Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

5 posts in this topic

Hi everyone,

A few years back my doctor told me that he believed I might have Celiac disease and to start trying to remove gluten from my life. A month ago he confirmed that I have Celiacs. He also told me to remove processed sugar from diiet because it doesn't help with the disease

So now I am trying to figure out this new lifestyle and I have all sorts of questions that I  need help with.

Food wise:

It is very hard to find gluten-free foods that don't have sugar in them. How do you tell the difference between good sugar and bad sugars? I understand the difference between natural and not, but some products seem to be all-natural, but have a high sugar count. Does that make sense?

I pretty much eat on bananas all day because they are the easiest thing to grab and go with my busy lifestyle. Does anyone have any tips on things that stay well and can be eaten quickly [like in a minute or less]?

Depression:

I have been suffereing depression for a few years now as well. Has anyone experienced their depression improving after removing the gluten completely or does it get worse? I finally had mine under control and now I feel depressed everyday. Does it get better?

Fatigue/Forgettfulness/ Lack of caring:

I am constantly tired and just not there anymore. I forget things like not other; I also have frequent blackouts where I don't remember what exactly I was doing. I also have lost interest in a lot of things.  I don't know whether this is the disease or something else.

Beauty Products:

I know they say to avoid gluten in beauty products. Does anyone have any brands they can recommend? From supermarket brands to salon products, I would like to get a grasp on what i can use. Lip Balm in particular because I"m a chapstick addict.

Cross-contamination:

How worried should I be about this?

I suppose those are the questions I can think of right now. Besides that, does it get better?


 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the club!

 

There is no Celiac reason to eliminate sugar.  Not sure what the doc was going for there.  Maybe he just didn't want you eating a bunch of gluten-free junk?   :unsure:

 

On beauty products - the ones that might get in your mouth are the most important to be gluten-free.  For example, I don't worry about mascara but I do worry about my face lotion as I am always getting it in my mouth.  Those little egg lip balms are gluten-free.  Have fun "flavors". Eos?  

 

 

This is them http://evolutionofsmooth.com/blueberry-acai-smooth-sphere-lip-balm.html

0

Share this post


Link to post
Share on other sites

Welcome to the club, and happy early birthday! (Sorry, I cheated and looked at your profile)

As for your questions:

-Sugar, I have no clue how to tell the good from bad aside from maybe if you look at the ingredients and see if it says "cane sugar" (but don't quote me on that one)

-Quick foods, there are several snack bars (I know nature valley has an almond crunch I think it is) that are gluten free. Just check the labels! Kroger has the shelf tags for most of their gluten free products that say "gluten free" on them.

-Depression and lack if caring I'm gonna combine cuz they go hand in hand. I have noticed my overall outlook on life has improved. Most of my lack of caring/interest in things was mainly because I always felt like sh**, so as I've been off gluten and feeling better, I have more interest in things.

-Beauty products....I'm naturally sexy so I don't wear any.

0

Share this post


Link to post
Share on other sites

Since Karen and Georgia guy commented on some of the other issues, I am going to comment on the depression.

 

The way I have looked at my new diagnosis is kind of like going through the 5 stages of grief.

 

1. Denial and Isolation - how can I not be able to have gluten?  I was eating it every day, that can't be my problem.  The lab results tell me I can't, but I want a damn Choco Taco ( I really need to figure out a way to make them gluten-free).  Then the isolation - I can't go out with my friends anymore, they are all going to think I am a freak.  I might as well just stay home.

 

2. Anger - You are mad at everyone, mad at the doctors for taking so long to diagnose you, mad at your spouse because they just don't understand - they can eat all that yummy goodness and you can't, mad that no one truly understands what you go through on a day to day basis, how much pain and anxiety you have had.

 

3. Bargaining - I think the doctors are wrong, maybe I should go get a second opinion.  Maybe if I eat a nice big old bowl of shredded wheat, I won't get sick - they're wrong.  Maybe if I eat a little it won't harm me.

 

4.Depression ( the fatigue and not caring is a part of this, the forgetfulness is more brain fog) - This is really unfair.  One minute you are up, the next you are down.  You are fighting with friends, fighting with spouses, again no one understands.

 

5. Acceptance - You finally realize this is a good thing.  I now know what my problem is, I can fix it.  It takes time, but it does get better.  Once you get your diet under control, it gets even easier.  I am not nearly depressed as I was three months ago, but glutenings really have a bad effect on my moods. 

 

The brain fog lessens, but it is one of the things for me that is taking a long time.  I started to feel worlds better within a week of my diagnosis. My migraines have gone completely and I was having them four times a week ( I should say I haven't had one in three months, don't know if they are gone forever).  I still have pain and nerve damage, but those might never go away.  For the first time in my whole life I know what it's like to be regular ( or as regular as my body will let me).  I am not nearly as emotional as I was three months ago, but it's still hard.  Most on here will say that the first year is the worst. You are going to find that people in your life are either going to be very understanding or they aren't going to be at all.  At least with my experience so far there doesn't seem to be an in between.  This forum is a wonderful source of information full of a lot of people that understand just what we are going through.

 

Good luck with your new endeavor and welcome to the club!

0

Share this post


Link to post
Share on other sites

 

Sugar:

Though sugar of any sort doesn't help anyone, I'd probably just do low sugar for now rather than try to eliminate all of it and go gluten free at the same time. Though trying gluten-free foods is one way of lessening the ways in which you feel deprived early on, long-term, you'll probably end up cooking more foods for yourself from scratch so the amount of sugar in your diet will go down anyway.

Beauty Products:

I tried eye shadows and foundation from a brand called 100% Pure. I'm not a huge fan of how the foundation applies, and the color selection for the shadows is limited but they are good enough for how infrequently I wear makeup. But I do like that all of their ingredients are less toxic than those that you find in mainstream products. 

Cross Contamination: Take it seriously. The first few months will likely include lots of accidents so don't bee too surprised when they do. Most people spend at least the first 3-4 months getting glutened on a regular basis until they figure out some hidden sources or realize that what they hoped would be safe actually isn't.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,647
    • Total Posts
      921,596
  • Topics

  • Posts

    • Tell your medical doctor that you want a full Celiac panel before you go gluten-free.  The stool tests aren't considered medically valid, so they probably won't accept those.  
    • Sure, if you are feeling better from the Celiac, now you might notice other things you didn't before.     a very real possibility is that you have changed your diet and are now eating something you didn't eat much of before.  Or you are eating larger or smaller amounts of protein or fiber....that sort of thing
    • This board is quite old but I'm hoping someone can continue on this topic. I am 61 years old and in all my life and doctors' visits, I have never had a western doctor ask me if I have a family history of celiac or suggest a gluten free diet. In all honesty, I have only started having what could be considered "gluten sensitive" symptoms within the past 2 years - chronic, unexplained bouts of diarrhea, mainly. Although bloodwork has shown in the past 2 years I now have high cholesterol, blood sugar, blood pressure and a bone density scan showed osteopenia. My PCP put me on meds for everything, of course. I recently began seeing a naturopath - and when I was running down my health history and list of symptoms she immediately asked about the family history of celiac. My father was positively diagnosed, through biopsy, with celiac sprue about 25 years ago, when nobody talked about gluten sensitivity. Anyway, she had me do the full panel testing at Enterolab. I have one celiac gene and a gene that indicates neurological manifestations of gluten sensitivity (I have long been plagued with panic attacks and depression). I also showed extremely high (215 units, below 10 is normal) for fecal anti-gliadin and varying high results for dairy, eggs and soy. My fat malabsorption stool test also tested high (431 units and normal is less than 300). The interpretation from Enterolab and my naturopath both strongly advised I eliminate gluten from my diet for the rest of my life. Naturopath said after a year or two I may be able to try introducing limited dairy, eggs and soy back; but not until the glutin response is completely under control. I am really struggling with this. Everyone I've talked to (including adult children, spouse, other family members, friends) is skeptical about me making such a radical change in my (our) diets based on these results. They seem to view gluten sensitivity as a "fad" and think I am going off the deep end. "Get a second opinion" - or "talk to your PCP about it". I've read enough to know that my PCP will not be of much help. And since I really only had one irritating symptom that could be related to gluten sensitivity, it's not like my life will be radically improved by going gluten free. I guess I could choose to ignore the test results - for now. I'm trying to view going gluten, dairy, egg and soy free as preventative and something that will contribute to a healthier life as I age. But it's so hard ... especially when the people who mean the most to me think I'm over-reacting and kind of cuckoo. Can anyone help me out here? I feel so alone ...  
    • Hello everybody, I'm new to the forum but am so happy to have found somewhere where people living with coeliac can share their thoughts! I've only been gluten-free for two weeks.  About three days in, I started experiencing awful heartburn which hasnt let up and I'm wondering if anyone else had this after giving up gluten? It wasn't a typical symptom for me before so feeling very uncomfortable.  I am not due to see my gastro consultant again until December and my GP (who was about as helpful as a chocolate teapot!) just gave me lansoprazole (its a PPI) which isnt even touching it.  Just wondering if giving up gluten is unmasking other symptoms or if this is a normal or common withdrawal effect?  I feel like burping/belching could help but its something I've never been able to physically do. Im in my early 30s so hoping its not another thing... Any advice would be appreciated A
    • O sorry. Negative biopsy. But this was months ago but i have no energy. My teeth are rotting i feel sick all the time. And i was told by someone who has celiac that it can also be difficult to have a diagnosis cause you would have to eat 6 pieces of bread for 6 weeks in order to get a proper diagnosis. And i just know that something is up
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined