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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could It Still Be Celiac Or Gluten Sensitivity?
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4 posts in this topic

Okay, here's my story. Ever since the age of 7 I have been experiencing stomach pain after meals. In the last few years the stomach pains have been going away but I still have many symptoms such as headaches,skin rashes,dizziness and constipation. I went to the doctor for my problems and they told me to go off dairy and tested me for celiac among other things.The next day they called to say all my blood work was fine and that I don't have celiac ( I find this strange because doesn't the blood work take more than 1 day) Anyways so going off dairy helped a bit but I still have many symptoms. The reason I'm still thinking gluten is the culprit is because my mom also has many symptoms such as psoriasis,keratosis Polaris, fatigue and sleep apnea. I still live with my mom and she thinks that gluten sensitivity is a myth and won't let me go off of gluten to see if I have a sensitivity. Anyways so what should I do and is it possible I still have celiac or even a gluten sensitivity?

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Can you get a hold of what tests were done?  Some doctors run the old tests, misinterpret the results, or only run one test when more should be done.  You do have some symptoms that could be attributed to celiac disease or NCGS (non-celiac gluten sensitivity) so it is worth rechecking.

 

If you think it could be NCGS, go gluten-free for a few months and documents your symptoms.  No one needs a doctor's prescription to go gluten-free. Gluten has no nutritional value anyways, and is not heavily eaten in other parts of the world... it is just convenient and tastes good.  ;)

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I do think the test does take more than one day to run and interpret. I was told 4 days is about the shortest. So that is strange. I have heard that many people have the test run several times and sometimes it takes a few times to actually come back positive. I was young (17) when I first started to realize something was wrong, like yourself. I wish I knew about celiac disease then, because I am about to turn 30 and I have been through a lifetime of hurt because of this disease. I was always misunderstood by my parents because of the way I ate and felt all the time. It is certainly difficult. You are very lucky to have the resources to help you determine what tests the doctors should run, i wish i had the resources at a young age because I would have asked the Dr to run the tests sooner and saved myself and my health.

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