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Cushing Syndrome

twe0708

By twe0708
in Related Issues & Disorders

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twe0708 Community Regular
twe0708
Posted

Does anyone have this and can this be treated?  I noticed a small hump below the back of my neck which I know is a symptom of Cushing Syndrome but was wondering if I go to the doctor, is there something they can do to keep me from getting worse?  I have also started putting on more weight on the upper body.  :(

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kareng Grand Master
kareng
Posted

See a doctor?  Not sure how you can diagnose this yourself.

 

 

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twe0708 Community Regular
twe0708
  • Author
Posted

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

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kareng Grand Master
kareng
Posted

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

 

 

I see you posted about this 2 years ago.  What did the doctor say at that time?  What treatment were you put on?  It looks like a doctor can help you.  It must have gotten worse in 2 years?

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twe0708 Community Regular
twe0708
  • Author
Posted

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

I'm just trying to figure out if I need to return to the doctor to see if other problems are starting due to Cushings.

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kareng Grand Master
kareng
Posted

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

 

Sure.  Sorry.  I thought you might have a serious problem but it sounds like  you are fine.  Great!   :)

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HavaneseMom Explorer
HavaneseMom
Posted

Does it look like the hump in the picture in this link?

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If so, it can be caused by poor posture, weak muscles or scoliosis, all of which can be worsened with the upper body weight gain you mentioned.

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LauraTX Rising Star
LauraTX
Posted

Are you on long term oral corticosteroids, such as prednisone?

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twe0708 Community Regular
twe0708
  • Author
Posted

No corticosteroids now or in the past.  Attached is a link with someone else and their neck.  My is not as bad as this but if you google more images you will see how bad it could get.

 

Open Original Shared Link

 

Scroll down to bottom of page where they show the lady before and after.  Mine isn't as bad but there is something there.  I can't believe how bad some of the pictures I have seen.  Very scary!

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kareng Grand Master
kareng
Posted

Here is the link to your same topic from 2 years ago. Maybe there is some info there for people reading along....

https://www.celiac.com/forums/topic/96635-cushings-disease-or-buffalo-hump/#entry823920

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LauraTX Rising Star
LauraTX
Posted

Then you just really need to see a doctor.  You cannot safely diagnose yourself with Cushings syndrome, and because it can be caused by serious illness, you need to get the root cause checked out.  As always, if you are not happy with what a doctor does, you can always change doctors.  The blog you linked to, while it could be helpful to patients properly diagnosed with Cushings, is very biased and written by a non-expert.  I would look elsewhere for reputable information.

 

If yours isn't as bad as the last pictures on that blog post, I highly suspect it could just be aging and body changes.  I, myself, have always had what I call the "Old white lady" shaped body, basically since maturity.  My waist size and my leg size do not match up -my waist is a size 16 and my legs are a size 12.  Now that I have been on prednisone for over a year for my lupus (finally now tapering doses down to go off), those disproportions have magnified.  But overall, I accept that I am just not going to look like the thin necked models out there in magazines.

 

If it would make you feel better to get thoroughly checked out, you can ask for specific tests to be run, and if your doctor won't do them, find someone who will.  However, whatever the outcome, you need to learn to accept yourself as-is or you are going to drive yourself crazy with worry.  Don't compare yourself to others in the looks department, that is not where you will find true happiness.  

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