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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Dh Disappear And Reappear?
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8 posts in this topic

Hi All,

This question is regarding my 2 year old niece who has been breaking out in hives as of late.  I am a celiac without DH symptoms, my sister is likely a celiac but undiagnosed (gluten free), my niece's paternal grandmother and great grandmother are also celiac.  So the kid is in the middle of a genetic minefield.

 

Apparently, she has been breaking out mostly at night and wakes up in the morning with hives/rash all over her belly, back, and sometimes her arms and legs depending on how bad it is.  The rash disappears pretty quickly.  The first time they took her into the pediatrician and it was no longer there at that point.  This morning, it disappeared as they were eating breakfast.  She is left with a few random hives throughout the day, but not the all over rash.  She does eat gluten, especially at school and she had a roll last night at dinner.  This could be so many things, but I know very little about DH.  Does it come and go that quickly or does it stick around for long periods of time???

 

She does have some GI symptoms (Constipation) which is leading me to ask this question..

 

Thanks for your help!

Shellie

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Hives are generally due to an allergy. Does she have a pet that sleeps in her bed? Anything else she is exposed to overnight that she isn't exposed to any other time? I'm quite familiar with hives (which aren't DH to the best of my knowledge/experience) and it's normal for me to have them crop up, then go within hours once I'm no longer in contact with the allergen that caused them. Faster if I take something.

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When my daughter was sick one weekend, she kept asking for Orange juice. We complied thinking she needed to stay hydrated even though we normally do not allow juice (eat the fruit). She broke out in a rash and took her to Urgent care thinking she had some weird virus. They were not concerned about the rash. It went away. Then a few months later, I was juicing fresh oranges from our abundant tree and she broke out again. Tested her a few days later after the rash had gone and it came back. No OJ for her. She does eat oranges now but in moderation.

Maybe allergies for your niece?

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Hi Ladies-

The first thing I thought was allergies- most likely something related to food (as a child I broke out in hives to strawberries and chocolate milk and it eventually faded away).  But seeing as though I don't have and therefore aren't familiar with DH along with her genetic chances, I wanted to check.  So I'm assuming that DH sticks around without fading quickly while hives can come and go- is that correct?

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DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

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DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

 

Thank you!!  This is exactly what I wanted to know.

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I never realized the rash on my back was DH. It came and went, but never quickly, over the years. My lower back and my neck are covered in scars from scratching until I bled and scratching more. I ruined shirts, and kept scratching. It took it clearing up, then breaking out again once after my diagnosis for me to figure out what it was. It was never large hive sized swollen wheals, it was always small gross, nasty things that made me scratch my skin right off my body. It can be different for other people, but I've never heard of it described like hives which is why I mentioned allergies. (That isn't to say with her genetic jackpot that she shouldn't be being tested periodically.)

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DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

The itching and burning is insane. I have scabs forming now. I'm only on my 3rd major breakout but 1st to figure out what it is. I've been working up to this for years but on a much smaller scale. I've been gluten free for years so I need to figure out what my other triggers are. Back to the food diary again....

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