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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Infertility - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Infertility Trying for nearly 8 years. Rate Topic: -----

#1 User is offline   Grace22 

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  Posted 30 October 2005 - 09:09 PM

:o Hi I am very new to this board.
I havn't been diagnosed with celiac disease as yet and don't know if I have it.
I do have autoimmune hashimoto thyroiditis(under control) diagnosed at
age 35.
I am now 39.
I have had 2 m/cs to date - both conceived under clomid.
ttc since 1998.
The only symptom i get which makes me suspect celiac disease is
1) Infertility
2) Bloating

My grandmother died of sprue(which i think is celiac disease) and dad suffered with ulcerative colitis.
My two brothers are now lactose intolerant and my neice is allergic to protein in dairy products - from birth up until age of 15(at present).

So, I do present with a lot of autoimmune issues here and possibly celiac disease.

I am wanting to know if anyone has fallen pregnant after eliminating gluten from their diet.

I am new to the board and havn't read all the posts yet.

And - how does celiac disease affect infertility.

Thanks so much!
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#2 User is offline   melisadki 

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Posted 02 November 2005 - 12:01 AM

Grace I am new to this too and also suffer inferitliy and miscarriage. I have read somewhere on here that after going gluten-free that your chance of Miscarriage decreases greatly. There is a big connection between celiac disease and Thyroid disease so there is a good chance you have celiac or are at least gluten intolerant like me. I was diagnosed by Enterolab. My blood test came back negative.. :rolleyes: I am only 2 days into the diet so I cant report much back yet about getting pregnant.

I am hoping this will be the answer for you. To me a change in diet is well worth holding a baby in my arms soon. :)
Diagnosed Gluten Intolerant by Enterolab~Positve Gliadian Iga
gluten-free since 11/01/2005
Negative Blood Work 10/25/2005

Also:

Polycystic Ovarian Syndrome
Insulin Resistance
Infertility
Miscarriage
Hypothyroid
Bipolar
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#3 User is offline   julie5914 

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Posted 04 November 2005 - 08:28 AM

Sounds like you need to get tested whether it will increase your chances of getting pregnant or not. If you have it and go gluten-free, it will increase your chances of staying alive. celiac disease can definitely cause infertility because of malabsorption. Your body isn't going to get pregnant if it doesn't have enough nutrients to support just you, let alone a baby.
Blood work positive
Dx with IBS 5 years ago
Dx with Celiac and gluten-free since 6/17/05
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#4 User is offline   floridanative 

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Posted 14 February 2006 - 07:43 AM

The Celiac expert (consulted with Dana Korn for Wheat-free, Worry-free) I saw speak two weeks ago said that one of the most overlooked groups of undiagnosed Celiacs are those with infertility problems. There is no mention of Celiac diesease in the training of fertility specialists so they have no way of thinking to test their patients for Celiac. IF someone has Celiac and doens't know it and they can't concieve, it's likely they would be able to concieve once on the gluten free diet. However, this is IF they don't have other issues that cause infertility not related to Celiac. The doctor said the many couples spend thousands on invitro procedures when IF they have Celiac they just have to go on the gluten free diet (free) in order to get pregnant. How sad is that?
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06
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#5 User is offline   TCA 

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Posted 14 February 2006 - 07:48 AM

I am in tears (of joy)! As I've been learning about celiac disease over the past few months I came to realize that a good friend of mine fit the description perfectly. She's had a number of miscarriages, in vitro, drugs, you name it. i told her about celiac disease and she started the diet 2 weeks ago asnd had her first period in 3 years within 3 days!!! She took an ovulation test and is ovulating now!!!!!! It's amazing, and an answered prayer!

May God bless you as He has her!
If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.
Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)
Husband - Type 1 diabetic, Negative bloodwork
Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06
Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05
"All things happen for good for those who love God..." Romans 8:28
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#6 Guest_Robbin_*

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  Posted 21 February 2006 - 01:34 PM

Hi, I had 2 miscarriages and infertility problems. My first child, now 21 was conceived, I believe because I had been dieting right before and had lost 20 pounds on a low carb diet. Had been trying for 5 years. My second was a similar thing and I had to have a hysterectomy three years later because of excessive bleeding/endometriosis. I know now what celiac has taken from me and the long years of tears and misdiagnosis. DO NOT LET THAT HAPPEN TO ANY OF YOU!! Go gluten free and stay that way for your health and your future children's health. ALSO don't let a dr. talk you into a hysterectomy. Unless its cancer or life threatening. That is a door that is forever closed. Do the diet and see how much better you feel and if that helps bring on a joyous successful pregnancy. I am praying for you!!
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#7 User is offline   bridgette 

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Posted 22 February 2006 - 09:09 AM

I have been trying to get pregnant for two years. I have very irregular periods and do not ovulate but only once a year, if that. Ive tried clomid and artificail insemination with no luck. On my own Ive gotten pregnant twice with both ending in a miscarriage. I heard about eating gluten free foods from a friend and within days I started my period which I haven't gotten in a year without being medically induced. Not only did I start my period but I ovulated AND I also had implantation bleeding a few days ago. I don't know if I'm preganant, but I'm so excited to feel like I even have a chance to be pregnant. Before I felt so hopeless because no doctor could figure out the reason why I was having so many problems. I know this has everything to do with my being regular and I will NEVER eat gluten again.
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#8 User is offline   penguin 

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Posted 22 February 2006 - 09:11 AM

 bridgette, on Feb 22 2006, 11:09 AM, said:

I have been trying to get pregnant for two years. I have very irregular periods and do not ovulate but only once a year, if that. Ive tried clomid and artificail insemination with no luck. On my own Ive gotten pregnant twice with both ending in a miscarriage. I heard about eating gluten free foods from a friend and within days I started my period which I haven't gotten in a year without being medically induced. Not only did I start my period but I ovulated AND I also had implantation bleeding a few days ago. I don't know if I'm preganant, but I'm so excited to feel like I even have a chance to be pregnant. Before I felt so hopeless because no doctor could figure out the reason why I was having so many problems. I know this has everything to do with my being regular and I will NEVER eat gluten again.



Bless your heart, I hope everything works out for you! :wub:
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright
Well we'll float on good news is on the way...
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#9 User is offline   jerseyangel 

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Posted 22 February 2006 - 09:20 AM

Bridgette--I'm so glad that the gluten-free diet is such a help to you--what a story! I will keep you in my thoughts--best of luck--I've got my fingers crossed for you :) . Welcome in, by the way!
Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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#10 User is offline   floridanative 

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Posted 22 February 2006 - 02:23 PM

I was shocked to learn that one of the most missed groups ouf Celiacs who seem otherwise asymptomatic is idiopathic infertility...apparently it can affect both men and woman with Celiac. Once such a person gives up gluten it somewhat common for them to get pregnant even when $30K in fertility treatments don't do the trick. Infertility docs don't get ANY training on Celiac in school (or even wtih ongoing training) so they don't ever think to test their patients for it.

It's also noted that someone on the South Beach or Atkins diet who had a problem getting pregnant will get pregnant while on the special diet which someone here posted happened to them. I can not believe all these different ways Celiac manifests itself and when all is said and done, I don't believe only 3 million people will have it in the US. I think the number will be higher. I have a dear friend who was told she was going into early menopause at 26. I've been trying not to dx my friends and family as not to alienate them but I'd hate not to mention this to my friend if there is a remote possibility that she could have Celiac. Maybe I should print some of these posts and give them to her. Would that be totally out of line?
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06
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#11 Guest_Robbin_*

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  Posted 22 February 2006 - 05:55 PM

floridanative, Please tell her. You may be saving her from so much heartbreak. I wish, more than anything in this world that I could have had a daughter (another son would have been ok too!) and that choice was taken from me. Even had I not wanted another child, the hysterectomy was so life-changing and traumatizing for me that I beg women to reconsider (unless it's life threatening) and try dietary changes. Not eating gluten is nothing compared to not having a child you desperately want. You would only be doing her a huge favor with only good intentions. I wish I had known a friend who understood this illness and could have told me. AND BRIDGETT--GREAT NEWS! A baby will happen soon. Your health is getting better and better! Congratulations!!!
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#12 User is offline   floridanative 

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Posted 22 February 2006 - 08:22 PM

Thank you Robbin and you're right. I'm going to copy the six pages of the Fertility section of Dr. Green's book and give them to my friend. Then I'll tell her the truth - that I love her too much not to share this very interesting information. Thanks for making me feel okay about doing it.
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06
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#13 User is offline   bridgette 

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Posted 27 February 2006 - 02:12 PM

 floridanative, on Feb 22 2006, 06:23 PM, said:

I was shocked to learn that one of the most missed groups ouf Celiacs who seem otherwise asymptomatic is idiopathic infertility...apparently it can affect both men and woman with Celiac. Once such a person gives up gluten it somewhat common for them to get pregnant even when $30K in fertility treatments don't do the trick. Infertility docs don't get ANY training on Celiac in school (or even wtih ongoing training) so they don't ever think to test their patients for it.

It's also noted that someone on the South Beach or Atkins diet who had a problem getting pregnant will get pregnant while on the special diet which someone here posted happened to them. I can not believe all these different ways Celiac manifests itself and when all is said and done, I don't believe only 3 million people will have it in the US. I think the number will be higher. I have a dear friend who was told she was going into early menopause at 26. I've been trying not to dx my friends and family as not to alienate them but I'd hate not to mention this to my friend if there is a remote possibility that she could have Celiac. Maybe I should print some of these posts and give them to her. Would that be totally out of line?



Floridanative, it would be well worth trying to convince your friend of this. I'm only 22 and doctors thought that I was going through early menopause at age 20. Of course they came up with other reasons besides that, but it can't hurt to try not eating gluten.
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#14 User is offline   floridanative 

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Posted 01 March 2006 - 04:30 PM

Gosh I'm late in posting but my friend is seeing a Celiac specialist in two weeks. I'm so thankful I talked to her. Thanks to those who encouraged me to do so. It's hard since you don't want to alienate your freinds but this was too important not to tell her. If she doesn't have it great! If she does she should know before it's too late.
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06
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#15 User is offline   ilstate 

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Posted 01 March 2006 - 04:39 PM

Hi. I know I 'm a guy, but I can give my perspective. I found out that I had CS in the Spring of 2000. I got married shortly after that. I never really stayed on my diet until about 2.5 years ago. My wife and I were not trying to get pregnant, nor were we taking any precautions. We just had the attitude that when it happened, it happened. About six months after I went on my diet for good, we concieved. So from my male point of view, I was able to be fertile about 5-6 months after being my diet. I know there could have been other factors involved, but we are both convinced it was because of my diet.
Good Luck,
Brandon
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