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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Still Getting Tummy Aches
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12 posts in this topic

So its been about 3 months since i completely cleaned out my kitchen. I have gotten all new cooking spoons, a new toaster and completely changed the way my family eats. We have not had any amount of gluten in the house since the end of school (a month ago) and even when there was bread i was really careful about cleaning up and using a new fresh paper plate to make the kids sandwiches. 

Anyhow.. My smallest is still complaining of a tummy ache on a daily basis. Does it take awhile for the gluten to work itself out or does this sound like a different problem?


On a good note.. Both girls skin has cleared up and they have both gained weight. Its amazing how much can change in a short period of time.

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Hi AshleyD,

I'm so sorry to hear about your daughter's continued tummy aches even after becoming 100% gluten free. Yes. It can take from 6-8 months depending on how severly the gut was damaged. Please know that this is common in celiac patients. I was diagnosed with celiac in 01/2012 and it has been a interesting journey to say the least. It took me a few months, but I also realized I could no longer eat corn, soy and most dairy products. After eliminating these items, I no longer have any problems other than an occasional tummy ache due to

cross contamination when I'm eating out. Hope this helps. Feel free to inbox me for more information.

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Maybe your child has other food sensitivities.  You might want to keep a food diary for her and a diary of her symptoms.  It might narrow down just what else might be bothering her.  Are they having milk?  Most can't ingest dairy after diagnosis due to you secrete the enzyme to ingest dairy on the tips of your villi and most are blunted after diagnosis from the damage gluten does.

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Is she eating dairy?  maybe try to eliminate that for a few weeks and see if that helps.  Sometimes lactose intolerance is a problem, too.

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. Feel free to inbox me for more information.

 

 

The purpose of the forum is to share your ideas with everyone.  That can be helpful for people for years to come who might see these posts.  Thank you

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The only dairy she eats is cheese and butter. We have used almond milk for years because we thought she was dairy intolerant to begin with.. (All her issues started with birth)

Im relieved to know that the stomach pains are normal.. But it saddens me that she is not going ot be better for a while longer. I wish this was quicker. :(

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The only dairy she eats is cheese and butter.

 

 

see if you notice if she has a tummyache if she eats cheese or butter.  i skipped it for probably 6 months (with much relief) and was able to add it back in - if her gut is being irritated by something she is having a hard time digesting, it may hamper her healing progress.  

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A food journal may help you pin point offending foods. I realized that I had problems with milk and can not handle some raw fruits (apples, pears) and veggies.

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i think i will start with a food journal. Thanks guys!

Could it be pots and pans hiding gluten maybe?

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i had both stainless steel and non-stick cookware.  the stainless can be cleaned really well with brillo and you should be fine.  i don't use the non-stick ones anymore because they were scratched up and gluten can hide in the scratches.  

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So basically my pots are glutening my girls? :( I cant afford a new set. My husband thinks i am crazy. (for thinking we need all these new things. ) oy

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i was skeptical myself (and i was the one getting sick!  lolz)  and we also are not rolling in 'dough' but i found that if i replaced things one at a time, it was do-able.  i figured out the pot/pan i used the most and that was replaced first (saute pan, in my case).  if you have a 'ross' store, they have decent stainless for pretty cheap(er).  or maybe and outlet store?

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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