Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Is It Possible For A Dx Celiac To Not Have A Problem With Barley?


MitziG

Recommended Posts

MitziG Enthusiast

Monday I went grocery shopping after getting some heavy duty painkillers at the Dr for a separate issue. (don't worry, I didn't drive) Anyway, never shop for gluten free groceries when you are stoned. I bought two boxes of Kellogs Cocoa Krispies. In my head they were Moms Best Coco Krispies, which are gluten free. Kelloggs however, contains barley malt flavoring.

Tuesday I ate two huge bowls (still apparently under the influence? I dunno)

A couple of hours later my daughter comes screaming "Mom! Did you eat these? They have gluten in them!" 3 celiacs in the house, we know our stuff. Unless we are drugged.

But...I had ZERO reaction. Not an ache, or pain or itch or even a fart. All 3 of us had positive blood work and biopsies done 3 years ago, so I know it didn't go away...(in my dreams). And any time I have had any cross contamination with wheat, I barf my guts out. An accidental restaurant enchilada that was "so good I cant believe it is corn! (because it was wheat!") sent me to the hospital for three days last year. Is it possible for a celiac to be bothered by only certain forms of gluten? Is barley gluten less potent? Or is malt flavoring superheated or something? I'm kind of baffled...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Its all guesses

 

Maybe Barley may be less "potent"  

Maybe The amount of barley in that cereal may be very tiny.

Maybe something else you are taking is messing with the production of antibodies

Maybe Its a full moon and you turned around 3 times in a clockwise fashion?   :D

 

 

Probably just that there isn't much gluten in them.

Link to comment
Share on other sites
Adalaide Mentor

I have different reactions. The one time I got accidentally CC'd with barley I ended up halfway to the bathroom (I'm maybe 10-12 feet from the door) curled up in a ball because I couldn't make it all the way. Not for what we all assume either. My husband quickly noticed my distress and grabbed the nearest thing at hand before I barfed all over the carpet. I was there for a while before I could get up. The "other" came later that evening. Every time it has been wheat it's been immediate (within 20-30 minutes) D that makes me think I won't have any guts left when I'm done. I don't know what the difference is/was. I don't rightly care. Gluten is gluten is gluten, and even without a reaction it damages our intestines and that will eventually cause problems.

Link to comment
Share on other sites
MitziG Enthusiast

Hmm...so I probably shouldn't conduct an experiment with Whoppers and Ovaltine....unless it is a full moon. Gotcha.

Link to comment
Share on other sites
mamaw Community Regular

Wheat, rye & Barley   of  course  you know  are off limits.... It may have not  hit you this time  but  with  continued  use   it  may  be   the  worse  stuper  /mess  you ever  got yourself  into.... just  another  reason  why  using  drugs  is BAD!!!!!!  I hope  you  don't  suffer  any reaction & I'm  hopeful  you will not let  that happen to you  again.... mistakes  are good  if we learn from  them....

 whoppers & ovaltine,,  can't  say I miss  either  of those  but  I  think we  all  have  a  couple  of  goodies we  would  love  to  savor  just  once  again.....maybe on  the  last  day of life  on  earth!!!!  (wink)

blessings

Link to comment
Share on other sites
MitziG Enthusiast

Well, if I could only have one gluten back, it would be wheat, not barley. And I do have plans to start inhaling twinkies the instant the sky starts falling!

and yes yes, drugs are bad. Pain is worse however. In that instance anyway.

Link to comment
Share on other sites
mamaw Community Regular

My  gluten-free  last day  eating  will be  a greasy  pizza  hut  pan pizza  &  a local bakery makes  a roll called  a kiffel....

Now, I make  twinkies  all the  time  I will share the recipe  with you  if  you want..  The twinkie pan isn't  costly.....so  you will not  have to wait  until  your  last  day on  earth.......they  are  just like  the real deal filling too.....

I go into  anaphylactic  shock  with  almost all pain meds  so  I  suffer with the pain beats  not breathing...  They hate to see  me  go in  for  surgery.... the  docs  spend  a couple  of hours  before making  sure they  don't  give  me  something  that  I can't  have  which is most... I usually have a twilight  drug  but  I do  hear  & feel  everything... I had  7 screws  & a plate in  my ankle  &  heard  the drills  the  saw ,  the  swearing  from the docs  &  what they  wanted for lunch....  I  yelled  at them  for  talking  about  food!

What  really  scares  me  is  open heart surgery,  I have  mitral  valve prolapse & am  an  A-Fibber... so  someday  I may need  surgery..

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HavaneseMom Explorer

I don't know the answer to your question, but I do have a Celiac friend who was eating regular pre-packaged Rice Kripie Treats thinking they were gluten free because "the label doesn't say they contain wheat".... She was able to eat them with no noticeable reaction and they contain malt flavoring. She does typically throw up and have D when glutened. I always thought it was strange that the Rice Krispie Treats didn't make her sick.

Mamaw- Pretty Please share the Twinkie recipe with us!!

Link to comment
Share on other sites
kareng Grand Master

Twinkies! Twinkies! Twinkies!  

Link to comment
Share on other sites
Adalaide Mentor

We're so off topic. But one of my local grocery stores had actual Twinkie branded and whatever their cupcakes are called branded baking kits. Came with pans, little cookbooks. All the good stuff. I almost bought one thinking I could just make them gluten free but I got all mad like a petulant toddler that there wasn't a Ho-Ho recipe and walked off. Yeah... regretting that one. :lol:

Link to comment
Share on other sites
mamaw Community Regular

addie:  if  you google  gluten free HO HO recipe,   about  at least  6  pop up...  gluten-free on a  shoestring, art of gluten-free  baking  & some others....

why  wont this  site  let  me  copy & pats? I thought  I used to do that!!!!  I need a computer  course  ..Can old  dogs  learn  new tricks?

 

I'm not home  right  now  so I don't have the  twinkie  recipe  with me but  we will post later  ....

Link to comment
Share on other sites
MitziG Enthusiast

Lol, twinkies are waaay better than Rice Krispie treats. Wait, what were we talking about again?

Link to comment
Share on other sites
kareng Grand Master

addie: if you google gluten free HO HO recipe, about at least 6 pop up... gluten-free on a shoestring, art of gluten-free baking & some others....

why wont this site let me copy & pats? I thought I used to do that!!!! I need a computer course ..Can old dogs learn new tricks?

I'm not home right now so I don't have the twinkie recipe with me but we will post later ....

Are you using Internet Explorer? It seems to be incompatible with this forum.

And when are delicious baked goods off topic?

Link to comment
Share on other sites
nvsmom Community Regular

LOL :lol:

 

My guess about the non reaction would the painkillers caused it. Perhaps they numbed it? Took the edge off? Or a side effect moderated your usual glutening reaction? These are just guesses though.

Link to comment
Share on other sites
JNBunnie1 Community Regular

I'd say just thank your lucky stars you DIDN'T have a reaction and I'm sorry

did someone say

 

TWINKIES?!?!?!!?

Link to comment
Share on other sites
mamaw Community Regular

FAKE TWINKIES:::::::: drum roll  please.......

 

cake:

1/2 c butter  or oleo

1 1/2 c  sugar

 

3 large  eggs

1 1/2 tsp  real  vanilla

 

1 1/4 c authenic  food  super  fine  brown rice flour

 

1/2 c potato  starch

 

1/4  c  tapioca  starch

 

3 1/2  tsp baking  powder

 

2 tsp  xanthan gum

 

1 tsp  salt

 

1 c  milk

 

Cream  butter/ sugar; add  eggs  & vanilla, mix well...  combine  in separate  bowl all the  dry ingredients &  whisk  together.... add  the  milk & the  dry ingredients alternately to the  cream mixture. Whip  until  fluffy. 

bake 350  for 25-30

cool.

 

make  sure  all  ingredients  are gluten-free!!!!!!!!!

 

You  can use  any  filling you like  but  I love  the  Todd Wilber  secret  recipe for the filling... it is  on  his   clone site.....

 

The  twinkie  pans  I use  are  from Bed Bath & Beyond but  now  days  they  can be  found  almost  anywhere... I bought  two pans  so I  could  bake  them  all at once.......

 

ENJOY.....

Link to comment
Share on other sites
MitziG Enthusiast

Mamaw, thank you for the recipe! Cant wait to try it!

Link to comment
Share on other sites
1desperateladysaved Proficient

Monday I went grocery shopping after getting some heavy duty painkillers at the Dr for a separate issue. (don't worry, I didn't drive) Anyway, never shop for gluten free groceries when you are stoned. I bought two boxes of Kellogs Cocoa Krispies. In my head they were Moms Best Coco Krispies, which are gluten free. Kelloggs however, contains barley malt flavoring.

Tuesday I ate two huge bowls (still apparently under the influence? I dunno)

A couple of hours later my daughter comes screaming "Mom! Did you eat these? They have gluten in them!" 3 celiacs in the house, we know our stuff. Unless we are drugged.

But...I had ZERO reaction. Not an ache, or pain or itch or even a fart. All 3 of us had positive blood work and biopsies done 3 years ago, so I know it didn't go away...(in my dreams). And any time I have had any cross contamination with wheat, I barf my guts out. An accidental restaurant enchilada that was "so good I cant believe it is corn! (because it was wheat!") sent me to the hospital for three days last year. Is it possible for a celiac to be bothered by only certain forms of gluten? Is barley gluten less potent? Or is malt flavoring superheated or something? I'm kind of baffled...

I know from nutrition reading that barley does not have as much gluten as wheat.  However, I also know that it causes trouble anyway.  Chalk one up for a lucky miss this time, but don't be convinced one can make a practice of it.

 

Dee

Link to comment
Share on other sites
mamaw Community Regular

you are  very welcome....

Link to comment
Share on other sites
nvsmom Community Regular

FAKE TWINKIES:::::::: drum roll  please.......

 

cake:

1/2 c butter  or oleo

1 1/2 c  sugar

 

3 large  eggs

1 1/2 tsp  real  vanilla

 

1 1/4 c authenic  food  super  fine  brown rice flour

 

1/2 c potato  starch

 

1/4  c  tapioca  starch

 

3 1/2  tsp baking  powder

 

2 tsp  xanthan gum

 

1 tsp  salt

 

1 c  milk

 

Cream  butter/ sugar; add  eggs  & vanilla, mix well...  combine  in separate  bowl all the  dry ingredients &  whisk  together.... add  the  milk & the  dry ingredients alternately to the  cream mixture. Whip  until  fluffy. 

bake 350  for 25-30

cool.

 

make  sure  all  ingredients  are gluten-free!!!!!!!!!

 

You  can use  any  filling you like  but  I love  the  Todd Wilber  secret  recipe for the filling... it is  on  his   clone site.....

 

The  twinkie  pans  I use  are  from Bed Bath & Beyond but  now  days  they  can be  found  almost  anywhere... I bought  two pans  so I  could  bake  them  all at once.......

 

ENJOY.....

Excellent!  Can you post that in thebaking section so others can see it too?  Thanks!!  :D

Link to comment
Share on other sites
HavaneseMom Explorer

FAKE TWINKIES:::::::: drum roll  please.......

 

cake:

1/2 c butter  or oleo

1 1/2 c  sugar

 

3 large  eggs

1 1/2 tsp  real  vanilla

 

1 1/4 c authenic  food  super  fine  brown rice flour

 

1/2 c potato  starch

 

1/4  c  tapioca  starch

 

3 1/2  tsp baking  powder

 

2 tsp  xanthan gum

 

1 tsp  salt

 

1 c  milk

 

Cream  butter/ sugar; add  eggs  & vanilla, mix well...  combine  in separate  bowl all the  dry ingredients &  whisk  together.... add  the  milk & the  dry ingredients alternately to the  cream mixture. Whip  until  fluffy. 

bake 350  for 25-30

cool.

 

make  sure  all  ingredients  are gluten-free!!!!!!!!!

 

You  can use  any  filling you like  but  I love  the  Todd Wilber  secret  recipe for the filling... it is  on  his   clone site.....

 

The  twinkie  pans  I use  are  from Bed Bath & Beyond but  now  days  they  can be  found  almost  anywhere... I bought  two pans  so I  could  bake  them  all at once.......

 

ENJOY.....

I can't wait to try these. Thanks for sharing!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,472
    • Most Online (within 30 mins)
      7,748

    Jessiehags91
    Newest Member
    Jessiehags91
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      So if the normal range for your tests is below 15.0 U/mL, and your results are 120.9 U/mL HIGH, it definitely looks like you could have celiac disease. Your doctor may want to schedule an endoscopy to confirm this, but with such high results it is also possible that the diagnosis might be made on your blood test results alone (more info on that is below). This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.  In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • JustGemi
      The Tissue Transglutaminase Iga: It says at the top of the page....Normal range: below <15.0 U/mL  The numbers on the top/left of chart start at 123, 122.121.120.119   My Results 120.9 U/mL HIGH ___________________________________________________________________ The Gliadin AB Iga: It says at the top of the page....Normal range: below <15.0 U/mL  The numbers on the top/left of chart start at 64,63,62,61,60 My Results 62.1 U/mL HIGH    
    • trents
      The reference ranges are usually included in the data but they may be cryptically expressed. Just type in everything from the results as it appears in the form you have it. Put it all in a new post window. We'll unpack it for you.
    • JustGemi
      Where would I locate the reference ranges?  I'll take a look at my results again....
×
×
  • Create New...