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Obese, Not Gluten Free Yet, Anyone Lose Weight After Diagnosis?
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I just had blood tests showing positive for Celiac disease and am awaiting an appointment with the gastroenterologist.  Since I had my child (2.5 yo) I have not been able to lose any weight whatsoever no matter what diet plan (though hadn't tried gluten free before).  Before I was told i had to continue eating gluten until my biopsy I gave it up for two days and had lost 4 pounds!  I'm wondering if there are many out there who were obese and lost weight successfully after they went gluten free?  I don't want to gain more weight like I see some people have done as I'm already way to overweight and have been since i was a child.........

 

Also, if you have lost weight (and needed to!) after going gluten free...any advice???

Thanks!

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4 pounds in two days probably isn't permanent weight loss, just fluctuation.  Usually healthy weight loss is 1-2 pounds per week.  I lost 5 or 10 pounds when I first had to go gluten free after my celiac diagnosis, because all I really knew what to cook was grilled chicken and veggies.   Then I learned the ropes some more and went back to normal eating. However, gluten-free isn't a weight loss diet, it is a medically necessary diet to prevent exposure to something that makes you sick, just like a diabetic would be on a sugar free diet.  

 

If you do end up being diagnosed as a Celiac and go gluten-free, you need to understand that any of the processed gluten-free foods are usually worse for you than non-gluten-free foods, like more calories, fat, and sugar.  If you eat the unhealthy replacement foods, you will gain weight.  Also, many people who are malnourished from advanced intestinal damage will gain weight once their intestines heal and they start absorbing again.  However, the recommended starting point for a newly diagnosed celiac is to 1. Avoid eating out because you will get cross contaminated and that is not good for healing.   2. eat whole foods on the outside of the grocery store like meat, veggies, and fruit, and 3. Avoid dairy for the first three months.

 

If eating whole foods and getting your veggie intake is very different from what you currently eat, you may lose weight.  Especially if you eat a lot of processed and prepared foods like I did and change your habits to the other end.  But, if you end up re-learning food habits, you can use that chance to make your habits more weight healthy as well.  Let us know how the GI appointment goes!

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I did not lose any weight going gluten free after my dx, but I did when I was diagnosed with diabetes a few months ago. I am basically eating only whole foods. No sweets!

Welcome to the forum and check out the newbie section under coping for invaluable tips!

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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