Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Quest Vs Prometheus
0

6 posts in this topic

I am having a hard time getting my doctor and insurance company together with me on having my blood work done at Prometheus labs in california. I had heard from several people that this was the best lab for this testing.

Does anyone know if Quest is accurate? Quest is covered by my insurance and the other one isn't unless they approve it ahead of time. I don't know if I'm going to fight my insurance company for nothing or should I persue it?

Anyone with a lot of knowledge on the labs please help me. I only want to take the test one time.

Thanks

Robin

0

Share this post


Link to post
Share on other sites


Ads by Google:

I only know a little about the two labs, but I will share my experience with you.

I had my blood test done at Quest and was negative. My kids had the same tests done at Quest and they came back positive on IgG only. We got the referral to a pediatric GI and he said that he doesn't like to use regular labs for celiac disease testing. He ONLY trusts Prometheus for celiac disease testing. So he ordered the tests. My insurance of course refused to cover the cost, so the children's hosp. lab sent the blood to Quest again. Again they came back IgG positive only. I looked into having the Prometheus tests done and paying out of pocket, but for my 3 kids it was going to cost over $2000. The blood test for Celiac is around $270, but if it is negative then they automatically run the gene test and then the two test together cost over $700! I just couldn't swing that kind of money, so I opted for Enterolab. We go back to the doctor next week and I will show him the positive results from Enterolab for my kids, but he might not accept them.

My personal opinion is that Quest doesn't do enough of the celiac disease tests to know how to do them well, and they also don't do the most specific test (TTG) accurately. See they have to use Human Tissue Transglutaminase when they do the TTG test and most regular labs use Guinea Pig Tissue Transglutaminase and that makes the test not so accurate. I feel using Quest is a waste of money. Just my opinion though. The decision to fight the insurance company or not is yours. I personally chose not to fight, since I had already waited two years for my own testing to be completed and I did not want to waste more time while my kids suffered.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Hi Mariann,

Thanks for your information. Half of my battle is seeming to be getting the doctor to call the insurance company. When I spoke with the woman at the insurance company she asked me if there was a local lab that could do this. I told her there is but they don't do it with the same amount of accuracy. I since found out from quest that they don't do the gene panel. I am hoping that this will be my tool to get them to approve it. In the mean time I can't try the gluten free diet because I'll mess up my results.

You must do an awful lot of research. Every section I go in it seems as though you have some really good information. Thank you for all the answers you have given to me all over this board.

Robin

0

Share this post


Link to post
Share on other sites

Thanks Robin,

I'm glad I could help. I spent over two years researching all aspects of celiac disease, the gluten free diet, the testing and all that and I feel like I hardly know much at all. I can understand a little of why doctors are lost when it comes to diagnosing, but the information is out there. I just hope that more and more doctor will become receptive to learning from us patients! :rolleyes: I hope you have enough information available for your insurance to cover Prometheus. I've heard they are the best for testing for celiac disease.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

I called a well known Celiac Disease Program and specifically asked whether I should allow my son's dr to use Quest for his bloodwork. I received a firm negative, and Prometheus was highly recommended. This Center also lists Mayo Clinic and Specialty Labs as appropriate.

I also have spoken with a support group leader whose sister got a false negative from Quest and retested positive later.

I called Prometheus directly and spoke with customer service. They will send the transport kits to either the dr or patient, and will process the tests if specimens are returned with a dr's script and direct payment or (accepted) insurance info. They give a discount for cash forms of payment (20-25% I think). I remember that the Panel including Total IGA if needed was around $217 with cash discount.

It is important to call the dr ahead of time. He may not have an account with Prometheus, and some drs don't want to bother in that case because direct payment from the patient does not give their billing system a way to add their cut to the billed office visit amount. In that case, find a dr who has an account with Prometheus or who will work with you regarding payment options.

If you don't call ahead, your specimens will go to a lab with which the dr has an account. Once the blood is drawn, it's too late to specify.

Many regular labs may be licensed to do the test, but the results are very dependent on skilled operator procedures. Many techs haven't run enough tests yet to be that skilled. They may or may not run or read your test correctly. I got this info from a registered dietitian who works with a celiac disease program.

Prometheus Labs # is 888-423-5227.

Hope this helps

0

Share this post


Link to post
Share on other sites




Well, I have my prometheus kit and my authorization number from my insurance company. I can't believe they actually approved it. I can't wait to have my test done. I haven't removed any gluten from my diet yet but I'm going to wait another week to take the test. In this week I'm going to pig out on pasta etc. I just hope the test is accurate.

Thanks for everyones help

Robin

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,379
  • Topics

  • Posts

    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
    • amalgam dental fillings - remove or not?
      Do you have celiac disease?  This is a celiac forum and that's what we are most knowledgeable about. http://www.cureceliacdisease.org/screening/ Amalgam fillings do not have lead that I know.  What you read was probably mercury.  You could have them removed, but only by a dentist who has the knowledge and skill.   I think you need to do some more research so that you can make an informed decision. I wish you well. 
    • Newly diagnosed and totally overwhelmed
      Welcome! Go ahead and rant!  Scream and holler!  Weep.  It is totally normal to go through a grieving process.  We have all been there!  You are NOT alone! When you pick yourself off the floor, start researching.  Learn about the gluten free diet.  Start with easy-to-digest foods that are naturally gluten free (meat, fish, veggies, fruit, etc.).  You may have to give up dairy for a short time until your villi heal (the villi tips release enzymes that help digest lactose (milk sugars).  Skip all the processed foods until you are improving.  That will give yourself time to forget what bread really tastes like.  Avoid eating out for a few months -- it's easy to get cross contamination.  Best to explain your gluten-free needs when you, yourself, "get it".  Read our Newbie 101 thread under "Coping" for valuable tips.   You can go out and drink with your friends.  You might have to avoid alcohol for a few months.  But when healed you can drink!  Just no beers, malted beverages.  Most distilled liquor (e.g. volka) is gluten free.   So, is wine.  Skip the gluten free beer for a long time.   Find other celiacs in your area.  In the meantime, visit with us.  It does get better.        
    • amalgam dental fillings - remove or not?
      Hi everyone, I'm going through some health issues right now and when searching for possible causes of my symptoms and blood test results, I see lead poissoning popping up quite a few times. Now, I have many amalgam fillings in my mouth since childhood, so naturally I'm thinking if that might play a role and if removing them would make a difference. But from what I read online removing the amalgam fillings is not recommended and does not bring any health benefits. I have mixed feelings about this issue and would really appreciate some advice. Thanks in advance for any comments. Greetings from Mexico. :-)
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,716
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined