis, because all I really knew what to cook was grilled chicken and veggies.   Then I learned the ropes some more and went back to normal eating. However, gluten-free isn't a weight loss diet, it is a medically necessary diet to prevent exposure to something that makes you sick, just like a diabetic would be on a sugar free diet.  


If you do end up being diagnosed as a Celiac and go gluten-free, you need to understand that any of the processed gluten-free foods are usually worse for you than non-gluten-free foods, like more calories, fat, and sugar.  If you eat the unhealthy replacement foods, you will gain weight.  Also, many people who are malnourished from advanced intestinal damage will gain weight once their intestines heal and they start absorbing again.  However, the recommended starting point for a newly diagnosed celiac is to 1. Avoid eating out because you will get cross contaminated and that is not good for healing.   2. eat whole foods on the outside of the grocery store like meat, veggies, and fruit, and 3. Avoid dairy for the first three months.


If eating whole foods and getting your veggie intake is very different from what you currently eat, you may lose weight.  Especially if you eat a lot of processed and prepared foods like I did and change your habits to the other end.  But, if you end up re-learning food habits, you can use that chance to make your habits more weight healthy as well.  Let us know how the GI appointment goes!


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I did not lose any weight going gluten free after my dx, but I did when I was diagnosed with diabetes a few months ago. I am basically eating only whole foods. No sweets!

Welcome to the forum and check out the newbie section under coping for invaluable tips!


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    • I will cut dairy out immediately. I have eliminated most processed foods already. I do use a lot of spices. I read labels on everything. It is so overwhelming. Is there a good list of ingredients to look for in cosmetics, soaps, supplements... ? It has been recommended that I take a probiotic, calcium and vitamin D. Do you take supplements?
    • My Celiac symptoms always flare after vaccinations.  I've been gluten free for 6 1/2 years.  I find the vaccine benefit to outweigh the temporary rise in symptoms--even though it is quite annoying. Since you've been gluten free for about a year, it's very likely you need more time to heal.  Just stick with it as best you can .  Keep getting flu shots! I think it's best to think of Celiac as a lifelong "trait" (like having red hair, for example) rather than something you can "fix". You will be OK.  Keep eating simple, healthful foods to help your body heal.  Good luck!    
    • Hello, I've had a pretty rough ride health-wise over the past year due to Coeliac. I posted a few months ago explaining my story: I've seen small, incremental improvements over the past few months (headaches starting to ease, more stomach 'rumbling' instead of just an uncomfortable bloated/full feeling etc.) and have just started back at university which I'm pleased about. However, progress is painfully slow and I was hoping to have seen more concrete improvements by now. My stomach also seems to affected by the tiniest thing (i.e. I took some ibuprofen and it upset my stomach for a week or so). Is this normal? Any advice/reassurance from others who still had fairly severe symptoms after 6-8 months gluten free would be really helpful. It can be quite tough both physically and mentally sometimes and the 'light at the end of the tunnel' can seem a long way off.  In addition, I had a flu vaccination around a month ago and since then, have had quite bad GI symptoms, headaches and fatigue which seem to occur in 'flares' of a few days before settling and then starting up again a few days later. I think they're beginning to settle down a little more now but just wondered if it's possible that the flu jab could have had this effect due to the severity of my symptoms and sensitivity of my 'system'/stomach post-diagnosis? I stick to very similar foods on a daily basis because I'm only able to tolerate a bland diet, so I can't put my finger on anything food-related that could be causing this and I'm very careful to avoid gluten and cross-contamination etc (I live at home and prepare meals myself, I don't eat out at the moment and have been 'glutened' once and these symptoms are quite different to that). Has anyone else in the earlier stages of recovery had reactions to vaccinations? Thanks everyone for your support.  
    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
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