Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Painful Glands - So Over It
0

5 posts in this topic

My name is Danielle. I am 24 and live in New York City - and I can't eat gluten and I love to eat - Starting to see the problem?

I'm not certified by a doctor but it all started in January  - I went from normal human adult to someone I didn't recognize. I had a major sinus infection. It lasted for weeks - now I'm use to having a stuffy nose as I suffer from hay fever from birth - but nothing like this, It was scary. I had major stomach pains and even went to ER because I was nauseated and couldn't keep anything down - along with major constipation. I was sent home with a slap on the wrist and pills - it did nothing. My cold did go away along with the stomach problems - but it got worse before better - for about two months I dealt with on again off again sinus pressure ( It felt like an elephant was on head - everyday!) twitching muscles - nerve pain - joint pain -a popping jaw - wrist and feet pain (it felt like needles!) - a clogged ear a painful throat - a swollen tongue - painful swollen lymph nodes - always tired -headaches everyday and gum pain. Seriously if you put this into Web MD it would say your dead. I thought that I was falling apart. At times I even cried because I thought that this was my life and it would be a tumor or cancer. I got anxious and depressed. It turned into hypochondria. The youthful girl who loved to eat and laugh was no more and it happened in a mere few months. I was in constant pain and was prepared to live my life like this.

 

Until one day I was reading Fitness Magazine and it had an article about being tired. I read through it and just like it was written for me. It was an article on Gluten Intolerance. Now I heard of it, as I had a friend from work who could not eat it either - but I didn't believe it. I was 24, why now would my stomach decide to not accept carbs anymore. But just as my thigh twitching right now I knew something was wrong with me. Followed by rashes and the doctor telling me I was anemic I had developed a food allergy against my bread and butter(literately!).

 

All symptoms are pretty much gone except these glands mostly behind my ears and my neck hurt on and off everyday but they are not swollen. Is this withdrawal? Its been a full week with absolutely no cheating and im still in pain - should I be patient?

 

Any advice is loved and welcomed 

 
0

Share this post


Link to post
Share on other sites


Ads by Google:

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

1

Share this post


Link to post
Share on other sites

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.

Im in the process of that as I am seeing an allergist but when I eat it I feel worse - I ate a hot dog bun last week and had to take a nap and woke up to ringing in my ears. I work at Starbucks and when I eat anything out the pasty case its hell - once my tongue even ached after I ate banana bread so something is bothering me - but thanks for the reply 

0

Share this post


Link to post
Share on other sites

Celiac disease isn't an allergy but an allergist could certainly order the tests. But for the tests to be accurate, you need to be eating gluten.

0

Share this post


Link to post
Share on other sites

Gluten withdrawal has nothing to do with allergies or intolerances and would happen to anyone who quit consuming gluten. You could expect to be really tired, lethargic, have a headache and cravings, sleep more than normal and have brain fog. That is because gluten is an opiod, fitting into the same sensors in your brain as opiates, and having similar withdrawal symptoms. This would be one of the reasons people "love" bread products - because it literally gives them a high. Withdrawal normally takes a week or two but is mainly bad the first couple days.

Swollen glands is not a symptom of withdrawal from gluten, but could be part of a reaction to gluten ... or a reaction to other invaders such as catching a virus. If you do have a gluten intolerance and this was part of your autoimmune response, yes, it could take longer than just one week in order to get over the autoimmune reactions like that.

But you appear to be really early in the process of figuring things out. If you are feeling that much better by not consuming gluten, I'd say stick with it, but also do a lot more research into celiac and wheat allergies, what the differences are, and seriously consider doing a gluten challenge in the future so that you can get the correct tests done.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,315
  • Topics

  • Posts

    • i hope you tipped that waitress well????
    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined