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Not Diagnosed Yet

strum

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strum Rookie
strum
Posted

So, here's my story. For about the last year, I have been experiencing increasing GI issues. Bloating, gas and diarrhea mainly. To the point that it is beginning to interfere with work, and I do not want to go out or travel. I have had gastric bypass so I had been blaming that. I noticed when I cut back on carbs the symptoms improved. For the last 2-3 months I have been eating a low carb diet. I finally had an endoscopy and colonoscopy last week and it came back as "may represent an early manifestation of Celiac's disease". Other symptoms I have included migraines, really low ferritin levels for at least six months (been either 4 or 6), been losing teeth to cracking. I also have two other autoimmune diseases - hashimotos thyroiditis and Addison's disease.

Sorry that was so long. Any way, the doctor reading the test results recommended further blood testing. So I am trying to increase my gluten intake. Does that sounds reasonable? I just started yesterday and I am so sick already, can't hardly get out of the bathroom and my belly is aching like crazy. Just wanted to see what you all thought. And to vent a bit. Thanks.

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notme Experienced
notme
Posted

sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?  

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strum Rookie
strum
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Posted

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

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beebs Enthusiast
beebs
Posted

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

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strum Rookie
strum
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Posted

The report from the pathologist went on to say "may represent an early manifestation of celiac disease" and recommends further serological testing.

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NatureChick Rookie
NatureChick
Posted

The two figures I've seen to ensure test accuracy (two different sources) are the equivalent of two pieces of bread a day for 6-8 weeks, or the equivalent of one piece of bread a day for 12 weeks.

In either case, it seems as if you've already realized that you have a problem with gluten. Congratulations on discovering a possible culprit for many of your woes. And best of luck getting through the next several weeks.

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