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I Tried To Message Gottaski But


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8 replies to this topic

#1 1desperateladysaved

 
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Posted 18 May 2014 - 02:48 PM

She isn't taking messages!  IS YOUR MAILBOX CLEANED OUT?  I better get mine cleaned out.

 


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#2 kareng

 
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Posted 18 May 2014 - 03:49 PM

People do have the option to not receive Pms.
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
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#3 GottaSki

 
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Posted 18 May 2014 - 04:00 PM

Hi D...I don't use this PM system.

 

What ya need?


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#4 IrishHeart

 
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Posted 18 May 2014 - 04:04 PM

I was just going to say...well, I know Lisa was on vacation in Yosemite last week on a much-needed vacation,  and now she is home, but yes, not everyone uses the PMs.


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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#5 1desperateladysaved

 
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Posted 19 May 2014 - 04:27 AM

Once in a while I just like to try to catch the attention of someone I think can help with a thread.

 

As for my mailbox, I will soon not be receiving mail, because I can't part with so many messages from the last 2 years!


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#6 GottaSki

 
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Posted 19 May 2014 - 06:37 AM

Feel free to link a thread here whenever you like.

 

I'll see it as I have responded within this thread.

 

Take care!


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#7 1desperateladysaved

 
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Posted 19 May 2014 - 03:41 PM

I guess I thought you were the one that did 3 annual endoscopies.  I noticed a couple of endoscopy threads that I wondered if you could help with.  Oh, yeah one thread seemed to be saying there would be no damage left after 2 years gluten free.  I have no idea where that thread was anymore.  Another thread finally has some answers now.  Thanks.


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#8 GottaSki

 
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Posted 19 May 2014 - 03:46 PM

I guess I thought you were the one that did 3 annual endoscopies. I noticed a couple of endoscopy threads that I wondered if you could help with. Oh, yeah one thread seemed to be saying there would be no damage left after 2 years gluten free. I have no idea where that thread was anymore. Another thread finally has some answers now. Thanks.

Yep...I had four endoscopies...one each year for four years...the first three were similar. Only the last showed minor improvement, but still marsh iii b's and c's.

I do not have refractory celiac.

Edited to add: my case is not the norm. While many folks have lingering symptoms, most have villi recover substantially in correlation to their improved celiac antibody and nutrient absorption levels. My antibodies are all near zero and nutrients have all recovered well.

Edited by GottaSki, 19 May 2014 - 04:09 PM.

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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#9 1desperateladysaved

 
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Posted 19 May 2014 - 04:59 PM

Thanks, I am 2+ years gluten free and facing a colonoscopy, so why not do the endoscopy at the same time? I had decades, ( if not a lifetime of damage), so I expect it to take a long while.  Though I am well,  I am still in transition with feelings of constant healing, but still have some tenderness in the intestine at least at times.  I could see if I could get diagnosed by endoscopy or if healing has taken place.  NO WAY need I to think of a gluten challenge.  I am going to try to consult with the GI doctor to see if they know what they are doing first.  Also, if they care to look without the gluten challenge. 

 

Hopefully, everyone will post their ideas for questions in the other thread. 

 

Dee


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