Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newbie With Question On Labs
0

4 posts in this topic

Let me start off by giving a little background on myself.  I am 27 years old and was diagnosed with Hashimoto's Thyroiditis back in 2006.  Since my diagnosis I have taken different doses of levothyroxin and everything seems to be under control except for my anti-TPo antibodies which are very high. 

 

Now fast forward to the present.... I've recently noticed that my eyebrows have started really thinning out so the obvious first thought is my thyroid, but once again everything seems to be in decent shape.  The only lab work out of range that is concerning to me was my Ferritin, it was a 10!!  I should add that I work in a laboratory so I have tests at my fingertips when I'm there so a day later I check it again and its down to 8! Why all of a sudden am I in the beginning stages of Iron deficiency anemia!? :unsure: I say beginning stages because my hemoglobin has not dropped below normal as of yet. My Vitamin D was also low for the first time ever but with the winter we had it wasn't as alarming to me and also my Vitamin B12 was to the lower end of the range.  So I started googling.....google such a great tool but also frustrating at times!! I started seeing that there is a possible link between people with Hashimoto's and Celiac disease... It made sense to me!! I could possibly have both and this is why I'm not absorbing the right nutrition.  We ran some celiac tests such as tissue transglutaminase IgG/IgA as well as Gliadin IgG/IgA,  everything came back normal except Gliagin IgG,  Mine was 3.59 IV and the range is greater than or equal to 1.1 for positive.  

 

My primary physician said that this could be a false positive and that I should see a GI doc because the only way to truly confirm a celiac diagnosis is to do a biopsy... which is fine.. I can't get an appointment with the GI until June though so I'm just a little inpatient and I guess I just want to see if anyone else has had a similar situation? 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

0

Share this post


Link to post
Share on other sites

Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

Thanks for your story!  Doctor told me to start taking over the counter iron and vitamin B12 in the meantime and if I'm still not absorbing that then I'll have to see a hematologist and receive it through IV.  I really don't have any intestinal symptoms either, at least nothing that truly bothers me... I am just TIRED! I'm 27 and I shouldn't be wishing I was staying home in bed than going out and being with friends.  I'm trying to mentally prepare myself for the possible diagnosis even though he said it could be a false positive... Because why else would I suddenly start becoming iron deficient? Update tho my appointment with the GI got pushed to this Friday the 16th so I am relieved that I will get in sooner!  

0

Share this post


Link to post
Share on other sites

http://naturalhealthcareanddiagnostics.com/anemia-deal-breaker-to-managing-hashimotos-hypothyroidism/

 

Here is a link that talks about anemia and Hashi's thyroid disease.  I have both Hashi's and Celiac and my thyroid antibodies were off the charts high when I was diagnosed with Celiac, even though I had been diagnosed with Hashi's for about 14 years by then.  Thinning eyebrows, especially on the outside of the eyebrow, are one of the hallmarks of Hashi's.  You are probably not absorbing your meds as well so are becoming symptomatic again. Hashi's is one of the most common AI diseases that happens along with Celiac.

 

Many people, including myself, do better with a natural thyroid supplement like Armour or Nature-throid, which has both T3 and T4 thyroid hormones in it.  Make sure your thyroid physician does not just go by the TSH to monitor your thyroid gland.  When you have autoimmune thyroid disease, it is important to drive down the antibodies and many doctors do not pay any attention to that. I won't make your head spin by going into that just yet because you need to be tested for Celiac. They absolutely need to do a FULL CELIAC PANEL because tTg can become elevated from thyroid disease alone.

 

Good luck with testing!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,124
    • Total Posts
      919,499
  • Topics

  • Posts

    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined