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Still Getting Tummy Aches
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So its been about 3 months since i completely cleaned out my kitchen. I have gotten all new cooking spoons, a new toaster and completely changed the way my family eats. We have not had any amount of gluten in the house since the end of school (a month ago) and even when there was bread i was really careful about cleaning up and using a new fresh paper plate to make the kids sandwiches. 

Anyhow.. My smallest is still complaining of a tummy ache on a daily basis. Does it take awhile for the gluten to work itself out or does this sound like a different problem?


On a good note.. Both girls skin has cleared up and they have both gained weight. Its amazing how much can change in a short period of time.

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Hi AshleyD,

I'm so sorry to hear about your daughter's continued tummy aches even after becoming 100% gluten free. Yes. It can take from 6-8 months depending on how severly the gut was damaged. Please know that this is common in celiac patients. I was diagnosed with celiac in 01/2012 and it has been a interesting journey to say the least. It took me a few months, but I also realized I could no longer eat corn, soy and most dairy products. After eliminating these items, I no longer have any problems other than an occasional tummy ache due to

cross contamination when I'm eating out. Hope this helps. Feel free to inbox me for more information.

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Maybe your child has other food sensitivities.  You might want to keep a food diary for her and a diary of her symptoms.  It might narrow down just what else might be bothering her.  Are they having milk?  Most can't ingest dairy after diagnosis due to you secrete the enzyme to ingest dairy on the tips of your villi and most are blunted after diagnosis from the damage gluten does.

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Is she eating dairy?  maybe try to eliminate that for a few weeks and see if that helps.  Sometimes lactose intolerance is a problem, too.

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. Feel free to inbox me for more information.

 

 

The purpose of the forum is to share your ideas with everyone.  That can be helpful for people for years to come who might see these posts.  Thank you

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The only dairy she eats is cheese and butter. We have used almond milk for years because we thought she was dairy intolerant to begin with.. (All her issues started with birth)

Im relieved to know that the stomach pains are normal.. But it saddens me that she is not going ot be better for a while longer. I wish this was quicker. :(

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The only dairy she eats is cheese and butter.

 

 

see if you notice if she has a tummyache if she eats cheese or butter.  i skipped it for probably 6 months (with much relief) and was able to add it back in - if her gut is being irritated by something she is having a hard time digesting, it may hamper her healing progress.  

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A food journal may help you pin point offending foods. I realized that I had problems with milk and can not handle some raw fruits (apples, pears) and veggies.

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i think i will start with a food journal. Thanks guys!

Could it be pots and pans hiding gluten maybe?

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i had both stainless steel and non-stick cookware.  the stainless can be cleaned really well with brillo and you should be fine.  i don't use the non-stick ones anymore because they were scratched up and gluten can hide in the scratches.  

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So basically my pots are glutening my girls? :( I cant afford a new set. My husband thinks i am crazy. (for thinking we need all these new things. ) oy

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i was skeptical myself (and i was the one getting sick!  lolz)  and we also are not rolling in 'dough' but i found that if i replaced things one at a time, it was do-able.  i figured out the pot/pan i used the most and that was replaced first (saute pan, in my case).  if you have a 'ross' store, they have decent stainless for pretty cheap(er).  or maybe and outlet store?

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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