Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Too Soon To Get Tested?


roomorganizing

Recommended Posts

roomorganizing Rookie

I have been mostly gluten-free for about three years after finding out that our son, who was 16 at the time, has celiac. As the years went on I became increasingly convinced that I also have celiac disease (lots of symptoms and also finding out that my father had it). I made an appointment with a gastroenterologist and he has ordered bloodwork, but suggested that I wait until later this week to have it drawn so that my time on a normal diet will be right at a month. I'm wondering if it's a good idea to go ahead at this point, or if I should continue eating gluten for a few more weeks. I had read an article about a test being developed that didn't require a lengthy gluten challenge but I'm not sure that it's being used yet. Does anyone know for sure if my results would be valid at this point?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Open Original Shared Link

How much gluten should be consumed prior to being screened for celiac disease?

It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating at least 1 serving of gluten (1/2 slice of bread or a cracker, for example) every day for 12 weeks prior to a blood test and 2 weeks prior to a biopsy. This is often referred to as a “gluten challenge” and should be done under the care of a medical professional.

Link to comment
Share on other sites
nvsmom Community Regular

One month is about half or a third the length that is usually recommended (8-12 weeks with longer being better). If you can stand to wait to test, I would just so you increase the test's accuracy.

 

On the other hand, if your doctors, or insurance, is willing to retest you at 12 weeks if this test (at one month) is negative, then I say go for it. It is possible that 1 month on gluten is enough for a positive test - that will work for a minority of celiacs. If you get a positive now, then you know it's celiac. If you get a negative then it's one of two things: 1. not celiac or, 2. celiac but you were not on gluten long enough for accurate testing and need to retest at 12 weeks.

 

Good luck with whatever route you decide to go.  :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,478
    • Most Online (within 30 mins)
      7,748

    Susan Maxwell- Trumble
    Newest Member
    Susan Maxwell- Trumble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
×
×
  • Create New...