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Next Steps After Dx?

Christina.V

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Christina.V Apprentice
Christina.V
Posted

My diagnosis came a couple weeks ago after bloodwork and a biopsy (a hepatologist performed those). I have a referral to a GI doc but not until Mid-july. I have an appt with my PCP in a couple of weeks, though, and I'm planning on asking about additional bloodwork that might need to get done. 

 

Recommendations on what tests to get? I don't prefer waiting around for the doctor to tell me what to do, I'd rather come in prepared! I've read that I should have some vitamin levels checked but am unsure which ones. 

 

And, yes, of course I'm gluten-free now as well. Making that change hasn't been all that difficult but it's only been two weeks.

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IrishHeart Veteran
IrishHeart
Posted

I mention this here:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

and read

 

Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler

 

and Gluten Freeedom by Alessio Fasano, MD

 

be your own best advocate!  ^_^  most docs do nothing after Dxing you. (I got lucky when I searched and found my new GI)!) 

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      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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