No judgement here on your situation. Unfortunately it's not uncommon (sadly).
A full blood panel isn't the only step for diagnosis in kids. For a variety of reasons there really should be a biopsy should the blood work warrant it. While NO procedure on your kiddo is "minor", an upper GI is relatively easy for the kiddo (I think all the waiting for the parents was the hardest for us!) There is no open wound, minimal risk of infection and so on. DS was 3 1/2 when he had his last endo and again, harder for me.
The Celiac genetic test has limited diagnostic value as can be present in about 40% of the general population.
Although your ttg is negative, they should consider running the Anti-deamidated gliadin IgA & IgG test for a more complete picture. Sometimes the ttg can be a false negative even if you are not igA deficient.
RMJ - thanks for coming back to us. Keep us posted if you do get any answers. I think magnesium is definitely worth a shot, no pun intended. As I said in an earlier post, mine tends to come and go - I really don't know why but if I get any answers I'll let you know, too. I suspect sometimes that it cross contamination, as well as perhaps damage that has accrued over the years.
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.