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- trents replied to AlyO's topic in Parents, Friends and Loved Ones of Celiacs3
Possible gluten exposure in 4yo
And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. -
- AlyO replied to AlyO's topic in Parents, Friends and Loved Ones of Celiacs3
Possible gluten exposure in 4yo
Thank you, Trents. I appreciate your helpful and friendly reply. It seems more likely to be a bug. It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. -
- trents replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Negative Test but I have All the Symptoms!
Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing. -
- knitty kitty replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Negative Test but I have All the Symptoms!
Hello, @Hannah24 Have you had a DNA test done? Celiac Disease is genetic. You must have at least one gene to develop celiac disease. You don't have to be consuming gluten for a genetic test. Anemia, diabetes and thiamine deficiency can cause false negatives. Some lucky people are seronegative, but still have celiac disease. Peripheral... -
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25 year biopsy confirmed/ate pizza with no ill effects?
We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
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IrishHeart is absolutely right and has furnished a lot of great links to make her point. It's true that Celiacs specifically don't react topically to products containing wheat. For a Celiac, products containing gluten are fine as long as they're never going in or near your mouth. This is not to say, however, that someone may not have a wheat allergy apart from or in addition to Celiac or NCGS. A true allergy to wheat (not oral consumption of gluten that fuels an autoimmune disease) can create a topical reaction, even on unbroken skin. This could be part of the reason she considers herself "super sensitive", because the majority of even severe Celiacs on this forum aren't going to care whether or not the hair dye that they use maybe once a month has wheat in it. That being said, if you don't have a wheat allergy and you have Celiac or NCGS, you may find that a dye with wheat derivatives will work just fine for you. I can only tell you from personal experience that not everyone will tolerate it as well as the majority does.
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This is why I always say...do what's best for you.
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What does this mean?
Copied from Irishheart's post:
"Source:
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According to Dr. Alessio Fasano, Medical Director of the Center for Celiac Research, University of Maryland,
“If you have celiac disease, then the application of gluten containing products to the skin should not be a problem, unless you have skin lesions that allow gluten to be absorbed systemically in great quantities.""
Does that mean that there is scientific evidence for absorbtion of gluten with skin lesions?
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I have never seen any myself but I think this is significant....he says
"systemically in great quantities "...I don't know what that means really...how would that even happen?
That's a question for Dr, Fasano, I think.
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Systemically would be into your body. For example, lets say you have a skin condition like psoriasis or another condition that can give you open sores all over the body. Those open sores are now a gateway through your skin that is not normally there. At that point you really shouldn't put anything on those sore that wasn't designed to be put on them, because topical products are not meant to be introduced to your internal body system.
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lol
No, I know what the words "systematically" and "in great quantities" means what I am not sure of is how gluten could possibly be
administered "in great quantities" via the skin into open lesions. seems strange...Someone is going to roll around in wheat flour?
How is that possible since the gluten molecule is too large to pass through skin?
I have tried to figure this out...... Say you have open lesions galore...in what FORM
would gluten be administered to create a gut response? It just does not make sense and I have always been perplexed by this statement from Dr. Fasano.
Again, maybe we should write to Dr. F and ask him to clarify. Seriously, because there is NO evidence that gluten can pass through the skin
and somehow end up in the bloodstream.
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Yep, what would you have to do, torture someone with a cutting device and then roll them in flour? Okay, I need to stop this wild imagination! LOL
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too late.... Now I have an image of us all .. like a pounded piece of veal being coated in flour, dipped in egg and made into veal piccata.
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HAHAHA! That is exactly what vision I had in my head!
<.<
>.>
<.<
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talk about late...I walked into this thread and started with the last post
doh...I use whatever is on special at Target -- no problems to date -- and I might add I am not in need of dye nearly as often as prior to dx
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