Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Can Allergens, Like Corn, Re-Start The Dh Autoimmune Reaction ?

Blaze422

By Blaze422
in Dermatitis Herpetiformis

Recommended Posts

Blaze422 Rookie
Blaze422
Posted

I have been tapering off my dapsone and thinking I was getting better, but recently entered back into the world of

Itching. My idea of "healthy" is still have a rash on my lower back and neck hairline and sporadic patches on armpits etc...but 1/3 of what I used to have and .but significantly less itch..

I'm pretty confident that I have avoided gluten, but I remember many posts that discuss DH being a S.O.B....

And that sometime she raises her angry head because she can simply be a bi€th.

(A disclaimer is that I had some honey whisky that apparently has been rated a 4 out of 10 on confidence of being gluten free.)

So maybe I'm crazy, but I could swear that after drinking Arizona green tea that is proud of "no preservatives or artificial colors or flavor" I'm itching ...a lot. And my legs broke out.

Looking at the ingredients it appears to Have high fructose corn syrup . So in my over active paranoia, I'm wondering if my DH is "smoldering" and if corn can act similarly to iodine or salycylates and aggrevate my condition. So until I rule it out..I've eliminated corn as best I can.

Thanks for reading my rambling thought. Opinions appreciated!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Blaze, How many times did I ask myself if I was reacting to something that was not gluten? I finally learned not to second guess every single thing. How did I learn this? 1) Common sense  2) I reacted when there was absolutely nothing out of the ordinary that I had eaten.

Arizona Green Tea is gluten free, in fact ALL the Arizona teas are gluten free. 

 

To quote you:

"I remember many posts that discuss DH being a S.O.B....

And that sometime she raises her angry head because she can simply be a bi€th."

 

Yup, that's it.

 

9 full months after I had gone strict gluten-free & had improved so very much, I began to have a flare that got worse & worse & worse. It lasted from September through about May. It was the worst flare I had ever had. I did not get the tiniest amount of gluten. I have zero doubt about that. 

 

Relax. Stop torturing yourself. She's a b%$@# of the first order. The best thing you can do is to stop second guessing everything. Otherwise, she wins. And she's not going to win is she? 

Link to comment
Share on other sites
Blaze422 Rookie
Blaze422
  • Author
Posted

LOL

So at the risk of being b%$@# slapped...

Are you saying foods that I have a sensitivity to will not cause a flare up?

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

I'm not saying that b/c I can't say that 100%. There is nothing I've read that would allow me to say such. I wasn't sensitive to any foods before dh reared it's ugly head (other than shroomies which I just don't eat). Therefore, I wasn't/don't eat any foods I'm sensitive to so can not say from my own experience that I did not flare when eating foods I am sensitive to. It's awfully hard to prove a negative. No food sensitivity so no way to compare. The question is...... were you sensitive to corn before?

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

Maybe you have an allergy to these other foods that causes a rash?  Or adds a rash on top of the existing DH?  Now that sounds pleasant.....  :(

Link to comment
Share on other sites
Blaze422 Rookie
Blaze422
  • Author
Posted

I am sensitive to corn (diarrhea )

The reason this all is on my mind because I'm seeing an environmental allergist next week out of desperation. He comes with a great reputation for being thorough and a great sleuth /detective type.

Quick recap : I never had any rashes until August 2014. Random stomach issue over the years and then slowly escalating rashes that were bilateral, reactive to iodine, not responsive to steroids.... but NOT insanely itchy.

Dermatologist agreed to try dapsone 25mg four times a day and I got 75% improvement in 4 months. Reduced dapsone to 25 mg twice a day and for 3 months have maintained status quo. Still have some rashes, some itchiness but manageable. Now in the last 3 weeks, things are flaring and spreading.

One thing I have been doing a lot past month or 2 is far infrared sauna and Epsom salt/baking powder/hydrogen peroxide baths .

Not sure if any of this is significant but thought I should increase dapsone again and see if I have a "hidden"

Allergen contributing to my pathetic state.

Thanks for any advice,

Mark

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

So.... You don't really know if you have DH? It was never biopsied? Then, maybe it isn't DH and it something else.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Blaze422 Rookie
Blaze422
  • Author
Posted

My history is. Typical to most posters...they find this forum after they have struggled for months.

That's when we learn about the problems with a biopsy after steroids or blood work after going gluten-free. I have discussed my history on other threads and was trying to save everyone from a tedious story.

So yes, I was biopsied and had bloodwork that were not positive for DH. And no, I don't want to do a gluten test and have

GI biopsy.

And yes, that is why I freely admit that while it behaves and looks like DH, it may not be.

But the question is...if a person has DH and is gluten free....can other food allergens cause a flare up?

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

I do not see a single mention that anything other than gluten causes DH on the U of C site.

Link to comment
Share on other sites
Blaze422 Rookie
Blaze422
  • Author
Posted

I do not see a single mention that anything other than gluten causes DH on the U of C site.

Does iodine cause a DH rash to flare up?

Do salyclyates cause some DH sufferers trouble?

The question is not if corn causes DH ..but whether it can causes a DH rash flare up

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. BluegrassCeliac
      - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

      Hi, Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom...
    2. Scott Adams
      - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity...
    3. Nacina
      - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy...
    4. trents
      - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
    5. Fluka66
      - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748
    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      14 year old with Celiac & EOE still suffering...

      By Nacina · Posted

      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      Waiting for urgent referral.

      By trents · Posted

      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...