Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

How Do You Emotionally Deal With Setbacks?

setback glutened

  • Please log in to reply

102 replies to this topic

#91 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 23 May 2014 - 04:49 AM

That is a lot for a body to recover from....it's only been three months and it all happened during a time your body had not yet recovered from Celiac Disease.
Are you still on probiotics? Many recovering Celiacs use them...I did for my first year or more....but eventually had to stop as I was not tolerating any supplements. Perhaps take a break from them for a few days and see if you digestive system feels better. If no difference, I would keep taking a good quality probiotic.

I am still taking the probiotic twice a day. Really felt like it was part of what was helping until this started up. Yesterday felt like things were improving...hoping for the same today.
  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley

Celiac.com Sponsor:

#92 GottaSki

 
GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,100 posts
 

Posted 23 May 2014 - 04:58 AM

I am still taking the probiotic twice a day. Really felt like it was part of what was helping until this started up. Yesterday felt like things were improving...hoping for the same today.


Great news...certainly do not stop the proBs if you are improving....they are very important as long as they are tolerated.
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#93 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 23 May 2014 - 05:38 AM

Great news...certainly do not stop the proBs if you are improving....they are very important as long as they are tolerated.

Totally.

 

And I want to thank you for your food suggestions yesterday.  :)  I was down to my last sweet potato...a scary thing when you're only eating like 6 things, right?  So, I went to the store and grabbed some asparagus too.  For lunch I had some steamed carrots with my chicken and rice.  For dinner I made sweet potato fries as you suggested...yum.  Had those with some chicken and asparagus.  So good...so nice to add 2 more foods to my life again.  Any other suggestions for what to add next?  Thank you again!


  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley

#94 GottaSki

 
GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,100 posts
 

Posted 23 May 2014 - 06:16 AM

Totally.

 

And I want to thank you for your food suggestions yesterday.  :)  I was down to my last sweet potato...a scary thing when you're only eating like 6 things, right?  So, I went to the store and grabbed some asparagus too.  For lunch I had some steamed carrots with my chicken and rice.  For dinner I made sweet potato fries as you suggested...yum.  Had those with some chicken and asparagus.  So good...so nice to add 2 more foods to my life again.  Any other suggestions for what to add next?  Thank you again!

 

You are more than welcome...I am the queen of making a couple foods into many different dishes.

 

As I lost so many foods back in 2011...I was having regular hissy fits...hubs said something brilliant:

 

"Stop thinking of food as food...start thinking of food as your medicine."

 

Simple really, but allowed me to accept there were things I could not eat...still have many, many things I cannot eat, but I'm getting a few things back and they taste f#%*ing fantastic to me :D

 

The sweet potato is my best friend -- look for purple sweet potatoes -- there are some with purple skin that are light purple on the inside and some with light skin (looks like a regular sweet potato) and dark purple inside.  Then there are yams -- was never a fan until I lost my beloved spuds ;)  I think I made a list on the dinner thread one time...think there was about 18 ways to make sweet potatoes -- really six, but when you multiply that by regular sweet potato, purple sweet potato and yams -- you get 18!

 

For me...adding as much color as possible to my plate makes me happy and others feel better eating around me because I have a pretty plate of food wherever I go -- no pity party rule for my family and friends works pretty well now -- when someone new joins the equation I rarely have to give them the speech because those around me know it by heart too!

 

I think you will have many foods that work for you once your tummy settles from all the upset your body had in February. 


  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#95 GF Lover

 
GF Lover

    Melanoma Warrior

  • Moderators
  • PipPipPipPipPipPip
  • 1,688 posts
 

Posted 23 May 2014 - 06:31 AM

I have a list of the 6 er 18 ways to make a sweet potato that you listed.  I would post it again but um, I forgot where I wrote it down but I do make the cut like fries one, smashed is another.  

 

Icelandgirl, have you tried squashes?  like Acorn?  Total yummers.  Maybe eggplant.  I'm thinking of mild on the tummy foods.

 

Colleen


  • 0

HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

turkey-hiding.gif


#96 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 23 May 2014 - 06:56 AM

You are more than welcome...I am the queen of making a couple foods into many different dishes.

 

As I lost so many foods back in 2011...I was having regular hissy fits...hubs said something brilliant:

 

"Stop thinking of food as food...start thinking of food as your medicine."

 

Simple really, but allowed me to accept there were things I could not eat...still have many, many things I cannot eat, but I'm getting a few things back and they taste f#%*ing fantastic to me :D

 

The sweet potato is my best friend -- look for purple sweet potatoes -- there are some with purple skin that are light purple on the inside and some with light skin (looks like a regular sweet potato) and dark purple inside.  Then there are yams -- was never a fan until I lost my beloved spuds ;)  I think I made a list on the dinner thread one time...think there was about 18 ways to make sweet potatoes -- really six, but when you multiply that by regular sweet potato, purple sweet potato and yams -- you get 18!

 

For me...adding as much color as possible to my plate makes me happy and others feel better eating around me because I have a pretty plate of food wherever I go -- no pity party rule for my family and friends works pretty well now -- when someone new joins the equation I rarely have to give them the speech because those around me know it by heart too!

 

I think you will have many foods that work for you once your tummy settles from all the upset your body had in February. 

Your husband sounds like a wise man.   :)

 

I know what you mean about things tasting awesome!  After days of only eating the same few things, the carrots and asparagus yesterday were soooooo good!


  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley

#97 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 23 May 2014 - 06:57 AM

I have a list of the 6 er 18 ways to make a sweet potato that you listed.  I would post it again but um, I forgot where I wrote it down but I do make the cut like fries one, smashed is another.  

 

Icelandgirl, have you tried squashes?  like Acorn?  Total yummers.  Maybe eggplant.  I'm thinking of mild on the tummy foods.

 

Colleen

I haven't.  I've never actually made acorn squash...as much as I cook.  I think it intimidates me.  LOL!  How do you cook it? I would love to have something else to try.  Thanks!


  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley

#98 GF Lover

 
GF Lover

    Melanoma Warrior

  • Moderators
  • PipPipPipPipPipPip
  • 1,688 posts
 

Posted 23 May 2014 - 07:09 AM

I haven't.  I've never actually made acorn squash...as much as I cook.  I think it intimidates me.  LOL!  How do you cook it? I would love to have something else to try.  Thanks!

 

Wow.  Squash are the bomb.  Ok.  Get a nice Acorn Squash, they are orange and green, I like some good orange color on the rind.  Knock on it.  Should sound a bit hollow, it has seeds.  Wash it good, cut it long ways thru the center.  put about a 1/4 - 1/2 inch of filtered water in a baking pan.  put the two halves, cut side down, in the pan and bake at 350 or so for about an hour.  When done the squash will be nice and soft.  I eat mine plain but some people put some butter and cinnamon or brown sugar sprinkled on theirs.  I think they taste great by themselves.  Another one is Spegetti Squash.  This one you cook and then you can use a fork and run it down the sides to make a linguini type string.  Season to taste.  Over on the "What's for Dinner" thread, they make Zoodles.  I think its zucchini made into noodles.  The members on the dinner thread know how to make any kind of food into all kinds of different ways.  You should check it out.

 

Colleen


  • 1

HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

turkey-hiding.gif


#99 GottaSki

 
GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,100 posts
 

Posted 23 May 2014 - 07:32 AM

How could I forget zoodles!

Colleen is right .... Cruise over to the dinner thread.
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#100 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 23 May 2014 - 09:05 AM

I loves me some zoodles!! sauteed in a bit of garlicy butter...


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#101 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 23 May 2014 - 11:28 AM

Wow.  Squash are the bomb.  Ok.  Get a nice Acorn Squash, they are orange and green, I like some good orange color on the rind.  Knock on it.  Should sound a bit hollow, it has seeds.  Wash it good, cut it long ways thru the center.  put about a 1/4 - 1/2 inch of filtered water in a baking pan.  put the two halves, cut side down, in the pan and bake at 350 or so for about an hour.  When done the squash will be nice and soft.  I eat mine plain but some people put some butter and cinnamon or brown sugar sprinkled on theirs.  I think they taste great by themselves.  Another one is Spegetti Squash.  This one you cook and then you can use a fork and run it down the sides to make a linguini type string.  Season to taste.  Over on the "What's for Dinner" thread, they make Zoodles.  I think its zucchini made into noodles.  The members on the dinner thread know how to make any kind of food into all kinds of different ways.  You should check it out.
 
Colleen

Thanks! Grabbed an acorn squash today...so excited to try it!
  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley

#102 KMMO320

 
KMMO320

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 159 posts
 

Posted 24 May 2014 - 08:49 AM

I'm wondering how everyone else deals emotionally with setbacks you encounter during your recovery?

 

I've been doing so well for over a month...yay!  I was diagnosed in January, had a rough beginning.  But for a little over a month was doing great.  I would talk about how good I was feeling, how I hadn't even realized how bad it had been until I saw all of the improvements,  I felt like I really got the label reading, cooking, etc. down.  I was exercising again.

 

And then last Wednesday I started feeling bad again.  By Thursday I was doing the run to the bathroom up to 15 times a day...exhausted...foggy...headache. All of the usual stuff.  I analyzed everything that I had eaten and realized that I had added 2 things into my eating that I hadn't had....almond flour and Ghiradelli chocolate chips.  I bought the chips because a recipe called for bittersweet and I didn't see any from Nestle.  Looking into it I see that they are made in a shared facility.  So, I guess I got too confident, didn't check something out and am suffering for it.  :(

 

I am having a really difficult time with this emotionally.  I feel mad and sad and all of that stuff.  The setbacks in this journey of celiac disease are so harsh and devastating.  They take such a toll.

 

How do you deal with it?  Get through it?

 

Thanks!

 

 

 

I get mad at myself for having celiac disease. It's not my fault, but I just get so mad that I have to be so difficult! So I totally get the emotional aspect you are feeling. I have been Gluten Free for almost 2 years, with a handful of incidents where I either wasnt careful, or threw caution to the wind and ate something Gluten filled, stupid, stupid.  Even after almost 2 years, this morning I held a donut in my hand and was actually bargaining with myself. I was saying, I'm not working until 43o tonight. I can eat this and then take a nap and be fine! why not?

In the end, I didn't do it. Sure, my immediate reaction to eating gluten doesn't last long, a couple hours at most and I can sleep it off and feel fine when I wake up, but what damage am I causing internally? Sure, I was diagnosed with celiac disease formally, but even my Dr thinks it may be intolerance and not so much full blown celiac disease, but it could or could not really be celiac disease. All my tests were negative, all blood work, biopsy, etc. But my symptoms disappeared when I stopped eating Gluten so she just went ahead and made the diagnosis. 

Do I really want to bargain with myself though? No, its not worth it. 

The point Im trying to make is that I don't think the emotional aspect ever really goes away. Im not as emotional as I was, but I do have my days. 

What I do to get over it is find something delicious to eat or keep my mind occupied. I have noticed an increasing intolerance to dairy products. I have a lot of the same symptoms as I did when I was eating gluten, but I get them right after eating ice cream, or too much cheese/cream. I have problems when I eat too much corn products and even too much sugar. 

So what you ate may not have been the chocolate chips, you could be developing an entirely new set of food problems. 


  • 0

#103 icelandgirl

 
icelandgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 416 posts
 

Posted 25 May 2014 - 12:20 PM

I get mad at myself for having celiac disease. It's not my fault, but I just get so mad that I have to be so difficult! So I totally get the emotional aspect you are feeling. I have been Gluten Free for almost 2 years, with a handful of incidents where I either wasnt careful, or threw caution to the wind and ate something Gluten filled, stupid, stupid.  Even after almost 2 years, this morning I held a donut in my hand and was actually bargaining with myself. I was saying, I'm not working until 43o tonight. I can eat this and then take a nap and be fine! why not?

In the end, I didn't do it. Sure, my immediate reaction to eating gluten doesn't last long, a couple hours at most and I can sleep it off and feel fine when I wake up, but what damage am I causing internally? Sure, I was diagnosed with celiac disease formally, but even my Dr thinks it may be intolerance and not so much full blown celiac disease, but it could or could not really be celiac disease. All my tests were negative, all blood work, biopsy, etc. But my symptoms disappeared when I stopped eating Gluten so she just went ahead and made the diagnosis. 

Do I really want to bargain with myself though? No, its not worth it. 

The point Im trying to make is that I don't think the emotional aspect ever really goes away. Im not as emotional as I was, but I do have my days. 

What I do to get over it is find something delicious to eat or keep my mind occupied. I have noticed an increasing intolerance to dairy products. I have a lot of the same symptoms as I did when I was eating gluten, but I get them right after eating ice cream, or too much cheese/cream. I have problems when I eat too much corn products and even too much sugar. 

So what you ate may not have been the chocolate chips, you could be developing an entirely new set of food problems. 

Hi KMMO...I'm actually wondering if I'm getting a new set of food problems too...why does that happen to so many celiacs?  Anyway, starting last Monday I went down to like 6 foods that I listed above and each day have added 1 or 2 things.  So, I'm at like 14 things now.  But, I'm doing better.  No D since Friday...yay!  And I guess I'll keep doing this and see what happens.

 

I'm sorry that you get mad at yourself for having celiac disease...it's not your fault, you didn't bring it on yourself.  Now, you are living with it and hopefully thriving with it...but don't be mad at you.  :)   I've been mad at the disease for sure and said very mature things like, "I hate this stupid autoimmune disease!"


  • 0
January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
Bob Marley





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: