Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Waiting Results
0

12 posts in this topic

So I had blood work drawn yesterday to see if I have Celiac's. Just waiting for the results. Right now it seems like the only things I can eat without diarrhea is fruits and veggies. I also have this crazy heavy fatigue that I can't seem to shake for the last 2-3 weeks. Everyone once in a while, more frequent than usual, I get these pounding headaches. I also get severe abdominal pain when I eat dairy which doc thinks might be related to Celiac's. I can't wait for the results it's killing me.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Good luck! I hope you get your results soon - waiting is horribly hard!

0

Share this post


Link to post
Share on other sites

Well the tests came back negative. So gonna try gluten free vegan diet since doc doesn't want me eating dairy and I already don't eat meat. Guess I better get my stuff together so I do this properly!

0

Share this post


Link to post
Share on other sites

Well the tests came back negative. So gonna try gluten free vegan diet since doc doesn't want me eating dairy and I already don't eat meat. Guess I better get my stuff together so I do this properly!

 

 What tests did the doctor do?  I ask because many doctors just run one test, and celiac tests do not have a high sensitivity - some can miss up to 25% of celiacs.

 

This is the full celiac panel (in case you want to check):

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA (control test)

AGA IgA and AGA IgG (older and less reliable tests)

 

If you want anymore tests run, do it before you go gluten-free.

 

This report has the stats on the tests on page 12: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Good luck with the gluten-free diet!  I hope you feel better soon.  :)

0

Share this post


Link to post
Share on other sites

I know he didn't do all of those. So, I guess I'll just do dairy free like he wants. See if that helps. If not get ALL the Celiac tests later. See what happens.

0

Share this post


Link to post
Share on other sites




So, thought I would be safe just doing dairy free as doc suggested. However, I had spaghetti tonight and within minutes of finishing a small plate all my symptoms returned. This is a royal pain all my fav food are being eliminated. Oh well, guess that beats all this pain and misery when I eat. So, gluten free vegan it is! I don't eat meat by choice, gotta eliminate gluten and dairy, and I'm sure doc would prefer me not eat egg though he didn't say that. Gah! I got lots of work to do.

0

Share this post


Link to post
Share on other sites

If you're already not eating meat, get yourself checked for a B12 deficiency. If you do have a deficiency, it is called pernicious anemia and it can cause pretty severe abdominal pain, bloating, etc. Vegetarians and vegans do have to keep an eye on their levels because animal-sourced foods are the only natural source of B12 that our bodies can digest.

And when you get tested, don't settle for just having your doctor tell you that it isn't a problem. Get your test results in hand so that you can see the numbers for yourself. Just because you might still be in the normal range does not mean that your numbers are ideal.

 

The minimum for the normal B12 range in the U.S. is 200, but even the labs will add text on your test results (if you are low) that anything below 400 can cause symptoms, and the minimum in other countries is much higher than the U.S. For instance, in Japan, anything below 500 is considered too low.

If you take B12 supplements, make sure to look up dosing information and side effects first. All B12 supplements are synthetic, even those used to fortify foods and there are some side effects.

In the meantime, this article about the evolution of milk may be of interest to you. It doesn't talk about lactose intolerance so much as why people of different heritages may be more or less likely to be lactose intolerant. Only a third of the world population can properly digest milk as adults, so if you can't, you are definitely not alone.

http://www.nature.com/news/archaeology-the-milk-revolution-1.13471

And best of luck to you. I really do hope that it is just something like a B12 deficiency (easily treated) and lactose intolerance because going gluten free is much more limiting than dairy free.

0

Share this post


Link to post
Share on other sites

Calling PCP for GI referral to get second opinion. I can't take another episode like this again pain meds or not. It only after dairy and heavy foods like pasta, bread, baked goods, etc. So, wish me luck. PCP better give me the referral. It's the least he can do if he don't know what it is and doesn't wanna keep trying. GAH!!!

0

Share this post


Link to post
Share on other sites

Start a food and symptom journal right away if you can.  Having the "proof" in writing can sometimes be helpful with docs.  Good luck!

0

Share this post


Link to post
Share on other sites

Definitely doing the food-symptom journal. I see gastro doc aug 28 but he's supposed to be excellent. In the meantime there's always the ER again.

0

Share this post


Link to post
Share on other sites

:(  I hope you manage to avoid the ER! Good luck.

0

Share this post


Link to post
Share on other sites

Yeah I really hope I won't need the ER...but if the pain gets bad enough again after the pain meds run out...I'll definitely go if need be.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,339
    • Total Posts
      917,385
  • Topics

  • Posts

    • Teff Intolerance?
      Udi's brand also uses sodium carboxymethyl cellulose in many products, a food additive emulsifier that may cause intestinal symptoms. Emulsifiers help stabilize the bread and give it a great texture but the additive may also possibly be emulsifing the intestinal lining. Our intestinal cell walls are lined with electrically active proteins that are shaped somewhat like bottle brushes with a stiff backbone protein handle topped by electrically active bristles that act like magnets that repel each other and help keep the tube shape of the intestine open. So food additive emulsifiers may be disrupting the ability of the intestinal walls to stay open. Xanthum gum is also an emulsifier.
    • Will Australia's Gluten-free Barley Set the Beer World on Fire?
      Can Australia's new gluten-free barley revolutionize the gluten-free beer industry? View the full article
    • Could this possibly be related to celiac or a gluten intolerance?
      Welcome, @ModernLifeIsWar! Celiac has over 300 symptoms, but it looks like you have some symptoms that appear a lot in those diagnosed with celiac. I suggest you take these symptoms to your doctor and ask for a GI consult and to get the full blod panel to test for celiac disease. The gold standard is an endoscope, where 4 or more biopsies of the intestines are taken. The caveat is that you must be on a diet with gluten for all tests to be accurate, and you must continue eating gluten until all testing is done.  So, if it were me, I would start eating gluten again and get that referral.  However, you need to make the decision that is best or you.  Edited to Add: Also, since you eat a lot of processed food, your body might be reacting to other things, such ad additives. 
    • Could this possibly be related to celiac or a gluten intolerance?
      I don't have any real major stomach issues, however I've had a diet for years very high in gluten consisting of tons of junk food (pizza, cookies, cereal, donuts, etc..).  A few symptoms I have noticed over the years have been: -Migraines (very frequent) -Large increase in eye floaters -Very bad sinus congestion -Very bad anxiety -Semi frequent bouts of diarrhea/runny bowel movements. Not all the time, but it certainly happens more than I feel is normal.   However, in terms of stomach pain I haven't noticed much. I do get very bloated sometimes however, mainly just contributed this to my crappy diet. Anyways, since the beginning of April I've been having a lot of neurological issues and after reading more into gluten intolerance I'm wondering if it couldn't be associated: -Full body tremors ranging from hands, arms, legs, and core. (i.e. I shake a lot when doing stuff with my hands, if I try to do sit ups my whole body will shake, etc..). I've had minor hand tremors in the past but this problem has recently blown to a whole new level -Muscle spasms all over and mild cramping -tingling feelings randomly throughout my  body in all parts including face and head -Shortness of breath -Racing heart rate when doing physical activity (i.e. walking upstairs and I'm a fairly active person) -Minor issues with balance and coordination -Brain fog   I'm going to see a neurologist in 3 weeks, but I decided to give gluten free a try as of two days ago. I've also been taking a lot of important vitamins and nutrients (b12, d, b complex, fish oil, magnesium, etc..). I'd be interested to know if anyone here has experienced similar symptoms (most notably tremors and muscle spasms) and had success switching to gluten free. I've seen anecdotal cases posted, so I'm hoping that maybe this is my issue. Another thing to note is my younger sister has very bad stomach issues. She hasn't seen a Dr about it and can't follow a diet to save her life, but she commonly complains of pain, gas, bloating, nasty bowel movements, etc... after eating out. So I think there is a possible genetic factor here. What would be the best Dr to seek out in helping me diagnose such a thing? Also is it normal to have stomach issues AFTER starting gluten free? Today is my third day and I've had 2 bouts of diarrhea and very loud stomach growling. Possibly from switching from a diet full of sugar and gluten to one with significantly less and gluten free?
    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,477
    • Most Online
      1,763

    Newest Member
    CiciStrong85
    Joined