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Is There A Possibility Of More Than One Skin Conditon Occuring With Dh?
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I have been diagnosed with celiac a few weeks ago and have been gluten free ever since. I began getting a rash approx. 8 months ago on my buttocks, then I spread to my elbows and knees. The last 2 months I got a rash on my face but I wanted to know if there is a possibility that the rash on my face is not dh and is something else? I have been given dapsone medication to reduce the immflamation of the rash for 2 weeks now which has been effective to some extent. Is it possible to have more that one skin problem at the same time, because the rash on my face seems to different. The rash on my face seems to be red and thickened. it is quite sore if I massage or rub my face and becomes even more red when massaged without any moisturizer.

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Yes you could have  more than on condition at a time. Have you seen a dermatologist? If not it would be a good idea. Do make sure your doctor is doing regular liver panels on you while you are on the dapsone. Some doctors don't realize those need to done. Do stay very light on iodized salt as iodine will help keep the DH active. It can take a while for the antibodies to leave the skin but things should calm down for you soon. I found even a tiny amount of CC would flare my DH for quite a while after diagnosis. That did lessen in time. 

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hey man thanks for the reply. ive had a few appointments with the dermatologist but I did not raise the question about the rash on my face because I thought it was the dh rash. plus I was using steroid cream on my face at the time to reduce the immflamation. ive got an appointment with the dermatologist in a few weeks and will let him know about my symptoms. Did u use dapsone aswell? My dermatologist says this drug is for long term like a year or so, but I am not comfortable taking it for long term because ive read on the internet that this drug is pretty strong. Im on 50mg a day of dapsone. I was thinking of only taking it for a few months until things settle down.

 

also ive done my own research and think my rash on face my be seborrhoeic dermatitis, because my eyebrows are flaky, and the pics on the net look similar to mine. however I cant be sure. does anyone else have this rash?     

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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