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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mercury Toxicity?
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26 posts in this topic

Hey guys! I have not been on the forum in forever! I was diagnosed with Celiac in March 2013. I was feeling better for a while with the gluten-free diet. However, now I have all kinds of crazy symptoms despite my carefulness to remain gluten-free. My symptoms point to mercury toxicity. A dentist friend of mine who lives in Colorado lead me in this direction. I had my amalgam fillings removed and replaced with composite filling in October 2013. Again, I eventually began to feel better. However, the symptoms came back and are actually worse. I have had to go to ER even because the pain has gotten so severe. I have now decided to put myself through mercury detox under the guidance of my friend (who also suffers from mercury toxicity). I'm just VERY curious as to others' thoughts/opinions...and mainly if anyone else has experienced anything similar to this. I would appreciate ANY help!!! Thank you!!!!!

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I really don't know much about this. I would suggest you consult a physician and follow a medical protocol. I'm not sure what a person can really, safely do if you have Mercury poisoning. I think that can be a pretty serious illness.

http://www.nlm.nih.gov/medlineplus/ency/article/002476.htm

Looks like the kind in dental fillings comes out the far end if swallowed. So I wouldn't think that would be an issue.

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Do you eat a lot of fish? Just a thought.

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I second what has already been said by Kareng.  If you haven't already been to a doctor for this specific issue, I implore you to go get checked out before you start with your self treatment.  Unfortunately, mercury toxicity is extremely rare and I don't know if there will be any others on the forum with the same experience.

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I did eat tilapia...maybe 2-3x/month...Since deciding to try this detox I have stopped. If you start reaching mercury toxicity and amalgam fillings...it is really is crazy the research that supports them having a negative impact on your health...physically and neurologically...

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*researching not reaching...I hate typos!

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I have been to one doctor who has directed me toward a similar path...Honestly, I live in NE Mississippi...We do not have many doctors around here that truly understand these types of conditions...I was actually the first Celiac patient that my doctor had encountered...this has always been discouraging for me..:

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If you really have issues with mercury, you should be tested by a physician and treated. Did you work near mercury vapors? Did you consume copious amounts of large fish? If you do have mercury poisoning, it has crossed the blood brain barrier and over-the-counter unregulated supplements will not help. Small amounts in amalgam fillings probably has not affected you. How are your kids? Because if it were amalgams (and I do not think so), they would have severe neurological problems passed on by you when you were pregnant. I am guessing that they are just fine.

You already have one autoimmune disorder and the learning curve for the cure can be steep especially when you have a 2, 3, and 4 year old running around. Moms who do not have a severe illness, like celiac disease, have gone crazy with three cute little rug rats! Some people take years to heal, especially if you have consistent glutenings. Not that you have, but it is a thought. Each glutening can delay the healing process. So, back to the autoimmune disorders. Have you ruled out RA, lupus, Hashi's, type 1 diabetes, etc. ? Once you get one autoimmune disorder, you can develop more.

Rule out those before starting any dangerous chelation treatments that you diagnose yourself.

I hope this helps.

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I did eat tilapia...maybe 2-3x/month...Since deciding to try this detox I have stopped. If you start reaching mercury toxicity and amalgam fillings...it is really is crazy the research that supports them having a negative impact on your health...physically and neurologically...

Tilapia is a very small fish. It is on the safe list posted by the government.

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I have been tested for Lupus...when I first got tested for Celiac...but none of the others...I'm not sure I have any of the other symptoms? My current symptoms are fatigue after eating anything, daily nausea, joint pain all over, abdominal cramping...

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I have been tested for Lupus...when I first got tested for Celiac...but none of the others...I'm not sure I have any of the other symptoms? My current symptoms are fatigue after eating anything, daily nausea, joint pain all over, abdominal cramping...

 

You can definitely seek out additional autoimmune testing.  Those things can pop up even if a previous test was negative, and especially since you have had a sudden onset of symptoms again, it would definitely be worth knowing.  Rheumatologists do a ton of tests to rule other things out, as well, because there are many diseases/conditions that have similar symptoms.

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Wait...no RA either...got checked for that.

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Okay, before you request those other autoimmune tests, are you eating dairy? Milk can cause intestinal damage, affect your joints, cause fatigue and make you nauseas. So can other foods that you might be intolerant to like eggs, corn, soy, etc. have you kept a food journal?

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How is your gallbladder? Have you had a followup endoscopy to see if you are healing? It is recommended after a year.

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Well I have been eating dairy until yesterday...

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It's been years since my gallbladder was checked...It was fine the last time, though. I have not had f/u upper endoscopy.

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I say no dairy in ANY form for the next three months. Research lactose, casein or whey intolerances. That is a good place to start since most people with celiac disease develop a temporary lactose intolerance due to damaged villi. Do not forget that you can sustain damage to villi from milk but that is rare!

If symptoms persist, do check your gallbladder for not only for stones but to test for how it functions (squeezes). That is the HIDA scan.

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Just curious...if you have a lactose intolerance but have not had it in 3 days...should you still feel sick from the effects of the LAST time you had it? Like still nauseous etc...(do I even make sense lol?)

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It takes me about 4 days to feel better after eating a food that I do not tolerate.  My nurse caregiver says that it takes about 4 days for the antibodies to die down.  Three days seems to me within a reasonable time.

 

My dentist removed my mercury fillings very carefully.  He used what he called a "rubber Damn" to avoid having mercury go down my throat.  This felt like he wedged a balloon between my teeth.  He also didn't remove all of my fillings at once, but left time between them.  There must be reasons for the care he took in this.  I hope similar cautions were taken for you.

 

Dee

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mercury overload  can be  dangerous.....Did  your  dentist  use  the  mercury  protocol when  removing  your  mercury fillings? Many  dentist  just  drill out  the  old  mercury filling  without  precautions causing the patient  to  end  up  with  a lot  of  medical issues....WE  all have  lead & mercury in our  systems,  it is when we  get  an overload  the problems  begin....

Our  son  went  through a mercury/lead  detox  for  months.....we  used  a  specialist  for  the  treatments ( IV injections,)  Some  made  him  pretty sick  ....Please  seek  a specialist  in this  field......

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The dentist did use proper precautions. I also have many of the symptom of yeast overgrowth and candida...which apparently go along with mercury toxicity? I am not doing the chelation (sp?) I'm taking multiple supplements, along with IMD (intestinal metals detox)...

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Jamie,

No offense, but have you even read and understood everyone's comments on mercury toxicity? You have three kids that need a mom. You should be under a medical doctor's supervision. I know you live in MS, but drive to New Orleans or Memphis for a consult.

Regarding candida, unless you have something like AIDS or chronic thrush in your mouth or vagina from taking antibiotics daily for years, you probably do not have an issue with yeast. More than likely you have a problem with MILK because folks with celiac disease usually have milk issues. It costs nothing to test that theory and it is safe. Just take a calcium supplement to protect your bones. With three tiny children, you probably can not get a good handle on a gluten free diet or you are giving it your all to you family (as mothers do).

There are no quick fixes for celiac disease.

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Yes...I said I have seen a doctor in Nashville. I also have a friend who is a dentist in Colorado that is going through the same thing. I ordered the mercury test her naturopath suggested and am going to take it from there. I was just curious if anyone else had similar experiences...I am here to tell you it is not gluten though...I do not think I could be more careful than I am...If you would read about candida...it goes hand in hand with mercury toxicity...Mercury feeds yeast...So you do not necessarily have to have the conditions you stated...Especially if it's in your gut...

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Yes...I said I have seen a doctor in Nashville. I also have a friend who is a dentist in Colorado that is going through the same thing. I ordered the mercury test her naturopath suggested and am going to take it from there. I was just curious if anyone else had similar experiences...I am here to tell you it is not gluten though...I do not think I could be more careful than I am...If you would read about candida...it goes hand in hand with mercury toxicity...Mercury feeds yeast...So you do not necessarily have to have the conditions you stated...Especially if it's in your gut...

This is just my personal opinion, and it probably isn't worth much to you, but.... I wouldn't let a dentist diagnose or treat me for anything but dental things. I would read info from reputable researchers/ medical centers on mercury poisoning and yeast. Theses issues are not that common. I would hate for you to hurt yourself with the treatments or mis- diagnose something serious or easily fixable. Trying to be dairy free for a few weeks is cheap and easy and shouldn't cause you any harm.

I think that is what everyone here is trying to say.

However, it is your money and your body...... I wish you good luck and good health. If we can help you with any issues related to Celiac, please let us know. :)

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Wow....you've got a lot coming at you! I just thought I would pipe in and further muddy the waters :wacko:  -- yesterday I was reading an article that was addressing the increase in incidence of lyme disease in the southern US. Big numbers in the northeast and mid-western states and in southeastern Ontario have been known for some time, but suddenly this disease is appearing, quite noticeably, in the south. Your symptoms rang a bell, so I thought I'd chime in. Wow, lots to deal with -- I do hope you get this all figured out. 

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