Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Need Help-daughter's Results In

WRowland

Recommended Posts

WRowland Newbie
WRowland
Posted

Got my daughter's results in-she didn't get my DQ8(201) or my husbands DQ2(302)....

She's double DQ7(302). I was well prepared for explaining DQ2/DQ8 but not this.

What I can find about it, beyond "gluten sensitive" is that it's dark grey in a medium grey area. Some are saying that it may be a third celiac gene.

So, I'm looking for anyone with this genotype to chime in, especially symptoms they experienced, especially pain and neurological. This is a big life style change for her and she needs to recognize herself. This is a mother begging. Please help me help her.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WRowland Newbie
WRowland
  • Author
Posted

Sorry, that's DQ2(201) and DQ8(302).

Link to comment
Share on other sites
WRowland Newbie
WRowland
  • Author
Posted

And DQ7(301). Can you tell I'm really upset?

Link to comment
Share on other sites
alisonsf Newbie
alisonsf
Posted

I'm sorry to say it really is a grey zone and there are at this point no definite answers. I am DQ6 and DQ7, negative tTG with high positives on my antigliadin tests. I've been told that I probably shouldn't eat gluten if I feel better when I don't, but that eating gluten won't kill me. Without the genetic markers for celiac disease I do not need to worry about things like lymphoma.

What I think is going on is an antigliadin response but not an autoimmune response and that is an important distinction.

This should be considered good news, though I can understand your dismay over a vague diagnosis.

Link to comment
Share on other sites
Matilda Enthusiast
Matilda
Posted

I've got 1 of those 0301's. I read somewhere that it's very similar to DQ8. I think I would probably email Dr Fine and ask what he think the significance of a double 0301 is.

Best wishes,

Matilda

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,186
    • Most Online (within 30 mins)
      7,748
    Grandma anna
    Newest Member
    Grandma anna
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoeBlow
      glutenfreedrugs.com

      By JoeBlow · Posted

      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Finding out I’m coeliac whilst pregnant

      By Beverage · Posted

      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Seeking Gluten-Free Advice for My Trip to South Korea!

      By Beverage · Posted

      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      Not Sure What to Think

      By trents · Posted

      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
×
×
  • Create New...