Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Dh Disappear And Reappear?
0

8 posts in this topic

Hi All,

This question is regarding my 2 year old niece who has been breaking out in hives as of late.  I am a celiac without DH symptoms, my sister is likely a celiac but undiagnosed (gluten free), my niece's paternal grandmother and great grandmother are also celiac.  So the kid is in the middle of a genetic minefield.

 

Apparently, she has been breaking out mostly at night and wakes up in the morning with hives/rash all over her belly, back, and sometimes her arms and legs depending on how bad it is.  The rash disappears pretty quickly.  The first time they took her into the pediatrician and it was no longer there at that point.  This morning, it disappeared as they were eating breakfast.  She is left with a few random hives throughout the day, but not the all over rash.  She does eat gluten, especially at school and she had a roll last night at dinner.  This could be so many things, but I know very little about DH.  Does it come and go that quickly or does it stick around for long periods of time???

 

She does have some GI symptoms (Constipation) which is leading me to ask this question..

 

Thanks for your help!

Shellie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hives are generally due to an allergy. Does she have a pet that sleeps in her bed? Anything else she is exposed to overnight that she isn't exposed to any other time? I'm quite familiar with hives (which aren't DH to the best of my knowledge/experience) and it's normal for me to have them crop up, then go within hours once I'm no longer in contact with the allergen that caused them. Faster if I take something.

0

Share this post


Link to post
Share on other sites

When my daughter was sick one weekend, she kept asking for Orange juice. We complied thinking she needed to stay hydrated even though we normally do not allow juice (eat the fruit). She broke out in a rash and took her to Urgent care thinking she had some weird virus. They were not concerned about the rash. It went away. Then a few months later, I was juicing fresh oranges from our abundant tree and she broke out again. Tested her a few days later after the rash had gone and it came back. No OJ for her. She does eat oranges now but in moderation.

Maybe allergies for your niece?

0

Share this post


Link to post
Share on other sites

Hi Ladies-

The first thing I thought was allergies- most likely something related to food (as a child I broke out in hives to strawberries and chocolate milk and it eventually faded away).  But seeing as though I don't have and therefore aren't familiar with DH along with her genetic chances, I wanted to check.  So I'm assuming that DH sticks around without fading quickly while hives can come and go- is that correct?

0

Share this post


Link to post
Share on other sites

DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

0

Share this post


Link to post
Share on other sites




DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

 

Thank you!!  This is exactly what I wanted to know.

0

Share this post


Link to post
Share on other sites

I never realized the rash on my back was DH. It came and went, but never quickly, over the years. My lower back and my neck are covered in scars from scratching until I bled and scratching more. I ruined shirts, and kept scratching. It took it clearing up, then breaking out again once after my diagnosis for me to figure out what it was. It was never large hive sized swollen wheals, it was always small gross, nasty things that made me scratch my skin right off my body. It can be different for other people, but I've never heard of it described like hives which is why I mentioned allergies. (That isn't to say with her genetic jackpot that she shouldn't be being tested periodically.)

0

Share this post


Link to post
Share on other sites

DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

The itching and burning is insane. I have scabs forming now. I'm only on my 3rd major breakout but 1st to figure out what it is. I've been working up to this for years but on a much smaller scale. I've been gluten free for years so I need to figure out what my other triggers are. Back to the food diary again....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,133
    • Total Posts
      919,529
  • Topics

  • Posts

    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,168
    • Most Online
      1,763

    Newest Member
    Natalie1980!
    Joined