I will try and make this as short as possible.
After 2 years and three peditrician's we finally got the diagnoises of Celiac through blood and biopsy in May of last year. Since there are so many allergies in the house (my son and I have asthma and many alleriges) we decided to make the entire house gluten-free. Anyway, my daughter (8) did great the first couple of months and stopped complaining of stomach aches but the last 5-6 months she started complaining again. Now I know it most likely is not coming from food (we are mainely Paleo/Whole30 in our house with minimal processed food) I cannot for the life of me figure out what is going on. Back in Sep we did a follow-up with her gastro doctor of Children's hospital in Chicago and was told her numbers are not going down. I asked what more I can do for her and her stomach aches and was told since she is gaining weight (she was always small) to just not worry about it right now. As a monther I cannot just shrug off news like this knowing what kind of damage her body is getting when it is still in a "fight" mode. I left that doctor and took her to a naturalpath doctor instead. We found out all kinds of information with that doctor. They did a food sensativity test (cannot remember the name of the test) and she came back sensative to: dairy, soy, popcorn and sugar +plus about 100 other things. I was told her body is acting like a diabetic and cannot process the sugar. It was suggested that anytime she eats sugar, even natural sugar like honey and maple syrup, that she should eat protein with it. Well that worked for a month or two and now we are back to stomach aches plus headaches all the time. I have scaled back completely on sugar (less than 8gm per snack/meal) and now she still has problems. I am at the end of my rope with this and feel I have nowhere to turn for help for her. She has already given up so much I am not sure what else I can pull from her diet. I already have a fear of leaky gut syndrome since her diet is so strick/small already.
To make matters worse she started doing CrossFit (my husband and I both CrossFit). This has made her extremely hunger all the time but I cannot figure out what to feed her to keep up with what she is burning (add in ADHD - a child that NEVERS sits or stops moving).
Has anyone had issues with processing sugar? Was there something you found that helped out? Enzymes, protein shakes... anything??
A desperate mother ;-(