Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Quest Vs Prometheus
0

6 posts in this topic

I am having a hard time getting my doctor and insurance company together with me on having my blood work done at Prometheus labs in california. I had heard from several people that this was the best lab for this testing.

Does anyone know if Quest is accurate? Quest is covered by my insurance and the other one isn't unless they approve it ahead of time. I don't know if I'm going to fight my insurance company for nothing or should I persue it?

Anyone with a lot of knowledge on the labs please help me. I only want to take the test one time.

Thanks

Robin

0

Share this post


Link to post
Share on other sites


Ads by Google:

I only know a little about the two labs, but I will share my experience with you.

I had my blood test done at Quest and was negative. My kids had the same tests done at Quest and they came back positive on IgG only. We got the referral to a pediatric GI and he said that he doesn't like to use regular labs for celiac disease testing. He ONLY trusts Prometheus for celiac disease testing. So he ordered the tests. My insurance of course refused to cover the cost, so the children's hosp. lab sent the blood to Quest again. Again they came back IgG positive only. I looked into having the Prometheus tests done and paying out of pocket, but for my 3 kids it was going to cost over $2000. The blood test for Celiac is around $270, but if it is negative then they automatically run the gene test and then the two test together cost over $700! I just couldn't swing that kind of money, so I opted for Enterolab. We go back to the doctor next week and I will show him the positive results from Enterolab for my kids, but he might not accept them.

My personal opinion is that Quest doesn't do enough of the celiac disease tests to know how to do them well, and they also don't do the most specific test (TTG) accurately. See they have to use Human Tissue Transglutaminase when they do the TTG test and most regular labs use Guinea Pig Tissue Transglutaminase and that makes the test not so accurate. I feel using Quest is a waste of money. Just my opinion though. The decision to fight the insurance company or not is yours. I personally chose not to fight, since I had already waited two years for my own testing to be completed and I did not want to waste more time while my kids suffered.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Hi Mariann,

Thanks for your information. Half of my battle is seeming to be getting the doctor to call the insurance company. When I spoke with the woman at the insurance company she asked me if there was a local lab that could do this. I told her there is but they don't do it with the same amount of accuracy. I since found out from quest that they don't do the gene panel. I am hoping that this will be my tool to get them to approve it. In the mean time I can't try the gluten free diet because I'll mess up my results.

You must do an awful lot of research. Every section I go in it seems as though you have some really good information. Thank you for all the answers you have given to me all over this board.

Robin

0

Share this post


Link to post
Share on other sites

Thanks Robin,

I'm glad I could help. I spent over two years researching all aspects of celiac disease, the gluten free diet, the testing and all that and I feel like I hardly know much at all. I can understand a little of why doctors are lost when it comes to diagnosing, but the information is out there. I just hope that more and more doctor will become receptive to learning from us patients! :rolleyes: I hope you have enough information available for your insurance to cover Prometheus. I've heard they are the best for testing for celiac disease.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

I called a well known Celiac Disease Program and specifically asked whether I should allow my son's dr to use Quest for his bloodwork. I received a firm negative, and Prometheus was highly recommended. This Center also lists Mayo Clinic and Specialty Labs as appropriate.

I also have spoken with a support group leader whose sister got a false negative from Quest and retested positive later.

I called Prometheus directly and spoke with customer service. They will send the transport kits to either the dr or patient, and will process the tests if specimens are returned with a dr's script and direct payment or (accepted) insurance info. They give a discount for cash forms of payment (20-25% I think). I remember that the Panel including Total IGA if needed was around $217 with cash discount.

It is important to call the dr ahead of time. He may not have an account with Prometheus, and some drs don't want to bother in that case because direct payment from the patient does not give their billing system a way to add their cut to the billed office visit amount. In that case, find a dr who has an account with Prometheus or who will work with you regarding payment options.

If you don't call ahead, your specimens will go to a lab with which the dr has an account. Once the blood is drawn, it's too late to specify.

Many regular labs may be licensed to do the test, but the results are very dependent on skilled operator procedures. Many techs haven't run enough tests yet to be that skilled. They may or may not run or read your test correctly. I got this info from a registered dietitian who works with a celiac disease program.

Prometheus Labs # is 888-423-5227.

Hope this helps

0

Share this post


Link to post
Share on other sites




Well, I have my prometheus kit and my authorization number from my insurance company. I can't believe they actually approved it. I can't wait to have my test done. I haven't removed any gluten from my diet yet but I'm going to wait another week to take the test. In this week I'm going to pig out on pasta etc. I just hope the test is accurate.

Thanks for everyones help

Robin

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,344
    • Total Posts
      920,486
  • Topics

  • Posts

    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats in the past few months (thanks kids) which I took a lot longer than normal to recover from then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined