Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Waiting Results
0

12 posts in this topic

So I had blood work drawn yesterday to see if I have Celiac's. Just waiting for the results. Right now it seems like the only things I can eat without diarrhea is fruits and veggies. I also have this crazy heavy fatigue that I can't seem to shake for the last 2-3 weeks. Everyone once in a while, more frequent than usual, I get these pounding headaches. I also get severe abdominal pain when I eat dairy which doc thinks might be related to Celiac's. I can't wait for the results it's killing me.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Good luck! I hope you get your results soon - waiting is horribly hard!

0

Share this post


Link to post
Share on other sites

Well the tests came back negative. So gonna try gluten free vegan diet since doc doesn't want me eating dairy and I already don't eat meat. Guess I better get my stuff together so I do this properly!

0

Share this post


Link to post
Share on other sites

Well the tests came back negative. So gonna try gluten free vegan diet since doc doesn't want me eating dairy and I already don't eat meat. Guess I better get my stuff together so I do this properly!

 

 What tests did the doctor do?  I ask because many doctors just run one test, and celiac tests do not have a high sensitivity - some can miss up to 25% of celiacs.

 

This is the full celiac panel (in case you want to check):

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA (control test)

AGA IgA and AGA IgG (older and less reliable tests)

 

If you want anymore tests run, do it before you go gluten-free.

 

This report has the stats on the tests on page 12: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Good luck with the gluten-free diet!  I hope you feel better soon.  :)

0

Share this post


Link to post
Share on other sites

I know he didn't do all of those. So, I guess I'll just do dairy free like he wants. See if that helps. If not get ALL the Celiac tests later. See what happens.

0

Share this post


Link to post
Share on other sites




So, thought I would be safe just doing dairy free as doc suggested. However, I had spaghetti tonight and within minutes of finishing a small plate all my symptoms returned. This is a royal pain all my fav food are being eliminated. Oh well, guess that beats all this pain and misery when I eat. So, gluten free vegan it is! I don't eat meat by choice, gotta eliminate gluten and dairy, and I'm sure doc would prefer me not eat egg though he didn't say that. Gah! I got lots of work to do.

0

Share this post


Link to post
Share on other sites

If you're already not eating meat, get yourself checked for a B12 deficiency. If you do have a deficiency, it is called pernicious anemia and it can cause pretty severe abdominal pain, bloating, etc. Vegetarians and vegans do have to keep an eye on their levels because animal-sourced foods are the only natural source of B12 that our bodies can digest.

And when you get tested, don't settle for just having your doctor tell you that it isn't a problem. Get your test results in hand so that you can see the numbers for yourself. Just because you might still be in the normal range does not mean that your numbers are ideal.

 

The minimum for the normal B12 range in the U.S. is 200, but even the labs will add text on your test results (if you are low) that anything below 400 can cause symptoms, and the minimum in other countries is much higher than the U.S. For instance, in Japan, anything below 500 is considered too low.

If you take B12 supplements, make sure to look up dosing information and side effects first. All B12 supplements are synthetic, even those used to fortify foods and there are some side effects.

In the meantime, this article about the evolution of milk may be of interest to you. It doesn't talk about lactose intolerance so much as why people of different heritages may be more or less likely to be lactose intolerant. Only a third of the world population can properly digest milk as adults, so if you can't, you are definitely not alone.

http://www.nature.com/news/archaeology-the-milk-revolution-1.13471

And best of luck to you. I really do hope that it is just something like a B12 deficiency (easily treated) and lactose intolerance because going gluten free is much more limiting than dairy free.

0

Share this post


Link to post
Share on other sites

Calling PCP for GI referral to get second opinion. I can't take another episode like this again pain meds or not. It only after dairy and heavy foods like pasta, bread, baked goods, etc. So, wish me luck. PCP better give me the referral. It's the least he can do if he don't know what it is and doesn't wanna keep trying. GAH!!!

0

Share this post


Link to post
Share on other sites

Start a food and symptom journal right away if you can.  Having the "proof" in writing can sometimes be helpful with docs.  Good luck!

0

Share this post


Link to post
Share on other sites

Definitely doing the food-symptom journal. I see gastro doc aug 28 but he's supposed to be excellent. In the meantime there's always the ER again.

0

Share this post


Link to post
Share on other sites

:(  I hope you manage to avoid the ER! Good luck.

0

Share this post


Link to post
Share on other sites

Yeah I really hope I won't need the ER...but if the pain gets bad enough again after the pain meds run out...I'll definitely go if need be.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,783
  • Topics

  • Posts

    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • DaVinci's Pizza has several gluten-free items great gluten-free pizza (well done suggested) and they don't have anything with gluten that goes in the fryer, so wing and fries are great all salad dressing made in house and gluten-free.  Owners mom has Celiac so they're very empathetic. Cheers. And enjoy. I eat there all the time and have NEVER had an issue. And if someone just touches bread then prepares my food its all over for me 6-8 hrs of reaction for me. Also Jimmy Johns @ 17th and Peachtree Street also great just tellm'to change glove and ask for the paper to be placed on the sandwich board before they make it. Also never had an issue but I have only had the Italian style lettuce wrap. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined