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How Long After Gluten Free Diet?
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This is my 6th pregnancy. My first two are miscarriages, the 3rd my son was born, 4th was miscarriage, and 5th my daughter was born. Now I am on my 6th and noticed that I am likely miscarrying again. :(

 

I accidentally noticed that I feel better on a gluten free diet. My husband has health issues, so we put him on a gluten free diet and so naturally, I began eating gluten free (easier to cook that way). After a while of eating gluten free, I noticed that every Sunday I would get that gross carsick feeling and terrible headaches. I couldn't figure it out for a long time; until I realized that every Sunday I ate gluten (potluck at church). I started bringing my own meal (for just myself) to church, and the problem went away (I also noticed that coffee gives me the same symptoms; but I was able to test each one and confirm that it makes me feel ill; weird).

 

I didn't bother going to the doctor about it because it's about a 1 to 2 year wait to see a gastroenterologist. And then even after you see them, it takes another 6 months or so to get tested for Celiac. And then after you're tested, it's another several months for the biopsy results to come in. My husband went back on eating gluten for that specific purpose and then tested... so we know about the waits. :(

 

So my question is, how long after being gluten free will it improve fertility? I have been gluten free for almost a year now. I was so sure this pregnancy would turn out well. :( :( :(

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I'm so sorry for what you're going through right now.  I don't know the answer to your question, but I once read a study (Sweedish, I think?) about pregnancy and celiacs, and in the study the women followed a strict gluten free diet for two years before getting pregnant to study pregnancy outcomes vs women who did not follow a gluten free diet. So perhaps there is some belief that two years is the reccomended time frame to allow your body to fully recover?  I would assume that is what the Sweedish scientists believed anyway. 

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I am so sorry for your loss. :( I had been gluten-free (also self diagnosed in 2002, I know it makes me sick, so I stay gluten-free) for about 6 years before I met my now husband (married 4 years now!). We knew quite early on that we wanted to be together (I was 28, he was 31), so we didn't prevent anything. I did not get pregnant until we had been together for 7 months. I had started giving up by then, thinking I wouldn't be able to have kids. What I noticed though, after I got pregnant was that I had been taking a vitamin B6 supplement for 2 months when I got pregnant! So I looked it up, and apparently, vitamin B6 is linked with better pregnancy outcomes!  Then 6 months after my daughter was born, I got pregnant again, but it was a surprise. I started taking the B6 again (as I hadn't been taking it) as I suspected pregnancy, but I unfortunately lost that pregnancy. My next pregnancy was planned and I made sure I was taking the B6 again, and have a beautiful daughter. I got pregnant again when my daughter was 8 months old, but I had been taking the B6 supplement incase something happened again, and have a wonderful son! (So 4 pregnancies, 3 babies, and 1 loss.) For me I swear it was the B6 that made the difference, and helped. I also kept taking the B6 until the pregnancy was further along in case something might happen if I stopped taking it. I don't know if this will help or not, but it can't hurt to try!

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I am really sorry. But don't worry eveything will be fine.

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    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
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