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A Few Questions


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#1 ashleyld

 
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Posted 24 April 2014 - 10:08 PM

We just got our daughters endoscopy results. They are positive.
Do I need to replace all the cutting boards and cooking utensils? Anything else that can potentially hide gluten I need to think about?
Silly question maybe... I know rice is gluten-free.. is there anything I need to worry about?
Anything else that is easily overlooked?

Thanks!
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After 3 years of wondering why my baby had reflux, seizures with no neuro cause, and horrible daily stomach aches; we were finally officially diagnosed with Celiac on 4/24/14. There is a light at the end of the tunnel and I cant wait to make her feel better!

Mom to 4 little ones, 10, 6, 6, and 3


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#2 cyclinglady

 
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Posted 24 April 2014 - 10:16 PM

Read the newbie section under the "coping" section of this forum. Also, my husband went gluten-free 13 years before me. I think it is easier to make the entire house gluten free for a while. Better for her and for you. Testing is in order for all of you. Do not stop eating gluten until testing is complete.

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#3 Celiacandme

 
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Posted 25 April 2014 - 03:06 AM

The toaster, collanders, wooden/plastic cooking utensils, collanders, anything plastic, etc. I even replaced my canister set because the rims of the tops had plastic in order to suction/securely close. I didn't want to take a chance; I figured the flour wouldn't get out of the plastic no matter how hard I tried. You shouldn't have to worry about rice, I don't think, unless you are buying something packaged with seasoning/mix. Plain white or brown rice would be fine though.

 

The Gluten-Free Grocery Shopping Guide by Cecelia's Marketplace is a handy little book that fits in your purse which helps if you are questioning whether something is safe when grocery shopping. (There are symbols and a chart which explains which products are guaranteed gluten-free, processed in a dedicated facility, in a shared facility, etc.)

 

Don't forget to make sure chapsticks/toothpaste are all gluten-free. (if she has DH, the skin version, you'll need to make sure lotions, shampoos, etc are also gluten-free) I haven't read your previous posts so I'm sorry if this is all just repeated information for you.

 

I hope she starts to feel better before you know it.

 

~Julie


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#4 BlessedMommy

 
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Posted 25 April 2014 - 04:30 AM

Also, if you have cast iron pans, putting them in a self clean cycle of the oven (which gets up to 900 degrees) will burn off any gluten. Then re-season them and they should be safe for use.

 

Don't forget waffle irons! It's pretty much impossible to get the gluten off of a used waffle iron. Flour sifters should also be replaced.


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~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 


#5 BlessedMommy

 
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Posted 25 April 2014 - 04:37 AM

One unlikely place where gluten hides is in salad dressings. Fillers, thickeners, vinegars, and soy sauce. Always verify gluten-free status of salad dressings before using.


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~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 


#6 ashleyld

 
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Posted 25 April 2014 - 05:52 AM

Thank you so much! How do I know if she has the skin version? Will that come out in time? It might be the cause of the weird rashes she gets every once in a while
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After 3 years of wondering why my baby had reflux, seizures with no neuro cause, and horrible daily stomach aches; we were finally officially diagnosed with Celiac on 4/24/14. There is a light at the end of the tunnel and I cant wait to make her feel better!

Mom to 4 little ones, 10, 6, 6, and 3


#7 mamaw

 
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Posted 25 April 2014 - 07:13 AM

Just  a note  Vinegar,,, white  distilled  or  apple  cider  vinegar  in the US  is  gluten free..... flavored  vinegars may not be....

 

Malt  products  are  also not  gluten-free...


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#8 kareng

 
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Posted 25 April 2014 - 07:27 AM

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free. Shampoo might get swallowed by some people. I just look for ingredients like wheat germ oil and avoid those because , even tho I am an adult, I get shampoo in my mouth.
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Thanksgiving dinners take 18 hours to prepare.  They are consumed in 12 minutes.  Half-times take 12 minutes.  This is not a coincidence.  - Emma Bombeck
 
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#9 mommida

 
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Posted 25 April 2014 - 07:52 AM

I think her daughter was getting odd skin rashes.  Her odd rashes may have been from fat malabsorption, hyperkeratosis folliculitis, or dermititus herpetiformis (DH).

 

I still think newbies should keep a food journal.  It can help track down cross contamination sources.  (we had a bottle of vanilla that I kept from kitchen clean out that must have been cross contaminated from gluten baking.)


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#10 ashleyld

 
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Posted 25 April 2014 - 08:42 AM

^^ good idea! I'll start today with the journal!
Thanks about the vinegar I had no idea! I'm going to go home and check all the salad dressings
  • 0

After 3 years of wondering why my baby had reflux, seizures with no neuro cause, and horrible daily stomach aches; we were finally officially diagnosed with Celiac on 4/24/14. There is a light at the end of the tunnel and I cant wait to make her feel better!

Mom to 4 little ones, 10, 6, 6, and 3


#11 africanqueen99

 
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Posted 25 April 2014 - 09:53 AM

I ran this process in waves once we got our DX.

 

1. Had one last "Goodbye to Gluten" party!  Friends over to eat out our freezer and pantry.  It was awesome fun for the kids. :)  We had so many desserts of just gluteny goodness!

2. Got rid of all gluten containing food.  Friends, food bank, a family on Craigslist took all the expired things.  ANYTHING opened went away - spices, condiments, etc.  I wasn't chancing anything with small kids.

3. Started cooking gluten-free with my regular kitchen items - all the while I was slowly paying attention to what I was using and replacing those things leaving them in the package in another room.  Cutting boards, toaster, these gorgeous wooden/bamboo bowls, anything plastic/metal/silicone, pasta strainer, fry daddy thingy, knife block, silverware separator thingy, cupcake/cake pans.  Some things I didn't replace b/c I realize that I never used them.

4. Once I had my bearing (it took less than a week to figure out what I was using) I had the Great Kitchen Clean of 2013.  Yes, it was the cleanest my kitchen had ever been!  Everything came out, cabinets scrubbed, refrigerator scrubbed.  It was great!  Then I opened all those lovely packages and had a new kitchen!

 

About 2-3 weeks after I did the kitchen I moved to the bathrooms.  Every open medication was pitched.  Shampoos/conditioners/body wash = swapped to gluten-free products.  Toothpaste, chapsticks, hand lotions (we hit Winter shortly after this happened and finding a gluten-free hand lotion for our cracking knuckles was HORRIBLE!!).  Right now I'm looking into sunscreen and bug sprays to use for the summer - this researching mom gig never ends.

 

I've been at this a while and have a completely gluten free house and car - with the exception of some beer and my husband's shaving cream.  I am crazy, crazy about things coming in to the house.  My youngest is still a toddler and would 100% eat something off the floor so friends just aren't allowed to bring food over.  Also, I make every kid entering my house wash their hands.  This is a hugely social house and nobody complains about hand washing.

 

ETA: If you're looking at a product and just not sure if you want to allow it in your house - call the manufacturer.  Seriously, I'm the lady in the aisle at Target calling the company on my cell.  And don't ever worry about asking questions from the slew of moms here.  We totally get it! :)


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Angela

Undiagnosed, but I'm positive that I'm the genetic link to celiac for my kids.  Gluten Free in solidarity of my girls!

Kid 1 (8 y/o girl) - DX celiac via blood in 9/2013 (age 7.5).  Negative biopsy in 10/2013.

Kid 2 (4 y/o boy) - DX as "latent celiac" via blood in 9/2013 (age 3.5).  Negative biopsy in 10/2013.  DX with gastritis.

Kid 3 (2 y/o girl) - DX celiac via blood in 8/2013 (age 1.5) and 9/2013. 


#12 africanqueen99

 
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Posted 25 April 2014 - 10:01 AM

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free.

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?


  • 0

Angela

Undiagnosed, but I'm positive that I'm the genetic link to celiac for my kids.  Gluten Free in solidarity of my girls!

Kid 1 (8 y/o girl) - DX celiac via blood in 9/2013 (age 7.5).  Negative biopsy in 10/2013.

Kid 2 (4 y/o boy) - DX as "latent celiac" via blood in 9/2013 (age 3.5).  Negative biopsy in 10/2013.  DX with gastritis.

Kid 3 (2 y/o girl) - DX celiac via blood in 8/2013 (age 1.5) and 9/2013. 


#13 kareng

 
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Posted 25 April 2014 - 10:08 AM

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?

 

 

I think I did say that if it would get in your mouth it needs to be gluten-free and that I get shampoo in my mouth.  I am as bad as an 8 year old, I guess.   :o

 

The real point is that gluten has to be in the intestines.


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Thanksgiving dinners take 18 hours to prepare.  They are consumed in 12 minutes.  Half-times take 12 minutes.  This is not a coincidence.  - Emma Bombeck
 
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#14 africanqueen99

 
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Posted 25 April 2014 - 10:26 AM

^^^ Oh, I get it.  My 2 y/o was licking her arms the other day.  Why?  Heck if I know!  But lotion would end up in her intestines.

 

I'm sure you are nowhere near as bad as an 8 y/o.  At least you shower!


  • 0

Angela

Undiagnosed, but I'm positive that I'm the genetic link to celiac for my kids.  Gluten Free in solidarity of my girls!

Kid 1 (8 y/o girl) - DX celiac via blood in 9/2013 (age 7.5).  Negative biopsy in 10/2013.

Kid 2 (4 y/o boy) - DX as "latent celiac" via blood in 9/2013 (age 3.5).  Negative biopsy in 10/2013.  DX with gastritis.

Kid 3 (2 y/o girl) - DX celiac via blood in 8/2013 (age 1.5) and 9/2013. 


#15 ashleyld

 
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Posted 25 April 2014 - 10:44 AM

LOL Yes my daughter is 3. She doesn't put things in her mouth but it doesn't mean i don't catch her fingers in her mouth when shes eating or wiping her face. And yes.. my 6yo started sucking his fingers recently. YUCKO


  • 0

After 3 years of wondering why my baby had reflux, seizures with no neuro cause, and horrible daily stomach aches; we were finally officially diagnosed with Celiac on 4/24/14. There is a light at the end of the tunnel and I cant wait to make her feel better!

Mom to 4 little ones, 10, 6, 6, and 3





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